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Chorionic villus sampling (CVS)
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Anyone else just utterly sick of failing month after month?
Firstly, I want to say I know I'm lucky to be able to actually try to conceive naturally at all each month. That's huge, and I know others don't have this option. I'm just so tired and down today, after AF arrived yet again. Not sure why this time is more disappointing than usual... Maybe it was because
Firstly, I want to say I know I'm lucky to be able to actually try to conceive naturally at all each month. That's huge, and I know others don't have this option. I'm just so tired and down today, after AF arrived yet again. Not sure why this time is more disappointing than usual... Maybe it was because
AuroraXen
in
Fertility Network UK
2 years ago
I Have Just Completed My 12 Month CLL Treatment Plan
About 13 months ago, my dentist commented on swollen lymph nodes along my neck and that suggested I have my primary care physician look at them next time I saw her. I did. She referred me to UT Health/MD Anderson, which confirmed that I have CLL. I was placed on Obinutuzumab/Venclexta therapy for
About 13 months ago, my dentist commented on swollen lymph nodes along my neck and that suggested I have my primary care physician look at them next time I saw her. I did. She referred me to UT Health/MD Anderson, which confirmed that I have CLL. I was placed on Obinutuzumab/Venclexta therapy for
DanBro1
in
CLL Support
2 years ago
Toleration of colds
Hello all my wonderful friends. It's been awhile. Went to visit my mom and thankfully I did when I did because she busted her ear drum while I was there and that was horrific!!! But much better. My question for you today is, While I was gone my son got a bit of congestion. Which my husband got. When
Hello all my wonderful friends. It's been awhile. Went to visit my mom and thankfully I did when I did because she busted her ear drum while I was there and that was horrific!!! But much better. My question for you today is, While I was gone my son got a bit of congestion. Which my husband got. When
AriSmyelin
in
My MSAA Community
2 years ago
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Hiv rash and symptoms
Hi I had a protect sex with a women but I had given her oral sex after 28 days I took antibodies serum test came out negitive post 28 days I started developing anxiety so I feel developing symptoms of nausea and fatigue and difficulty in swallowing and last night a rash came up out of no where can it
Hi I had a protect sex with a women but I had given her oral sex after 28 days I took antibodies serum test came out negitive post 28 days I started developing anxiety so I feel developing symptoms of nausea and fatigue and difficulty in swallowing and last night a rash came up out of no where can it
Rdhjnmmm
in
HIV Partners
2 years ago
Understanding mechanisms of resistance to Pirtobrutinib in Chronic Lymphocytic Leukaemia
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
CLLerinOz
Administrator
in
CLL Support
2 years ago
Transfer two days ago
I have ET done this Friday. Three day embryo C8G1 was transfered. I am on minimal therapy . No progesteron shots only Utrogestan vaginal capsules. Is there anyone to make me company during this two week waiting? Beta hcg is scheduled on 11.03.2022. Share any experience you have with me. It will be easier
I have ET done this Friday. Three day embryo C8G1 was transfered. I am on minimal therapy . No progesteron shots only Utrogestan vaginal capsules. Is there anyone to make me company during this two week waiting? Beta hcg is scheduled on 11.03.2022. Share any experience you have with me. It will be easier
Anemona87
in
Fertility, Miscarriage & IVF Support
2 years ago
Shingles is urgent!
After a post about Shingles, it is worth pointing out that if you think you have Shingles, contact GP immediately or emergency 'phone number if out of hours as the antivirals have to be prescribed as soon as possible to help. I had Shingles a couple of years ago while on Pred (no Actemra or anything
After a post about Shingles, it is worth pointing out that if you think you have Shingles, contact GP immediately or emergency 'phone number if out of hours as the antivirals have to be prescribed as soon as possible to help. I had Shingles a couple of years ago while on Pred (no Actemra or anything
Roltuba
in
PMRGCAuk
2 years ago
8th ET - what to try now ?
Hello dear ladies :) I need some advice in my ivf journey. I had to go through 6 fresh cycle and had 8 ET before i got my first BFP with my first child. It was a fresh cycle. I was 33 year old when i got pregnant. Back in 2017. I did the greek test and took the Ab before the 8th ET. Did also hcg trigger
Hello dear ladies :) I need some advice in my ivf journey. I had to go through 6 fresh cycle and had 8 ET before i got my first BFP with my first child. It was a fresh cycle. I was 33 year old when i got pregnant. Back in 2017. I did the greek test and took the Ab before the 8th ET. Did also hcg trigger
Mia83
in
Fertility Network UK
2 years ago
Sensitive - how do HCG tests work
Hello - I had my first bfp in over a year of trying (incl two pretty disastrous rounds of ivf) on Monday, and asked my ivf clinic if I could get a scan next week to make sure it’s progressing ok (previous history of things not going entirely to plan). They asked if I wanted to come in for a blood test
Hello - I had my first bfp in over a year of trying (incl two pretty disastrous rounds of ivf) on Monday, and asked my ivf clinic if I could get a scan next week to make sure it’s progressing ok (previous history of things not going entirely to plan). They asked if I wanted to come in for a blood test
99pctpractice
in
Fertility Network UK
2 years ago
One yolk sac, two fetuses. Help please. Anyone has experienced this before?
Hi all, I had my first 5 day frozen embryo transfer on 28/1. Hcg has been sky high and my pregnancy symptoms have been wild. And as expected I’m having twins. But unfortunately there is only one yolk sac seen on the scan at 6/40+2. They are concerned it could be MCMA (best case scenario MCDA twins) both
Hi all, I had my first 5 day frozen embryo transfer on 28/1. Hcg has been sky high and my pregnancy symptoms have been wild. And as expected I’m having twins. But unfortunately there is only one yolk sac seen on the scan at 6/40+2. They are concerned it could be MCMA (best case scenario MCDA twins) both
BabyCalin
in
Fertility Network UK
2 years ago
Shingles vaccine for cll patients
I'm a high-risk cll thriver on ibrutinib for 6 years with no ill effects and great blood counts. To encourage you, I will add I survived severe covid after a month hospital and 1 week ICU stay. Thanking God. Now I have shingles. I was told not to have a shingles vaccine as it was "live" and could give
I'm a high-risk cll thriver on ibrutinib for 6 years with no ill effects and great blood counts. To encourage you, I will add I survived severe covid after a month hospital and 1 week ICU stay. Thanking God. Now I have shingles. I was told not to have a shingles vaccine as it was "live" and could give
Splashes
in
CLL Support
2 years ago
10dp5dt minimal symptoms - hcg <1 (tested 8dp5dt) - is this normal!? Help pls
Hi lovlies, I need your help like a blind one seeks for eyes ☹️. This is my first FET and I am 10dp5dt with minimal symptoms like cramps on and off, no bleeding, watery discharge often, at times sore boobs and more then often visiting the bathroom. Due to my high thyroid I am Levothyroxine 50mg per
Hi lovlies, I need your help like a blind one seeks for eyes ☹️. This is my first FET and I am 10dp5dt with minimal symptoms like cramps on and off, no bleeding, watery discharge often, at times sore boobs and more then often visiting the bathroom. Due to my high thyroid I am Levothyroxine 50mg per
ValaI
in
Fertility Network UK
2 years ago
*** Sensitive *** - Rollercoaster update!
Some of you know of my bumpy start into this pregnancy and I wanted to send an update. I was worried with my hcg levels not growing well at all and lack of breast pain. We had a scan today at 7+1 and the baby measures 9mm and has a normal heartbeat. Appartently is 2 days behind but we are taking it
Some of you know of my bumpy start into this pregnancy and I wanted to send an update. I was worried with my hcg levels not growing well at all and lack of breast pain. We had a scan today at 7+1 and the baby measures 9mm and has a normal heartbeat. Appartently is 2 days behind but we are taking it
FrancyItaly
in
Fertility Network UK
2 years ago
Leukemia & Lymphoma Society (USA) provides a LLS Clinical Trial Nurse Navigator to assist you throughout the entire clinical trial process
CLINICAL TRIAL SUPPORT CENTER (CTSC)
https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma
CLINICAL TRIAL SUPPORT CENTER (CTSC)
https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma
lankisterguy
Volunteer
in
CLL Support
2 years ago
Ibrutinib Resistance
Hello Everyone, I have been a long time reader of this forum and it has been extremely helpful. My mother (73 yrs old) was diagnosed with CLL about 8 years ago. She went through several treatments: Chlorambucil for 3 yrs, then Bendamustine/Rituximab (6 cycles) with remission for 1.5 yrs. Afterwards,
Hello Everyone, I have been a long time reader of this forum and it has been extremely helpful. My mother (73 yrs old) was diagnosed with CLL about 8 years ago. She went through several treatments: Chlorambucil for 3 yrs, then Bendamustine/Rituximab (6 cycles) with remission for 1.5 yrs. Afterwards,
Adel1
in
CLL Support
2 years ago
Possible Trigger - Scan Nightmare
Hi all, So had a surprise pregnancy after Xmas... currently meant to be 8 weeks. All started off great HCG on last check was over 66K. First scan at 5 weeks 6 days showed CRL, sac and flickering heartbeat. Then at 7 weeks had to get 2 opinions on scans. First clinic advised I was measuring behind
Hi all, So had a surprise pregnancy after Xmas... currently meant to be 8 weeks. All started off great HCG on last check was over 66K. First scan at 5 weeks 6 days showed CRL, sac and flickering heartbeat. Then at 7 weeks had to get 2 opinions on scans. First clinic advised I was measuring behind
letro112
in
Fertility Network UK
2 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
2 years ago
BTK inhibitor challenges by Dr. Nicole Lamanna
Nicole Lamanna, MD, continues her discussion on BTK inhibitor challenges. https://www.onclive.com/view/challenges-continued - This video is intended for Medical Professionals, using Med-Speak at a rapid pace, so I have pasted the transcript below. - Nicole Lamanna, MD: With the advent of the BTK [Bruton
Nicole Lamanna, MD, continues her discussion on BTK inhibitor challenges. https://www.onclive.com/view/challenges-continued - This video is intended for Medical Professionals, using Med-Speak at a rapid pace, so I have pasted the transcript below. - Nicole Lamanna, MD: With the advent of the BTK [Bruton
lankisterguy
Volunteer
in
CLL Support
2 years ago
At a Dialysis Crossroads
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
MP11
in
Kidney Dialysis
2 years ago
HCG rollercoaster/scans. Do you always see a heartbeat at 6w 2d?
Hi ladies, I had a very intense week with lots of blood tests and a couple of scans. At the scan on Thursday (exactly 6 weeks) they could only see a gestational sac and a yolk sac, no embryo. Hcg raising time was terrible on this day and the doctor was not very positive. I also had some cramps and light
Hi ladies, I had a very intense week with lots of blood tests and a couple of scans. At the scan on Thursday (exactly 6 weeks) they could only see a gestational sac and a yolk sac, no embryo. Hcg raising time was terrible on this day and the doctor was not very positive. I also had some cramps and light
FrancyItaly
in
Fertility Network UK
2 years ago
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