Immune System: Since September last year I keep... - Thyroid UK

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Immune System

willsie01 profile image
23 Replies

Since September last year I keep coming down with really heavy coughs and colds that lay me low for up to a couple of weeks at a time. I was In the middle of a bout on the 10th February and I was prescribed antibiotics for it. Now, just over a month later I've come down with it again, but this time I've developed shingles as well, for which I've been prescribed medication, acyclovir. I am in my 70's and have an under-active thyroid. I'm expecting my immune system is not what it was due to age and maybe I'm missing something in my diet. Is this familiar to anyone?

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willsie01
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SlowDragon profile image
SlowDragonAdministrator

Looking at other posts of yours

Are you vegetarian or vegan

What vitamin supplements are you currently taking

How much levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

What are your most recent thyroid and vitamin results

Have you had thyroid antibodies tested

Always test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Strongly recommend getting full thyroid and vitamin testing done

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease). Ord’s is autoimmune without goitre.

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s.

If you have autoimmune thyroid disease……Gluten intolerance is often a hidden issue too. Request coeliac blood test BEFORE considering trial on strictly gluten free diet

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

willsie01 profile image
willsie01 in reply toSlowDragon

I know it's taken me a while to reply. Family issues to attend to.

I am vegan and the vitamins I take are a multi vitamin, vitamin D & B12 complex. All Better You products.

I'm currently on 100 ug

I have a note with the pharmacist not to give me the brands that have been highlighted on this forum as an issue but I've never checked if I get the same brand always. They come in a dosset box, so no packaging.

Most recent thyroid and vitamin results:

I don't believe I have done the test early morning or 24 hrs after last levo dose. I'll do this in future.

"Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine" This could get expensive!

"Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test" The important tests you mention are all covered by Medicheck cheaper then the Blue Horizon Premium Gold. Is there a reason you highlight them?

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Majority of people seem to choose Medichecks as cheaper, if wanting to test vitamins and thyroid

But if suspect cortisol issues B H includes cortisol

Cheapest for TSH, Ft4 and Ft3 is Monitor My Health at £26.10

Most members who test privately use Medichecks, BH or Thriva once year for thyroid and vitamins

Then use Monitor My Health after any dose change or brand change in levothyroxine

Extremely difficult as vegan to maintain optimal vitamin levels when hypothyroid

A full iron panel test for anaemia likely necessary too

Multivitamins are never recommended on here.

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Improving nutrients improves conversion

healthunlocked.com/thyroidu...

Come back with new post once you get full results

willsie01 profile image
willsie01 in reply toSlowDragon

I attached an image of my old results in previous post but they've disappeared. I'll try again.

Image
SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

High thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s

Have you had coeliac blood test done, if not request GP does so ….assuming you are not already on strictly gluten free diet

No vitamin results

What time was test

Cortisol on low side if test was early morning

Was test done early morning, ideally before 9am and last dose levothyroxine 24 hours before test

FT4: 18.8 pmol/l (Range 12 - 22)

Ft4 68.00% through range

FT3: 4.14 pmol/l (Range 3.1 - 6.8)

Ft3 only 28.11% through range

Helpful calculator for working out percentage through range

thyroid.dopiaza.org

First step is to test all four vitamins.

Supplement to optimal levels

Retest thyroid levels 2-4 months time

Testing as recommended

If Ft4 is below 70% possibly have room for dose increase in levothyroxine

If Ft3 remains below 50% when Ft4 at least 80% then going to need 2 or 3 small doses of T3 prescribed alongside levothyroxine

To get T3 on NHS is difficult but not impossible

Can only be initiated by NHS endocrinologist

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors

tukadmin@thyroiduk.org

As vegan you are likely low in iron/ferritin

Vitamins must be OPTIMAL before considering adding T3

Vitamin D at least around 80nmol and around 100nmol maybe better

Serum B12 at least over 500

Active B12 at least over 70

Folate and ferritin at least half way through range

willsie01 profile image
willsie01 in reply toSlowDragon

I'm not qualified to take all this in but I'll follow up your info. The Blue Horizon doctor's comments didn't highlight the issues you have. He or she said:

"The thyroid function is currently normal. The positive thyroid antibody result, however, increases the possibility of your having or ultimately developing autoimmune thyroid disease, such as Hashimoto's thyroiditis or Grave's disease."

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Which is ridiculous….because you are already on levothyroxine

So you’re hypothyroid

Most people when adequately treated will have Ft3 at least 50% through range

With autoimmune thyroid disease (hashimoto’s) we frequently have poor conversion of Ft4 (levothyroxine) to Ft3 (active hormone)

Low Ft3 tends to result in lower vitamin levels

Low vitamin levels tend to result in worse conversion

Many people on just levothyroxine have high Ft4 and low Ft3

Short simple film explaining

drbradshook.com/understandi...

Low Ft3 also linked to high cholesterol

nhs.uk/conditions/statins/c...

If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.

radd profile image
radd

willsie01,

Do you have Hashi?

Is your Levo an optimal dose? We also need adequate levels of iron & nutrients to make thyroid meds work effectively, and keep us well.

Post any test results complete with ranges (numbers in brackets) for members to comment.

willsie01 profile image
willsie01 in reply toradd

I assume the levo is optimal according to my GP, otherwise I'd expect him to change it as he did when I was first diagnosed.

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Very unlikely

A) NHS usually only test TSH and essential to test thyroid levels as recommended.

Test early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Ideally always same brand levothyroxine at each prescription

B) NHS almost never test Ft3 so don’t know how good or bad active thyroid hormone is

C) for good conversion of Ft4 to Ft3 we need optimal vitamin levels and they don’t test

With Hashimoto’s very common to need to be on strictly gluten free diet

All thyroid patients should avoid soya

willsie01 profile image
willsie01 in reply toSlowDragon

Am I entitled to get the same brand of levo all the time? NHS are (rightly) supposed to get competetive prices.

If I have to follow a gluten free diet and avoid soya (as a vegan) I'm beginning to think the ill effects of my thyroid issues are the lesser evil!

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Yes….all levothyroxine is the same price ..regardless of brand (about £1 per box)

gov.uk/drug-safety-update/l...If a patient reports persistent symptoms when switching between different levothyroxine tablet formulations, consider consistently prescribing a specific product known to be well tolerated by the patient. If symptoms or poor control of thyroid function persist (despite adhering to a specific product), consider prescribing levothyroxine in an oral solution formulation.

Many patients have note added to all future prescriptions

Either specifying a particular brand….or often they have note saying “No Teva levothyroxine “ as it upsets many people

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

You might find this article interesting

thyroidpharmacist.com/artic...

willsie01 profile image
willsie01 in reply toSlowDragon

I read the info via the link. I've read many similar positions which highlight shortcomings in a vegan diet and many that contain rebuttals and counter arguments. Have you seen the film Forks Over Knives? With the particular one you've linked I was very surprised that someone appears to be advising adding red meat to one's diet. I'm making notes of all the info in this thread to see where to go from here!

One last thing. I would appreciate it if anyone using someone off the Thyroid U.K.list of recommended thyroid specialist endocrinologist and doctors, that they are happy with and think they are good value, please send me a private message with their details. I understand this info can't be shared in the open forum.

One more last thing! I am not vegan because of an ethical position. I understand many if not all of our antecedents evolved as meat eaters. I have never enjoyed eating meat so that wasn't a decision. In fact it's awful just thinking of it for me. I dropped dairy after the information I was given while in cardiac rehab. Of course it didn't come up at the time that I had hypothyroidism, which may have changed their advice. This was reinforced by watching the film Forks Over Knives.

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

For good conversion of Ft4 to ft3 we need optimal vitamin levels….especially ferritin

Looking at previous posts you say your ferritin is low

Suggest you get full iron panel test done see exactly what iron and ferritin levels are

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Medichecks iron panel test

medichecks.com/products/iro...

cks.nice.org.uk/topics/anae...

In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Good explanations of iron

theironclinic.com/iron-defi...

theironclinic.com/ironc/wp/...

radd profile image
radd in reply towillsie01

willsie01,

Optimal is the level that alleviates us of symptoms. Doctors invariably dose Levo by the TSH level regardless of where FT4 levels lie. Many members feel better with FT4 in upper part of range and TSH around 1 or below.

The results you have recently added show FT4 to be 68% through range but FT3 at just 28.38%. Many would need a higher FT3 to achieve well-being.

A tiny bit of T3 is made within the body but most is converted from T4. Keeping iron & nutrients at good levels will help with T4-T3 conversion and also supplementing selenium. If FT3 still refused to raise there is room to increase Levo dose but if the reason for your low T3 levels is poor conversion abilities commonly seen on the forum, then the only solution would be to medicate a little bit of T3. Unfortunately at this stage it generally becomes outside of a GP’s scope and why members are then forced to seek private help.

If this were me I would firstly concentrate on iron, nutrients, supplementing selenium (which also reduces thyroid antibodies that may contribute to hindering conversion) and staying strictly g/f. You also might find a thyroid glandular helps, and then retest in say 3 months to view any labs improvements.

willsie01 profile image
willsie01 in reply toradd

I'm surprised that the Blue Horizon doctor didn't raise the issue of low FT3 in the comments, which I posted above, in reply to Slow Dragon, if it's a problem.

radd profile image
radd in reply towillsie01

willsie01,

That’s because they may also be using the TSH as a measure for adequate thyroid hormone levels regardless of where they lie.

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Doctors comments are generally pretty useless from BH or Medichecks

They are not thyroid specialists

We always recommend not ticking the box ….

willsie01 profile image
willsie01 in reply toSlowDragon

So what does the forum think of Country Health functional medicine approach?

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Any replies about specific doctors must be by private messages only please

SlowDragon profile image
SlowDragonAdministrator in reply towillsie01

Come back on main forum with full thyroid and vitamin test results

Likely to need to improve low ferritin as first step

Never book any private consultation without getting full thyroid and vitamin testing done before hand

If vitamins are low (and it’s very likely ferritin is low on vegan diet) first step is to get all four vitamins optimal

Retesting thyroid and vitamins again to check optimal after 2-4 months

Meanwhile suggest you read the many posts and replies by humanbean on how and why good iron and ferritin as so important

Mostew profile image
Mostew

When taking antibiotics it’s a good idea to replace good bacteria that gets killed of along with the bad by taking probiotics . There is one you can take with antibiotics then another after.

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