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Chorionic villus sampling (CVS)
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Pneumonia With ET
Hi all, hope you are all doing well. Last week I had the most horrendous chest pains, but didn't feel cardiac related so I ignored it, then this Monday, I was finding it hard to breath, I phoned 111 and they booked me in to A&E. They did some X-Rays & tests and said I had Pneumonia. They gave me IV
Hi all, hope you are all doing well. Last week I had the most horrendous chest pains, but didn't feel cardiac related so I ignored it, then this Monday, I was finding it hard to breath, I phoned 111 and they booked me in to A&E. They did some X-Rays & tests and said I had Pneumonia. They gave me IV
Raphael_UK
in
MPN Voice
2 years ago
Roof insulation quandry
This is indirectly a concern for those of us with breathing issues , plus your future option for equity release if you own your home. And can inpact on the value of your home. People were told that foam insulation in the loft was the bees knees , it was backed by the government and now it comes to light
This is indirectly a concern for those of us with breathing issues , plus your future option for equity release if you own your home. And can inpact on the value of your home. People were told that foam insulation in the loft was the bees knees , it was backed by the government and now it comes to light
katieoxo60
in
Lung Conditions Community Forum
2 years ago
Faint line on pregnancy test?!
Please help! I’ve been feeling extremely nauseous for about 4 days now, it’s at its worst in the morning and comes and goes throughout the day, the smell of any meat being cooked is seriously disgusting me and making me gag but i haven’t thrown up. I should be having my period in a couple days, usually
Please help! I’ve been feeling extremely nauseous for about 4 days now, it’s at its worst in the morning and comes and goes throughout the day, the smell of any meat being cooked is seriously disgusting me and making me gag but i haven’t thrown up. I should be having my period in a couple days, usually
beebop5
in
Fertility Network UK
2 years ago
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Night sweat relief?
I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for this and also wonder if it means my condition is advancing quickly. I have an appt with the hematologist/ oncologist in May. He said I am on a watch
I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for this and also wonder if it means my condition is advancing quickly. I have an appt with the hematologist/ oncologist in May. He said I am on a watch
9RGBZ
in
CLL Support
2 years ago
Slow beta hcg and low progesterone. Worried🥺
Dear ladies, I need your help, thoughts…opinion. So grateful in advance. I’m trying to understand what happens. I had FET with donor eggs. Beta is low. I’m worried because dr from Greece told me to stop Progesterone injections, and to stay with pessaries (3x1) and other therapy. I just don’t understand
Dear ladies, I need your help, thoughts…opinion. So grateful in advance. I’m trying to understand what happens. I had FET with donor eggs. Beta is low. I’m worried because dr from Greece told me to stop Progesterone injections, and to stay with pessaries (3x1) and other therapy. I just don’t understand
Pigi
in
Fertility Network UK
2 years ago
Working with CLL!
Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your stories. I received all my test results, genetic/bloods etc and confirmation of CLL back in Dec 2021. I'm on the Watch and Wait journey! I work
Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your stories. I received all my test results, genetic/bloods etc and confirmation of CLL back in Dec 2021. I'm on the Watch and Wait journey! I work
MDcard
in
CLL Support
2 years ago
Chronic Fatigue Syndrome
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
does-the-NHS-work
in
Fibromyalgia Action UK
2 years ago
What does curing CLL mean?
This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it, correct? The existing treatments and treatments on the horizon won't necessarily eliminate CLL altogether or the associated risks of secondary cancers
This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it, correct? The existing treatments and treatments on the horizon won't necessarily eliminate CLL altogether or the associated risks of secondary cancers
CoCoLuna11
in
CLL Support
2 years ago
"Sailing with CLL" - a sense of humor may help....
"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a port?" I do not. But at this moment I smile and I am tempted to say: "Yes, my port is Santo Domingo!" and I sense a bit euphoria: When I retired
"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a port?" I do not. But at this moment I smile and I am tempted to say: "Yes, my port is Santo Domingo!" and I sense a bit euphoria: When I retired
janvog
in
CLL Support
2 years ago
Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Luv2Craft
in
CLL Support
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
PMR after Flu Vaccination
I'm new here, just joining this week, I'm 70 years old. I developed PMR in 2020 after my first FLU vaccination in 44 years, I had the Swine FLU vaccination in 1976 which also made me very sick. Has anyone else experienced this? In 1976 very few virus strains, in 2020 multiple virus strains in the vaccination
I'm new here, just joining this week, I'm 70 years old. I developed PMR in 2020 after my first FLU vaccination in 44 years, I had the Swine FLU vaccination in 1976 which also made me very sick. Has anyone else experienced this? In 1976 very few virus strains, in 2020 multiple virus strains in the vaccination
Me_2
in
PMRGCAuk
2 years ago
Anyone else just utterly sick of failing month after month?
Firstly, I want to say I know I'm lucky to be able to actually try to conceive naturally at all each month. That's huge, and I know others don't have this option. I'm just so tired and down today, after AF arrived yet again. Not sure why this time is more disappointing than usual... Maybe it was because
Firstly, I want to say I know I'm lucky to be able to actually try to conceive naturally at all each month. That's huge, and I know others don't have this option. I'm just so tired and down today, after AF arrived yet again. Not sure why this time is more disappointing than usual... Maybe it was because
AuroraXen
in
Fertility Network UK
2 years ago
I Have Just Completed My 12 Month CLL Treatment Plan
About 13 months ago, my dentist commented on swollen lymph nodes along my neck and that suggested I have my primary care physician look at them next time I saw her. I did. She referred me to UT Health/MD Anderson, which confirmed that I have CLL. I was placed on Obinutuzumab/Venclexta therapy for
About 13 months ago, my dentist commented on swollen lymph nodes along my neck and that suggested I have my primary care physician look at them next time I saw her. I did. She referred me to UT Health/MD Anderson, which confirmed that I have CLL. I was placed on Obinutuzumab/Venclexta therapy for
DanBro1
in
CLL Support
2 years ago
Shingles vaccine
Is it ok to get a shingles vaccine whilst getting an injection of Nacula and on 2 Mg of pred
Is it ok to get a shingles vaccine whilst getting an injection of Nacula and on 2 Mg of pred
Jimsq
in
Asthma Community Forum
2 years ago
Understanding mechanisms of resistance to Pirtobrutinib in Chronic Lymphocytic Leukaemia
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Transfer two days ago
I have ET done this Friday. Three day embryo C8G1 was transfered. I am on minimal therapy . No progesteron shots only Utrogestan vaginal capsules. Is there anyone to make me company during this two week waiting? Beta hcg is scheduled on 11.03.2022. Share any experience you have with me. It will be easier
I have ET done this Friday. Three day embryo C8G1 was transfered. I am on minimal therapy . No progesteron shots only Utrogestan vaginal capsules. Is there anyone to make me company during this two week waiting? Beta hcg is scheduled on 11.03.2022. Share any experience you have with me. It will be easier
Anemona87
in
Fertility, Miscarriage & IVF Support
2 years ago
Toleration of colds
Hello all my wonderful friends. It's been awhile. Went to visit my mom and thankfully I did when I did because she busted her ear drum while I was there and that was horrific!!! But much better. My question for you today is, While I was gone my son got a bit of congestion. Which my husband got. When
Hello all my wonderful friends. It's been awhile. Went to visit my mom and thankfully I did when I did because she busted her ear drum while I was there and that was horrific!!! But much better. My question for you today is, While I was gone my son got a bit of congestion. Which my husband got. When
AriSmyelin
in
My MSAA Community
2 years ago
Hiv rash and symptoms
Hi I had a protect sex with a women but I had given her oral sex after 28 days I took antibodies serum test came out negitive post 28 days I started developing anxiety so I feel developing symptoms of nausea and fatigue and difficulty in swallowing and last night a rash came up out of no where can it
Hi I had a protect sex with a women but I had given her oral sex after 28 days I took antibodies serum test came out negitive post 28 days I started developing anxiety so I feel developing symptoms of nausea and fatigue and difficulty in swallowing and last night a rash came up out of no where can it
Rdhjnmmm
in
HIV Partners
2 years ago
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