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Increase in WBC
I was diagnosed with CLL in 2010 and have been on Watch & Wait since. My WBC has regularly been 30+. I also have rheumatoid and osteoarthritis and in 2017/18 had 3 courses of Rituximab which put my CLL in remission. Blood test July 2017 WBC 9,3 . LY 63,9 and PLT 141. November 2019 WBC 16,0. Ly 71,5
I was diagnosed with CLL in 2010 and have been on Watch & Wait since. My WBC has regularly been 30+. I also have rheumatoid and osteoarthritis and in 2017/18 had 3 courses of Rituximab which put my CLL in remission. Blood test July 2017 WBC 9,3 . LY 63,9 and PLT 141. November 2019 WBC 16,0. Ly 71,5
tyke3poppy4
in
CLL Support
4 years ago
Hi I’m new here.
Treatment with Bendamustine and rituximab for follicular lymphoma stage 4. Very fatigued! Anyone else?
Treatment with Bendamustine and rituximab for follicular lymphoma stage 4. Very fatigued! Anyone else?
Sinsusie
in
Lymphoma Canada
4 years ago
Tp53 (17p13.2)
How effective is Ibrutinib with Rituximab (6 rounds) for a Tp53 deletion.
How effective is Ibrutinib with Rituximab (6 rounds) for a Tp53 deletion.
ANA4
in
CLL Support
4 years ago
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Rituximab
Having tried a number of meds my Rheumy has recommended I try Rituximab. I’m miserable on the current treatment but I was really put off Rituximab when he said there was a very rare risk of death! I know there are always risks but no-one has ever said that to me before. I’ve put it on hold for the
Having tried a number of meds my Rheumy has recommended I try Rituximab. I’m miserable on the current treatment but I was really put off Rituximab when he said there was a very rare risk of death! I know there are always risks but no-one has ever said that to me before. I’ve put it on hold for the
Bizzie
in
NRAS
4 years ago
Younger, Fit Patients With CLL: Goal Remains Undetectable Minimal Residual Disease and Time-Limited Therapy
This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing ibrutinib/rituximab, followed by ibrutinib to disease progression vs 6 months of FCR among patients withCLL younger than age 70. [i]"Although the study was not stratified by IgHV mutation status, the results
This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing ibrutinib/rituximab, followed by ibrutinib to disease progression vs 6 months of FCR among patients withCLL younger than age 70. [i]"Although the study was not stratified by IgHV mutation status, the results
Jm954
Administrator
in
CLL Support
4 years ago
Time-to-progression after front-line FCR for CLL: a retrospective, multicohort study
It has been known for some time that FCR can produce very long remissions (perhaps cures) for some patients with mutated CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760129/ This study looks at unmutated patients and could be an important study for CLL patients or, on the other hand, completely
It has been known for some time that FCR can produce very long remissions (perhaps cures) for some patients with mutated CLL. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760129/ This study looks at unmutated patients and could be an important study for CLL patients or, on the other hand, completely
Jm954
Administrator
in
CLL Support
4 years ago
Rituximab
Hi all, starting Rituximab infusion in the next couple of weeks, just wondering if there’s any advice, and how long it takes to kick, I have read the leaflets I’ve be given, but would rather know from someone that’s actually using it, I’m feeling a bit nervous,thanks again
Hi all, starting Rituximab infusion in the next couple of weeks, just wondering if there’s any advice, and how long it takes to kick, I have read the leaflets I’ve be given, but would rather know from someone that’s actually using it, I’m feeling a bit nervous,thanks again
summerfruits
in
NRAS
4 years ago
Has anyone been increased on Azathioprine? Did it help?
Hi all, i have been on Azathioprine 100mg for about a year now and I have been told that it doesn’t seem to be suppressing my neutrophil count. They have been hesitant to increase me as they said my weight 100mg is good for (i weigh 70kg due to high steroids but lets say im usually 60-65kg marker) but
Hi all, i have been on Azathioprine 100mg for about a year now and I have been told that it doesn’t seem to be suppressing my neutrophil count. They have been hesitant to increase me as they said my weight 100mg is good for (i weigh 70kg due to high steroids but lets say im usually 60-65kg marker) but
Sandy1212
in
LUPUS UK
4 years ago
Painful hands
I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having
I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having
littlemissp
in
LUPUS UK
4 years ago
What’s causing my symptoms? Pred? Flare? Or something else?
I apologise in advance for the length of this post but i feel like i need to explain everything to make sure the right information is share to get an answer. So, I was diagnosed with lupus in dec 2018 and i had lost a significant amount of weight. About 55kg i was put on 55mg prednisolone. I struggled
I apologise in advance for the length of this post but i feel like i need to explain everything to make sure the right information is share to get an answer. So, I was diagnosed with lupus in dec 2018 and i had lost a significant amount of weight. About 55kg i was put on 55mg prednisolone. I struggled
Sandy1212
in
LUPUS UK
4 years ago
Swollen glands/dizziness four days after Rituximab?
I have just completed my first series of Rituximab for SLE. I had an allergic reaction during the first infusion but was ok after hydrocortisone and with a slower drip. My second infusion was four days ago and it seemed to go ok but today I’m feeling not great - I feel like the glands in my throat
I have just completed my first series of Rituximab for SLE. I had an allergic reaction during the first infusion but was ok after hydrocortisone and with a slower drip. My second infusion was four days ago and it seemed to go ok but today I’m feeling not great - I feel like the glands in my throat
ShannonB
in
LUPUS UK
4 years ago
Rituximab
Has anyone gone back to normal? working? whilst being on Rituximab. Are people still Self isolating ?
Has anyone gone back to normal? working? whilst being on Rituximab. Are people still Self isolating ?
2210
in
NRAS
4 years ago
Sweet Syndrome in Eosinophilic Granulomatosis with Polyangiitis.
Neutrophilic dermatoses, including Sweet's syndrome, have previously been recognized in antineutrophil cytoplasmic antibodies (ANCA)-associated vasculitis. Eosinophilic granulomatosis with polyangiitis (EGPA) is an ANCA-associated vasculitis. Vasculitis is inflammation of the blood vessels. SEE COMMENTS
Neutrophilic dermatoses, including Sweet's syndrome, have previously been recognized in antineutrophil cytoplasmic antibodies (ANCA)-associated vasculitis. Eosinophilic granulomatosis with polyangiitis (EGPA) is an ANCA-associated vasculitis. Vasculitis is inflammation of the blood vessels. SEE COMMENTS
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
ITP SPLENECTOMY vs
Hi I live in Western Australia & have had ITP for about 8 yrs. My platelets have gradually been dropping & currently sit around 5 or under (1 this week). I am under a lot of pressure to have my spleen removed from my specialist. In Australia I am unable to access any of the ITP drugs such as Promacta
Hi I live in Western Australia & have had ITP for about 8 yrs. My platelets have gradually been dropping & currently sit around 5 or under (1 this week). I am under a lot of pressure to have my spleen removed from my specialist. In Australia I am unable to access any of the ITP drugs such as Promacta
Jesse150
in
ITP Support Association
4 years ago
CLL/SLL Roundtable: Updates on Patient Management (including low dose radiation treatment for early stage SLL)
Joshua Brody, MD, Richard Bakst, MD, and Amir Steinberg, MD, of the Icahn School of Medicine at Mount Sinai, New York City, discuss updates on the management of patients with small lymphocytic lymphoma (SLL) and chronic lymphocytic leukemia (CLL). The conversation includes discussion on radiation therapy
Joshua Brody, MD, Richard Bakst, MD, and Amir Steinberg, MD, of the Icahn School of Medicine at Mount Sinai, New York City, discuss updates on the management of patients with small lymphocytic lymphoma (SLL) and chronic lymphocytic leukemia (CLL). The conversation includes discussion on radiation therapy
AussieNeil
Partner
in
CLL Support
4 years ago
Bendamustine with rituximab
my husband was diagnosed with CLL and will be starting on the above agents over the next 6 months. Anyone has experienced the same treatment before?
my husband was diagnosed with CLL and will be starting on the above agents over the next 6 months. Anyone has experienced the same treatment before?
gohmei
in
CLL Support
4 years ago
Duvelisib + FCR (DFCR) frontline therapy for younger CLL patients - study results (Aug. 2020)
"In summary, our phase 1b/2 study identified a recommended phase 2 dose of duvelisib 25 mg bid when given in combination with FCR in younger CLL patients receiving frontline therapy. We observed deep responses, including achievement of BM-uMRD in about two-thirds of patients,irrespective of IGHV mutation
"In summary, our phase 1b/2 study identified a recommended phase 2 dose of duvelisib 25 mg bid when given in combination with FCR in younger CLL patients receiving frontline therapy. We observed deep responses, including achievement of BM-uMRD in about two-thirds of patients,irrespective of IGHV mutation
avzuclav
in
CLL Support
4 years ago
Spleen removal
My daughter 28 was terrified to have her spleen removed and went through hell in for 1 yr. blood work was checked every week, besides the prednisone in basic treatment 4 rounds of rituximab was given(by the way if 1 round doesn't work don't let them prescribe more) platlet count only when up when
My daughter 28 was terrified to have her spleen removed and went through hell in for 1 yr. blood work was checked every week, besides the prednisone in basic treatment 4 rounds of rituximab was given(by the way if 1 round doesn't work don't let them prescribe more) platlet count only when up when
Espomom
in
ITP Support Association
4 years ago
Schematic for CLL treatment?
Is there a decision chart or list of questions somewhere on this forum for how docs make their decisions?(am not talking the nhs system who seem to just offer you fcr to start with as a default regardless as far as I can make out - more like a doc who had all options open). Thanks very much.
Is there a decision chart or list of questions somewhere on this forum for how docs make their decisions?(am not talking the nhs system who seem to just offer you fcr to start with as a default regardless as far as I can make out - more like a doc who had all options open). Thanks very much.
Research123
in
CLL Support
4 years ago
Final treatment free day
I have one last day before starting FCR. The to do list includes a coastal bike ride, a conquer of a hill and the making of a large Sherry trifle plus a full English.* How did you spend that last ‘normal’ day? *Plans subject to change 😊😊(slight 😥 eek)
I have one last day before starting FCR. The to do list includes a coastal bike ride, a conquer of a hill and the making of a large Sherry trifle plus a full English.* How did you spend that last ‘normal’ day? *Plans subject to change 😊😊(slight 😥 eek)
HarryMet
in
CLL Support
4 years ago
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