Experiences with

Cetuximab

Hi folks, It's vaccine time again. Arrangements for Covid vaccines for immunosuppressed people vary around the UK. In Scotland we have generally been advised to wait to be contacted, when we will be sent an appointment or invitation to book. But in Spring 2025 Scottish immunosuppressed people are able

hi, can someone please remind me how long should I leave my spring Covid booster before or after Rituximab infusion I have just been invited but I am hoping for my infusion the middle of April Thank you 😉

I am currently on second line treatment. I have been on venetoclax since Dec. 2023 and did six months of rituximab injections, finishing those in June, 2024. I continue to take venetoclax and will finish the two year protocol Dec. 2025. I have always had normal, or optimal blood pressure. 120/70

Hi, I have had leukaemia and a bone marrow transplant 18 months ago, but developed hemolytic anemia. I have been on steroids, rituximab and mycophenolate at various times. However, when my doses are reduced, the hemolysis comes back quickly. Has anyone any good experiences of a different medication

My grandson has just had his 12 month jabs (four in total), some of which are live vaccines. I just wondered, as we’re almost all immunosuppressed, if any of you have avoided kids who have had the same? And if so for how long? He’s feeling off side bless him and I’m sure he’d like a cuddle from his nanna

I’ve been on Avatrombopag for over 3 years. I’m currently on the highest dose but it looks like I’ve lost response to it (platelet count 30) so now the talk is which immunosuppressant to put me on. Rituximab has been suggested but the consent/info sheet they gave has freaked me out. The increased risk

in 2022, I was diagnosed with vasculitis, MPA. Two years of prednisone followed, along with 8 infusions of Rituximab. As I was finishing up and going into remission, my dental x-rays showed numerous new cavities, necessitating much dental work. I hesitate to blame the drugs I needed to take care of

OMG dears, it is 2:30 am and my mind won’t shut off and my eyes won’t close. I saw my rheumy on March 14 where she increased my prednisone to 15 mg a day for two weeks, then to 12.5 for two weeks then 10mg for two weeks then finally back to my replacement dose for Addison’s at 7.5mg. She is also working

Hi all hope everybody is ok. I had me last infusion nearly 4 months ago but have been on Rituximab nearly 4 years. But itchy skin blimey it’s driving me mad. Had my bloods done last 4 months ago all was good as they always are. I have had some E45 anti itch on prescription, it eases it a bit but doesent

hi rheumatologist recommended rituximab infusion to help reduce symptoms (painful joints, grottons papules, breathlessness, fatigue), but mentioned there are a lot of side effects. Already on Mycophenolate and hydroxychloroquine. Anybody had this pls, any side effects? How much improvement is expected

Good morning everyone 😊 I had rituximab last in spring 2020 (my first ever) and this last winter I've had a flare up of my symptoms. Some of my symptoms are quite painful, such as my hands/fingers and knees and a rash on my face, neck, arm, toes. My SLEDAI was rated as 10 when I was in clinic and I've

I had my 2nd infusion of Rituximab on Feb 20 this yr. The RA Dr said it could take 6 weeks to notice anything. And so far there's been no change in the inflammation and RA flares I'm having. Was hoping to see a slight improvement.

Hello. I have been reading posts for a long time but never actually posted myself so here goes. I have been living with CLL since 2011 following a routine blood test. I saw Haematologist and was placed on watch and wait. In 2016 I had my first treatment with Bendamustine and Rituximab and was in remission

Please note this covers NHS England - and is information only at this time - https://www.gov.uk/government/publications/departmental-minute-on-the-covid-19-spring-2025-vaccination-programme/departmental-minute-from-the-department-of-health-and-social-care-notification-of-contingent-liability-covid-

Hi. I have a long-awaited consultant appointment next Friday to discuss my next rituximab infusion. The first 2 were done in June and July last year and since this January I have had an increase in pain and stiffness. I have given my consultant the heads up that this is the case. My question is about

My dad will likely soon be starting venetoclax and rituximab in the UK after a bone marrow biopsy in a couple of weeks. He previously received ibrutinib (and rituximab) through the FLAIR trial and has been treatment free for four years. I am trying to get an understanding of how much time he will be

The ELEVATE-TN international study commenced in September 2015. The plain language article illustrates how this clinical trial was established and run to determine whether targeted therapy arms using acalabrutinib, a Bruton's Tyrosine Kinase inhibitor ( BTKi), with or without obinutuzumab, would outperform

Well, I went to see the consultant yesterday…it’s official…Yuflyma has not worked and it’s time to try again. As my DAS 28 is still over 6 he didn’t think that the ‘brothers and sisters’ of Yuflyma would be much better for me so he’s suggested Rituximab. I’m not looking forward to the infusions as I

my husband (68) was diagnosed with Wegeners in December. He was in stage 4 kidney disease.He was given a plasma exchange and started on Rituximab. Due to insurance the second infusion was delayed and it was a month before he got the second infusion. I’m wondering if this is why it failed to work? He

I have recently tried anti oxidants to reduce prednisalone use.resveratrol seems promising.my rheumatologist is advising me to stop just in case it reacts with rituximab.I am keen to hear from people who have tried them