Experiences with

Cetuximab

Hi all I decided to have a go and raise some money. There is a connection for me because Vasculitis among the physical issues I have had has brought with it some Mental Health issues too. I have to admit I get a bit anxious at times which I try and beat out of myself with exercise and it works to an

Hello all, I’ve been approved Rituximab which I should start in a couple of weeks, however I am currently taking Mounjaro (The GLP-1 drug for weight loss - similar to ozempic/wegovy). I can’t see anything online about needing to stop it ahead of the Rituximab treatment but I am aware it’s a relatively

Hi, I suffer from arthritis and on Rituximab and methotrexate, so you’d think that I would be pain free all of the time 😬 but I’ve started to go for 30 minute walks but my back starts to seize up and hurt when I walk. Any tips on what to do to prevent this? (I’ve tried painkillers and things like rubs

So today, I got the best news me and my family have had for a long time.. I'm in Remission, my CRP is 1 with no active disease. After 22 years and last year being one of the worst years I've ever experienced in my RA lifetime I can say I'm GOOD!I'm on Rituximab , which I started in August 2023, and

he guys so I had my second infusion today as was supposed to have last week but postponed due to a horrible cold I manged to pick up from my grandchildren. It went very well and although I'm now in bed I felt reasonably well afterwards, I start my 5 day iloppast infusions on the 25th November and theyvaound

Hi all, It’s been along time since I posted, I do read a lot of post which I find useful, but rarely have the time to post! I am currently off work due to change in meds again! I am currently on leflunamide as became intolerant to mtx it’s has been alot better, although swapping was a nightmare waiting

Hi All I hope you are well. I have my first Rituximab infusion booked for Wednesday but I’m still in two minds as to whether I want to go through with it or not. My consultant told me last week that I may still have to continue with my current medication even after the infusion which was not my initial

In July - my wife had the first set of Rituximab 6-monthly infusions for her RA and was just starting to feel the benefit. Had to wait 12 weeks before having the flu vaccination and a further week before having the Covid (Pfizer) vaccination yesterday. This morning she cannot get her head off the pillow

Hi all, I have had GPA for over 3 years and am on methotrexate and prednisolone among many others. I have never been offered Rituximab although did have a blood test for suitability but nothing came of it. My ANCA levels are rising again having also been on mycophenolate and others but had to stop because

my mum did 3 yrs on ibrutinib but was stopped due to cardio toxicity. She has been treatment free for 2 years but is now about to start V and R …. Originally it was Venetoclax plus obinutuzumab. What is the difference, we have an appointment on the 18th to discuss but I just want to be clear. Mum

hey all just thought I would update all on the Rituximab infusion that I had on Tuesday after lots of fear and apprehension it really wasn’t that bad although my veins kept pushing out the cannula and I did have to stop for 1 hr due to itchy tounge and ears ? Yesterday I did spend most of the day in

I recently had my 4th Rituximab infusion & afterwards was devastated to be advised by my Rhuematoid Nurse that because of it, I cannot have ANY vaccinations for 6 months from now! and I’m overdue my Flu & Covid jabs for the coming winter … does anyone else know this ???

Trying to get a measure of the stages and various meds that treat lupus, and wondering if/when anyone was moved up to biologics like Belimumab and Rituximab. I understand lupus is treated softly softly, as in mildest immune suppressants first and gradually move up the ladder, and biologics are stronger

I’m due to have my first Rituximab infusion in a few weeks, I got diagnosed with anti CCP Rheumatoid Arthritis 3 years ago and have yet to find the right treatment. Does anyone have any experience of this drug and how it made you feel? I’m ever hopeful this will be the one.

Can Rituximab cause your blood pressure to go high? At the end of a Rituximab treatment blood pressure had gone up quite high and is still high three days later.

As this website is a wonderful source of support and knowledge for those with Lymphoma I’m hoping someone will have some useful information/advice for me. I was diagnosed with CLL in February 2022 aged 70. My condition is unmutated with no TP53 variant. I started on Acalabrutinib in September last

I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituximab completed in September 2023. In July 2023 I was diagnosed with low grade, non-muscle invasive (PTa) bladder cancer and had a 12-month treatment with Epirubicin per respective protocol. Although biopsies at 3-month intervals

Completed 2 yr treatment on Rituximab and Venetoclax approximately 4 weeks ago. Consultant says I'm in remission and not to worry there are other treatments I can have. That kind of took any euphoria out of my sails!Still suffering from GI problems constant visits to the loo. Colonoscopy shows some

I had my first Rituximab at the beginning of July, the second a couple of weeks later and a couple of Iloprosts since then. I did not enjoy the infusions or the after effects but they aren’t meant to be fun! I have my follow up in the middle of next month. Progress so far? Despite my feet an ankles

ITP (secondary to CLL) since 9 years. Treated with Prednisolone, Rituximab and trombopotein (Revolade). CLL treatment with Venetoclax 2021-2022. Stopped after one year because of covid but could take a break since I was Umrd in blood. Open heart surgery By Pass in Jan 23. Heart issues. Recurrent activated