Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,466 public posts
Filter results
Rituximab and high blood pressure
Can Rituximab cause your blood pressure to go high? At the end of a Rituximab treatment blood pressure had gone up quite high and is still high three days later.
Can Rituximab cause your blood pressure to go high? At the end of a Rituximab treatment blood pressure had gone up quite high and is still high three days later.
Redkatt
in
CLL Support
2 days ago
Consistenly low platelets and neutrophils
As this website is a wonderful source of support and knowledge for those with Lymphoma I’m hoping someone will have some useful information/advice for me. I was diagnosed with CLL in February 2022 aged 70. My condition is unmutated with no TP53 variant. I started on Acalabrutinib in September last
As this website is a wonderful source of support and knowledge for those with Lymphoma I’m hoping someone will have some useful information/advice for me. I was diagnosed with CLL in February 2022 aged 70. My condition is unmutated with no TP53 variant. I started on Acalabrutinib in September last
Penicillen
in
CLL Support
2 days ago
Is there anyone with experience in bladder cancer treatment?
I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituximab completed in September 2023. In July 2023 I was diagnosed with low grade, non-muscle invasive (PTa) bladder cancer and had a 12-month treatment with Epirubicin per respective protocol. Although biopsies at 3-month intervals
I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituximab completed in September 2023. In July 2023 I was diagnosed with low grade, non-muscle invasive (PTa) bladder cancer and had a 12-month treatment with Epirubicin per respective protocol. Although biopsies at 3-month intervals
RamsesII
in
CLL Support
4 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
End of fixed duration treatment
Completed 2 yr treatment on Rituximab and Venetoclax approximately 4 weeks ago. Consultant says I'm in remission and not to worry there are other treatments I can have. That kind of took any euphoria out of my sails!Still suffering from GI problems constant visits to the loo. Colonoscopy shows some
Completed 2 yr treatment on Rituximab and Venetoclax approximately 4 weeks ago. Consultant says I'm in remission and not to worry there are other treatments I can have. That kind of took any euphoria out of my sails!Still suffering from GI problems constant visits to the loo. Colonoscopy shows some
Fastbike14
in
CLL Support
7 days ago
Rituximab- So Far
I had my first Rituximab at the beginning of July, the second a couple of weeks later and a couple of Iloprosts since then. I did not enjoy the infusions or the after effects but they aren’t meant to be fun! I have my follow up in the middle of next month. Progress so far? Despite my feet an ankles
I had my first Rituximab at the beginning of July, the second a couple of weeks later and a couple of Iloprosts since then. I did not enjoy the infusions or the after effects but they aren’t meant to be fun! I have my follow up in the middle of next month. Progress so far? Despite my feet an ankles
Lupiknits
in
Scleroderma & Raynaud's UK (SRUK)
8 days ago
ITP worse after CLL reactivated. 2,5 years after stopping Venetoclax/Rituximab with Umrd. Has anyone tried N-plate? Other options?
ITP (secondary to CLL) since 9 years. Treated with Prednisolone, Rituximab and trombopotein (Revolade). CLL treatment with Venetoclax 2021-2022. Stopped after one year because of covid but could take a break since I was Umrd in blood. Open heart surgery By Pass in Jan 23. Heart issues. Recurrent activated
ITP (secondary to CLL) since 9 years. Treated with Prednisolone, Rituximab and trombopotein (Revolade). CLL treatment with Venetoclax 2021-2022. Stopped after one year because of covid but could take a break since I was Umrd in blood. Open heart surgery By Pass in Jan 23. Heart issues. Recurrent activated
Accordion
in
CLL Support
10 days ago
Cogan's syndrome
Hello! So I was diagnosed with Cogan's in Oct 23. It all started with severe ear pain after my second COVID vaccine which progressed to hearing and balance issues. This resolved after 3 weeks but I got the same symptoms again after my 3rd vaccine. Again this resolved but returned and gradually worsened
Hello! So I was diagnosed with Cogan's in Oct 23. It all started with severe ear pain after my second COVID vaccine which progressed to hearing and balance issues. This resolved after 3 weeks but I got the same symptoms again after my 3rd vaccine. Again this resolved but returned and gradually worsened
Popple18
in
Vasculitis UK
11 days ago
Shortage of Rituximub
My husband was due his next infusion of Rituximab at the end of August and when he phoned Medway Maritime biologics, about 3wks ago, to have his two appointments organised, was told that unfortunately there is no Rituximub available at the moment. And also they were struggling to get hold of any. He
My husband was due his next infusion of Rituximab at the end of August and when he phoned Medway Maritime biologics, about 3wks ago, to have his two appointments organised, was told that unfortunately there is no Rituximub available at the moment. And also they were struggling to get hold of any. He
LillyBeagle
in
NRAS
14 days ago
Rituximab
I'm about to have my first RTX infusion and am apprehensive. Could anyone tell me what to expect please?
I'm about to have my first RTX infusion and am apprehensive. Could anyone tell me what to expect please?
Bluepegasus
in
NRAS
16 days ago
Ruxience is a new Bio similar , Rituximab
I have Rheumatoid arthritis and myasenthia gravis and have been Rituximab for about 5 years. That had work good me. Now they are doing a new Bio similar drug Ruxience by Pfizer. Has anyone taken the Ruxience ? If so did you have side effects? Did it help?
I have Rheumatoid arthritis and myasenthia gravis and have been Rituximab for about 5 years. That had work good me. Now they are doing a new Bio similar drug Ruxience by Pfizer. Has anyone taken the Ruxience ? If so did you have side effects? Did it help?
65_women
in
PMRGCAuk
18 days ago
rituximab
Good morning, Had my second Rituximab on Thursday , had rituximab for quite a few years and never had a problem before but after this last session, it’s knocked the stuffing out of me . my joints are quite bad especially my hands , never had this before , feel quite rubbish today . could just
Good morning, Had my second Rituximab on Thursday , had rituximab for quite a few years and never had a problem before but after this last session, it’s knocked the stuffing out of me . my joints are quite bad especially my hands , never had this before , feel quite rubbish today . could just
Jillyanne
in
NRAS
19 days ago
I wish appointments came with meeting agenda's
Long story short, everyone (NHS and private rheumatology and NHS dermatology) agree I need to change my medication to rituximab. I saw NHS rheumatology in July and had this discussion and he said it would be 4-5 months until I heard. Private rheumatologist I saw in August also confirmed this and he works
Long story short, everyone (NHS and private rheumatology and NHS dermatology) agree I need to change my medication to rituximab. I saw NHS rheumatology in July and had this discussion and he said it would be 4-5 months until I heard. Private rheumatologist I saw in August also confirmed this and he works
Diagnosis_Collector
in
LUPUS UK
20 days ago
Richter's and Novel Treatments/Combinations
We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones
We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones
Jm954
Administrator
in
CLL Support
29 days ago
What to expect after finishing course of rituximab
Hi There, Finnish 4th course of Rituximab over a week ago,would like to know what to expect after it,ha sore throat,mouthfuls of ulcers,getting pain down in my private parts,has anyone had that. Thanks John. [i]Changed title to protect privacy - Admin[/i]
Hi There, Finnish 4th course of Rituximab over a week ago,would like to know what to expect after it,ha sore throat,mouthfuls of ulcers,getting pain down in my private parts,has anyone had that. Thanks John. [i]Changed title to protect privacy - Admin[/i]
Jsceltic67
in
CLL Support
1 month ago
Temporary Stop Endoxan/Cycloph
Hello, I have renal limited ANCA vasculitis. Started Induction almost 4 months ago with 2 Rituximab infusions and Prednis 60mg. After about 3 months was switched over to Endoxan 5mg daily when creatinine jumped and looked like Rituximab not working well enough. Today creatinine and eGFR best result
Hello, I have renal limited ANCA vasculitis. Started Induction almost 4 months ago with 2 Rituximab infusions and Prednis 60mg. After about 3 months was switched over to Endoxan 5mg daily when creatinine jumped and looked like Rituximab not working well enough. Today creatinine and eGFR best result
Support_helps
in
Vasculitis UK
1 month ago
covid
hi I am now week two of covid (for the first time) but still have a fever, so so tired and congested, I contacted 111 when it started and they said I am not entitled to anti virals even though on rituximab infusions which I had the last one at the start of July. Doctors said the same but how long will
hi I am now week two of covid (for the first time) but still have a fever, so so tired and congested, I contacted 111 when it started and they said I am not entitled to anti virals even though on rituximab infusions which I had the last one at the start of July. Doctors said the same but how long will
Pooch22
in
NRAS
1 month ago
V and R Treatment Update
After your helpful responses to my scared post I wanted to give you all an update. My husband ramped upto the full 400mg of Venetoclax and his 3rd Rituximab infusion is later this month. I am pleased to say that apart from a week 3 ramp up blip where his body dumped his defective cells quickly, making
After your helpful responses to my scared post I wanted to give you all an update. My husband ramped upto the full 400mg of Venetoclax and his 3rd Rituximab infusion is later this month. I am pleased to say that apart from a week 3 ramp up blip where his body dumped his defective cells quickly, making
Sanders9
in
CLL Support
2 months ago
Covid again - watch this space!
Hi all, sorry I have been a bit inactive recently but not much to tell you all. They say better late than never so here goes. As you are aware I am being treated with Rituximab to Control GPA, so immune compromised , had my last Covid Jab 10 weeks ago. A fortnight ago we went to London the watch
Hi all, sorry I have been a bit inactive recently but not much to tell you all. They say better late than never so here goes. As you are aware I am being treated with Rituximab to Control GPA, so immune compromised , had my last Covid Jab 10 weeks ago. A fortnight ago we went to London the watch
Investigator1
in
Vasculitis UK
2 months ago
Update.
Apologies for the silence. I have had quite an eventful few months. My former partner served me with a court order to sell the house which threw me somewhat. That on top of trying to deal with the loss of my mother and stepfather in quick succession sent me down a dark path. I have had counselling and
Apologies for the silence. I have had quite an eventful few months. My former partner served me with a court order to sell the house which threw me somewhat. That on top of trying to deal with the loss of my mother and stepfather in quick succession sent me down a dark path. I have had counselling and
Jacksc06
in
CLL Support
2 months ago
Second round of Rituximab
About to have my second round of Rituximab. I had the first in November last year, it didn’t work until about late March/April (I thought it wasn’t going to work by then), can I hope that there will be some of the Rituximab left in my body and that this new round will start working more quickly? I
About to have my second round of Rituximab. I had the first in November last year, it didn’t work until about late March/April (I thought it wasn’t going to work by then), can I hope that there will be some of the Rituximab left in my body and that this new round will start working more quickly? I
Sprite60A
in
NRAS
2 months ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1006 results
NRAS
559 results
Vasculitis UK
328 results
View top 10 communities
Sort by
Most Relevant
Newest