Experiences with

Cetuximab

Happy New Year to everybody hope you all stay well this year now I need some advice. So I had my bloods done 6 weeks ago, my ANCA marker was really low and consistent with previous readings, 5 weeks ago I had my last infusion of Rituximab. Since I have been on Rituximab I havnt had a flare of any kind

Hello. Since I last posted its now been confirmed macular degeneration has started the right eye has a lot of scar tissue, also CNS involvement Been put on Rituximab as the replacement of Humira. Sadly I contracted covid just days after the infusion . Things finally reach an emergency covid had

Dear friends, I have a question for some of you who are primalib R sc? I received the first R on December 17 iv and on December 25 I should receive the first sc injetion of R. I am interested in premedication and experience,possible complications. My problem is that I am malnourished,that the

Hey all just thought I would pop in and give you an update on my experience with iloprost infusions, so I had 5 days worth 6 hrs a day two weeks ago and my god it was rough I only managed 3mm per hour as horrendous nausea and headache I know this is a common side effect but I felt awful when eating

Pirtobrutinib is the first FDA approved non-covalent BTK inhibitor (BTKi) for the treatment of CLL. The previously approved BTKi drugs (acalabrutinib, ibrutinib and zanubrutinib) bond covalently. Eventually, these drugs can stop inhibiting CLL, when DNA changes in the BTK enzyme prevent the BTKi from

[i]For those of us trying to keep up with or in need of an update on the many CLL treatment developments of the past year, this MedPage Today summary is an excellent resource to do so. It has numerous links to the various developments noted within the article, so use the link to the full article at the

the CLL listserv that I participated in has just announced. They were disbanding. This group was recommended by one of their members. I look forward to learning from all of you. I was diagnosed with CLL in 2020; had rituximab and now I am on avatrombopag for ITP. Val

I've been advised to start this biological therapy soon. I have tried many types of tablets and found them to be unsuitable for various reasons. My Consultant has stated that my Rheumatoid Arthritis is active and I should start the Rituximab soon. I am worried about it as I was previously advised not

Hello I am being treated for MPA, renal-limited vasculitis. I'm 4 months into daily 50mg cyclo teatment after initial Rituximab treatment failed. I'm also now taking 5mg pred daily and Norvasc 5mg for hypertension management. My nephrologist says I have achieved Induction but wants to run a full 6

.My July 24 appointment was postponed till Feb 25 as the rheum was ill. Yesterday I received a letter from the hospital to tell me the Feb appointment had been postponed to July 25. This will be a gap of 18 months since my last appointment. I had my 2 first Rituximab infusions in June this year which

Hi all I decided to have a go and raise some money. There is a connection for me because Vasculitis among the physical issues I have had has brought with it some Mental Health issues too. I have to admit I get a bit anxious at times which I try and beat out of myself with exercise and it works to an

Hello all, I’ve been approved Rituximab which I should start in a couple of weeks, however I am currently taking Mounjaro (The GLP-1 drug for weight loss - similar to ozempic/wegovy). I can’t see anything online about needing to stop it ahead of the Rituximab treatment but I am aware it’s a relatively

Hi, I suffer from arthritis and on Rituximab and methotrexate, so you’d think that I would be pain free all of the time 😬 but I’ve started to go for 30 minute walks but my back starts to seize up and hurt when I walk. Any tips on what to do to prevent this? (I’ve tried painkillers and things like rubs

So today, I got the best news me and my family have had for a long time.. I'm in Remission, my CRP is 1 with no active disease. After 22 years and last year being one of the worst years I've ever experienced in my RA lifetime I can say I'm GOOD!I'm on Rituximab , which I started in August 2023, and

he guys so I had my second infusion today as was supposed to have last week but postponed due to a horrible cold I manged to pick up from my grandchildren. It went very well and although I'm now in bed I felt reasonably well afterwards, I start my 5 day iloppast infusions on the 25th November and theyvaound

Hi all, It’s been along time since I posted, I do read a lot of post which I find useful, but rarely have the time to post! I am currently off work due to change in meds again! I am currently on leflunamide as became intolerant to mtx it’s has been alot better, although swapping was a nightmare waiting

Hi All I hope you are well. I have my first Rituximab infusion booked for Wednesday but I’m still in two minds as to whether I want to go through with it or not. My consultant told me last week that I may still have to continue with my current medication even after the infusion which was not my initial

In July - my wife had the first set of Rituximab 6-monthly infusions for her RA and was just starting to feel the benefit. Had to wait 12 weeks before having the flu vaccination and a further week before having the Covid (Pfizer) vaccination yesterday. This morning she cannot get her head off the pillow

Hi all, I have had GPA for over 3 years and am on methotrexate and prednisolone among many others. I have never been offered Rituximab although did have a blood test for suitability but nothing came of it. My ANCA levels are rising again having also been on mycophenolate and others but had to stop because

my mum did 3 yrs on ibrutinib but was stopped due to cardio toxicity. She has been treatment free for 2 years but is now about to start V and R …. Originally it was Venetoclax plus obinutuzumab. What is the difference, we have an appointment on the 18th to discuss but I just want to be clear. Mum