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What to Do After Getting a COVID-19 Vaccine If You’re Immunocompromised or Have an Autoimmune Condition
What to Do After Getting a COVID-19 Vaccine If You’re Immunocompromised or Have an Autoimmune Condition From the steps to take immediately after your COVID vaccination to how to protect yourself for months beyond, here is your plan of action.
What to Do After You Receive the COVID-19 Vaccine
What to Do After Getting a COVID-19 Vaccine If You’re Immunocompromised or Have an Autoimmune Condition From the steps to take immediately after your COVID vaccination to how to protect yourself for months beyond, here is your plan of action.
What to Do After You Receive the COVID-19 Vaccine
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Nausea with FCR
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Daisy1993
in
CLL Support
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
Jm954
in
Leukaemia CARE
3 years ago
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NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
AussieNeil
Partner
in
CLL Support
3 years ago
Inevitable, but still a blow and a huge disappointment
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Rich316
in
CLL Support
3 years ago
Update after 6th RCHOP for follicular NHL
Hi, I had my PET scan last week after my 6th cycle of RCHOP. It came back clear with not activity, so I'm officially in now in remission! Have to get a shot of Rituximab in belly every 3 months for 2 years. This is for maintenance to make sure it doesn't come back. A 15 minute jab. Chemo is a feared
Hi, I had my PET scan last week after my 6th cycle of RCHOP. It came back clear with not activity, so I'm officially in now in remission! Have to get a shot of Rituximab in belly every 3 months for 2 years. This is for maintenance to make sure it doesn't come back. A 15 minute jab. Chemo is a feared
Russ70
in
Non Hodgkin's Lymphoma Friends
3 years ago
Rituximab
After all my problems with Methotrexate (which I have talked about previously)I am now quite concerned about my next step which is Rituximab infusions.Has anyone tried this?Obviously this is to replace all the other medications that I am taking ie Azathioprine,Hydroxochloroquine and Prednisone.The steroids
After all my problems with Methotrexate (which I have talked about previously)I am now quite concerned about my next step which is Rituximab infusions.Has anyone tried this?Obviously this is to replace all the other medications that I am taking ie Azathioprine,Hydroxochloroquine and Prednisone.The steroids
Ladyfairfax
in
NRAS
3 years ago
Rituximab and Covid
Rituximab and Covid Has anyone had Covid and taking Rituximab ? How did it affect you?
Rituximab and Covid Has anyone had Covid and taking Rituximab ? How did it affect you?
-Mii
in
NRAS
3 years ago
Regeneron treatment for CLL people with early Covid symptoms
Hi, Great community! Thanks to everyone who posts their experiences. It’s been comforting, informative and helpful. This is my first post, and I’m not someone who is generally brave enough to post. I wanted to ask if anyone with CLL who got Covid received Regeneron’s monoclonal antibodies early in the
Hi, Great community! Thanks to everyone who posts their experiences. It’s been comforting, informative and helpful. This is my first post, and I’m not someone who is generally brave enough to post. I wanted to ask if anyone with CLL who got Covid received Regeneron’s monoclonal antibodies early in the
Twin21
in
CLL Support
3 years ago
First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
TimDeeSeattle
in
CLL Support
3 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
Vasculitis and COVID Vaccine
Hi everybody, we are now further down the road regarding vaccinations from my last post on the subject, however I am still having difficulty finding information regarding if those of us on immune suppressants can have a COVID jab. I say this because I have heard Doctors saying if you are offered the
Hi everybody, we are now further down the road regarding vaccinations from my last post on the subject, however I am still having difficulty finding information regarding if those of us on immune suppressants can have a COVID jab. I say this because I have heard Doctors saying if you are offered the
Investigator1
in
Vasculitis UK
3 years ago
blood results after 9 week fcr finished
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
kel555
in
CLL Support
3 years ago
Saw rheumy
So I asked him about vaccines etc, I see NRAS have been kind enough to reply and are looking into the remarks on tv recently. I asked if I should have my TCZ infusion next week and he said yes, I'm advising all my patients to have the vaccination whatever one is offered as far as RA advice goes but
So I asked him about vaccines etc, I see NRAS have been kind enough to reply and are looking into the remarks on tv recently. I asked if I should have my TCZ infusion next week and he said yes, I'm advising all my patients to have the vaccination whatever one is offered as far as RA advice goes but
allanah
in
NRAS
3 years ago
COVID-19 Vaccine and Behçet’s - updated 27/01/21
Please see the definitive Behçet’s Centres of Excellence position statement (December 2020) on COVID-19 vaccine via the attached link. It states "The three centres of excellence recommend the Pfizer/BioNTech Covid-19 Vaccine for patients with Behçets." and then gives the justification why. This includes
Please see the definitive Behçet’s Centres of Excellence position statement (December 2020) on COVID-19 vaccine via the attached link. It states "The three centres of excellence recommend the Pfizer/BioNTech Covid-19 Vaccine for patients with Behçets." and then gives the justification why. This includes
TonyWT
Partner
in
Behçet's UK
3 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
Good News for our untreated Canadian members![i] [/i] [i] [/i] [i]This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free
Good News for our untreated Canadian members![i] [/i] [i] [/i] [i]This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free
AussieNeil
Partner
in
CLL Support
3 years ago
Wish the doctors would listen
So a month ago I started limping, pain in my right lower leg. A few days later pain in my right hip, due to walking badly due to pain in lower leg I thought. Straight away I suspected a stress fracture of my fibula as the pain was identical to that I had experienced in 2008. Back on crutches and using
So a month ago I started limping, pain in my right lower leg. A few days later pain in my right hip, due to walking badly due to pain in lower leg I thought. Straight away I suspected a stress fracture of my fibula as the pain was identical to that I had experienced in 2008. Back on crutches and using
Pam-51
in
NRAS
4 years ago
Chest pain in CLL
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Daisy1993
in
CLL Support
3 years ago
Nras web Facebook session about vaccines
It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was: Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given
It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was: Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given
allanah
in
NRAS
4 years ago
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