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Rituximab
Hi anyone on or had a rituximab infusion, I may be having one shortly and would like any info that you may have, thank you.
Hi anyone on or had a rituximab infusion, I may be having one shortly and would like any info that you may have, thank you.
madambutterfly
in
NRAS
8 years ago
Rheumatology review: Scotland
There's a lot of criticism about the NHS at present so I thought I'd report something which would appear to be positive. I received (via velopost, very ecological) an invitation to go to a rheumatology review at the GP. I've got an appointment this afternoon and have asked via my rheumatologist at the
There's a lot of criticism about the NHS at present so I thought I'd report something which would appear to be positive. I received (via velopost, very ecological) an invitation to go to a rheumatology review at the GP. I've got an appointment this afternoon and have asked via my rheumatologist at the
cathie
in
NRAS
8 years ago
17 years and counting
I've had rheumatoid arthritis for 17 years, in my mind as a child I thought I'd have it until I was a teenager and be done with it. I thought adulthood would magically transform my sorry joints. Unfortunately I was wrong but I am now taking real charge of this disease and actively kicking it's ass! I
I've had rheumatoid arthritis for 17 years, in my mind as a child I thought I'd have it until I was a teenager and be done with it. I thought adulthood would magically transform my sorry joints. Unfortunately I was wrong but I am now taking real charge of this disease and actively kicking it's ass! I
N-work28
in
NRAS
9 years ago
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Treatment starting 4th February
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Louiej
in
CLL Support
8 years ago
Rituximab and bendamustine
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Donegal
in
CLL Support
9 years ago
Sciatica??
Husband has GPA (Wegener's) which is just about going into remission with 3rd session of Rituximab on 30 Dec. Prednisilone is now down to 7mg per day. All good news but........since July he has been suffering from what we believe is Sciatica. Knee Xray & MRI of back show no squashed nerve. His pain extends
Husband has GPA (Wegener's) which is just about going into remission with 3rd session of Rituximab on 30 Dec. Prednisilone is now down to 7mg per day. All good news but........since July he has been suffering from what we believe is Sciatica. Knee Xray & MRI of back show no squashed nerve. His pain extends
Nadine99
in
Vasculitis UK
9 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
8 years ago
FCR remission period
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
mag1309
in
CLL Support
8 years ago
Husband with p53 deletion
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
MichRae
in
CLL Support
9 years ago
FLAIR update Round 2
FLAIR trial Ibrutinib Rituximab arm. So....after first round I felt OK if tired, massive bruising, but am usually easily bruised so can cope with that, so long as no one sees my legs. By day 15 or so I had horrid mouth ulcers. And some muscle pain. Round 2 was 2 weeks ago, since when I have had severe
FLAIR trial Ibrutinib Rituximab arm. So....after first round I felt OK if tired, massive bruising, but am usually easily bruised so can cope with that, so long as no one sees my legs. By day 15 or so I had horrid mouth ulcers. And some muscle pain. Round 2 was 2 weeks ago, since when I have had severe
romarin
in
CLL Support
9 years ago
Spouse Diagnoised with CLL
He starts FCR treatment Friday, will he be able to work the week after?
He starts FCR treatment Friday, will he be able to work the week after?
AngK
in
CLL Support
9 years ago
Offer of enrolling on CALiBRe trial
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
kendo1
in
CLL Support
9 years ago
Sharing the good news
This is my first post on this very interesting and helpful website of a marvellous community. I am attending a trial with the new medicin Venetoclax and I’d like to share the good news with you (and I hope you will forgive me my mistakes in using the English language ;-) ) I live in the Netherlands,
This is my first post on this very interesting and helpful website of a marvellous community. I am attending a trial with the new medicin Venetoclax and I’d like to share the good news with you (and I hope you will forgive me my mistakes in using the English language ;-) ) I live in the Netherlands,
Korstiaan
in
CLL Support
9 years ago
Nodules
I developed RA back in 2003 - diagnosed in 2004. Like many, I developed nodules on my forearm just distal to the elbow and on top of the fibula, first one, then two, which became hard and then a third soft one actually on the elbow. I was put on a trial of Rituximab, after having failed on 3 DMARDS
I developed RA back in 2003 - diagnosed in 2004. Like many, I developed nodules on my forearm just distal to the elbow and on top of the fibula, first one, then two, which became hard and then a third soft one actually on the elbow. I was put on a trial of Rituximab, after having failed on 3 DMARDS
KaysDad
in
NRAS
9 years ago
4 Christmas: open studio
Some will think I'm mad, I expect other friends will call me 'brave', but whatever the response, I am going ahead with my open studio next weekend. I won't have much new work, but I am indebted to my three fellow-exhibitors; they are a terrific support year-round. We decided on this way back in
Some will think I'm mad, I expect other friends will call me 'brave', but whatever the response, I am going ahead with my open studio next weekend. I won't have much new work, but I am indebted to my three fellow-exhibitors; they are a terrific support year-round. We decided on this way back in
Jora
in
NRAS
9 years ago
Wegeners (GPA)
I've recently been diagnosed with Wegeners and have had my first course of Rituximab. On daily steroids and generally feeling a lot better. My nose has changed shape (saddle deformity) and it currently is letting off a bit of a horrible smell... (Like rotting) Does/did this happen to anyone else In the
I've recently been diagnosed with Wegeners and have had my first course of Rituximab. On daily steroids and generally feeling a lot better. My nose has changed shape (saddle deformity) and it currently is letting off a bit of a horrible smell... (Like rotting) Does/did this happen to anyone else In the
Marcus1988
in
Vasculitis UK
9 years ago
colds and coughs
My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to "urgent care" last Sunday and had a regularly scheduled visit with his oncologist today. Bloods are unremarkable and both doctors think it is viral
My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to "urgent care" last Sunday and had a regularly scheduled visit with his oncologist today. Bloods are unremarkable and both doctors think it is viral
dwolden
in
CLL Support
9 years ago
rituximab infusion and infection
Hello, just wondering if i should do anything if my infusion due in few days and i have a tooth infection ??
Hello, just wondering if i should do anything if my infusion due in few days and i have a tooth infection ??
epicdee
in
LUPUS UK
9 years ago
Hell of a scare!
Well just got home from hospital! Went in yesterday morning for my second infusion for Rituximab! Had a reaction 20miniutes towards the end, nurses jumped in before it put my body into shock, went into 3 hours recovery and seemed fine so went home. Only to get home and a couple hours into being home
Well just got home from hospital! Went in yesterday morning for my second infusion for Rituximab! Had a reaction 20miniutes towards the end, nurses jumped in before it put my body into shock, went into 3 hours recovery and seemed fine so went home. Only to get home and a couple hours into being home
LillyAlfie
in
LUPUS UK
9 years ago
Treatment for CSS
I suffer from ANCA positive vasculitis, they think a crossover of GPA/CSS and I am currently on 6 monthly Rituximab and Prednisilone but it is not controlling my symptoms. I am considering Methotrexate or Mycohenolate alongside it and was wondering if others have had success with these combinations
I suffer from ANCA positive vasculitis, they think a crossover of GPA/CSS and I am currently on 6 monthly Rituximab and Prednisilone but it is not controlling my symptoms. I am considering Methotrexate or Mycohenolate alongside it and was wondering if others have had success with these combinations
Maudy1
in
Vasculitis UK
9 years ago
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