My daughter 28 was terrified to have her spleen removed and went through hell in for 1 yr. blood work was checked every week, besides the prednisone in basic treatment 4 rounds of rituximab was given(by the way if 1 round doesn't work don't let them prescribe more) platlet count only when up when given NPlate . she maintained a super healthy diet. Nothing made the platelets go up. Finally she got her spleen removed. platelets are steady@ 350,000. Fall out from all treatment numb right arm, foot neuropathy. Regrets not getting her spleen removed after 3 months of standard treatment. Good luck to you and be careful with your medication they come with side effects.
Spleen removal : My daughter 28 was... - ITP Support Assoc...
Spleen removal
![Espomom profile image](https://images.hu-production.be/avatars/7932cdd95d7c422788eeb6c6139579a6_small@2x_100x100.jpg)
Written by
![Espomom profile image](https://images.hu-production.be/avatars/7932cdd95d7c422788eeb6c6139579a6_small@2x_100x100.jpg)
Espomom
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Does your daughter know the ITP is spleen related
If it is liver related it would be worthless
Not what you're looking for?
You may also like...
Decided to not have anymore treatment
Has anyone decided to stop all treatment?? I have had ITP for 10 years. It took a while to find...
In Remission for a year
Hi has anyone had a long remission with normal platelets ( no medication) only to go back to less...
Avatrombopag or should I try living with a low count? Does anybody have experience of either please?
Hi everyone
I am a woman in her early 60s. I was diagnosed with ITP 12 years ago and have had no...
ITP x Covid Vaccine
Hello all,
I wanted to see if anyone else developed thrombocytopenia after taking the 1st dose of...
covid vaccine
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger...