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New Mermber w MCL strating rescue treatment w Calquence
Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w excellent results, then on Nov/Dec 2021. Symtoms reappearded on Nov/Dec 2021. On Jan 2022 started new treatment w Calquence, doing ok till now
Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w excellent results, then on Nov/Dec 2021. Symtoms reappearded on Nov/Dec 2021. On Jan 2022 started new treatment w Calquence, doing ok till now
xxje
in
Non Hodgkin's Lymphoma Friends
2 years ago
Neutropenia post Rituximab and Covid Jabs
After routine blood test last week I have Zero Neutrophils count! I was sent to hospital for further tests and then given a week of antibiotics. Could this be due to Covid jabs ? My Rituximab Infusion was in June. I have been told to stop Methotrexate and isolate. Anyone had a similar experience? Thanks
After routine blood test last week I have Zero Neutrophils count! I was sent to hospital for further tests and then given a week of antibiotics. Could this be due to Covid jabs ? My Rituximab Infusion was in June. I have been told to stop Methotrexate and isolate. Anyone had a similar experience? Thanks
annekelt
in
NRAS
2 years ago
BTK+Venetoclax trial in the UK?
Hello, I was wondering if anyone is aware of any upcoming BTK+Venetoclax trials in the UK. The only one listed is the AVO vs AV vs FCR which is basically not recruiting anymore (probably because of the FCR arm). There are loads of these trials around the world but none in the UK. I wonder why. It seems
Hello, I was wondering if anyone is aware of any upcoming BTK+Venetoclax trials in the UK. The only one listed is the AVO vs AV vs FCR which is basically not recruiting anymore (probably because of the FCR arm). There are loads of these trials around the world but none in the UK. I wonder why. It seems
hope-73
in
CLL Support
2 years ago
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Immunosuppressed and Omicron
Hi, just wondering what the consensus is now on Omicron's effect on Immunosuppressed people, ie, is it just like a bad cold for us also?? I am still taking precautions, but starting to feel like the odd one out a lot as most people now are not worrying so much if they get Omicron because of the not
Hi, just wondering what the consensus is now on Omicron's effect on Immunosuppressed people, ie, is it just like a bad cold for us also?? I am still taking precautions, but starting to feel like the odd one out a lot as most people now are not worrying so much if they get Omicron because of the not
trenarren
in
NRAS
2 years ago
3rd Rituximab Infusion One to Go!
I believe that the Rituximab infusions seem to be working. WBC back in normal range. RBC up but still a little low. My Haptoglobin has stayed the same at 14 which it has been for every test on record since September. I am wondering if anyone knows why that is and if I should be concerned. Thanks CBCWD
I believe that the Rituximab infusions seem to be working. WBC back in normal range. RBC up but still a little low. My Haptoglobin has stayed the same at 14 which it has been for every test on record since September. I am wondering if anyone knows why that is and if I should be concerned. Thanks CBCWD
SantaZia
in
CLL Support
2 years ago
Thinking of having a tattoo !!
Hi fellow lupus sufferers. I’m thinking of getting a tattoo, has anyone else had one since being diagnosed with lupus. If you have did you experience any problems afterwards ? My lupus is well controlled and I am on Rituximab and methotrexate.
Hi fellow lupus sufferers. I’m thinking of getting a tattoo, has anyone else had one since being diagnosed with lupus. If you have did you experience any problems afterwards ? My lupus is well controlled and I am on Rituximab and methotrexate.
littlemissp
in
LUpus Patients Understanding and Support
2 years ago
Venetoclax+Rituximab OR Acalabrutinib - What is the best choice?
Hi All, At my last appointment with my consultant I was told that I was nearing the need for treatment for my relapsed CLL. Quick History Diagnosed 2009 W&W till 2017 then FCR for 6 months - achieved MRD Negative Came out of remission March 2021, but now TP53 Variation (I assume that
Hi All, At my last appointment with my consultant I was told that I was nearing the need for treatment for my relapsed CLL. Quick History Diagnosed 2009 W&W till 2017 then FCR for 6 months - achieved MRD Negative Came out of remission March 2021, but now TP53 Variation (I assume that
Rich316
in
CLL Support
2 years ago
Rituximab and fourth vaccine
I hope everyone is well and I wish you all a happy and healthy new year ! I was hoping to push back my regular Rituximab infusion to give Omicron a chance to calm down. But the results of the latest blood test force me now to have it quite soon. I was also due my fourth vaccine. Does anyone know what
I hope everyone is well and I wish you all a happy and healthy new year ! I was hoping to push back my regular Rituximab infusion to give Omicron a chance to calm down. But the results of the latest blood test force me now to have it quite soon. I was also due my fourth vaccine. Does anyone know what
Condensation
in
Vasculitis UK
2 years ago
Rituximab
Thank you so much for your replies to my question. I had two infusions two weeks apart last summer. Reading your replies I’m optimistic that hopefully this next round will give me a greater improvement. Thanks very much x
Thank you so much for your replies to my question. I had two infusions two weeks apart last summer. Reading your replies I’m optimistic that hopefully this next round will give me a greater improvement. Thanks very much x
debjw
in
NRAS
2 years ago
Loose bowels
Hello Lovely people Does anyone else suffer from having to run to the toilet after you’ve eaten something? Mine is getting beyond a joke now I ve even started to take loperamide to stop it . It comes on sometimes without reason . I eat a healthy diet …no meat dairy or gluten Could it be my meds ? Rituximab
Hello Lovely people Does anyone else suffer from having to run to the toilet after you’ve eaten something? Mine is getting beyond a joke now I ve even started to take loperamide to stop it . It comes on sometimes without reason . I eat a healthy diet …no meat dairy or gluten Could it be my meds ? Rituximab
Fifi2
in
NRAS
2 years ago
Rituximab
Hi lovely people I’ve had one round of rituximab last summer. Can anyone tell me if the affects improve with each round please? Thank you x
Hi lovely people I’ve had one round of rituximab last summer. Can anyone tell me if the affects improve with each round please? Thank you x
debjw
in
NRAS
2 years ago
My Experience with ITP
Hi! I have had ITP for the last 6 months. I am recently suffering from excessive hair fall. I don't have a bald spot but my hair fall is out of control. I have been taking Revolade 75mg daily for the past 4 months. I have also taken various immunosuppressants like IVIG, Rituximab and Prednisolone. This
Hi! I have had ITP for the last 6 months. I am recently suffering from excessive hair fall. I don't have a bald spot but my hair fall is out of control. I have been taking Revolade 75mg daily for the past 4 months. I have also taken various immunosuppressants like IVIG, Rituximab and Prednisolone. This
boredbetty
in
ITP Support Association
2 years ago
PCR test
I never received the letter or email regarding the PCR test. I called 119 who said they could not send the special PCR test as I hadn’t received the letter. They suggest I called gp which I did & practice manager was supposed to call me back next day. No call. The thing that worries me is why am
I never received the letter or email regarding the PCR test. I called 119 who said they could not send the special PCR test as I hadn’t received the letter. They suggest I called gp which I did & practice manager was supposed to call me back next day. No call. The thing that worries me is why am
juli-pa
in
Vasculitis UK
2 years ago
Rituximab reaction?
Hi, I had my first infusion of Rituximab the 22/12, around New Year’s Eve I started to feel unwell , I had my second infusion due the 5/01/22 but the night before I had a bit of temperature, I rung them and they said if the temperature was below 38 to go, I went but feeling really weak , the pain all
Hi, I had my first infusion of Rituximab the 22/12, around New Year’s Eve I started to feel unwell , I had my second infusion due the 5/01/22 but the night before I had a bit of temperature, I rung them and they said if the temperature was below 38 to go, I went but feeling really weak , the pain all
Melaxx
in
LUPUS UK
2 years ago
Date with FCR
Before anybody tells me there are better, newer options out there let me say that I am in Australia and FCR is my only option first line. I am 12 months watch and wait SLL with bulky nodes everywhere. Just had my second PET and specialist has said that it’s time to treat. Can anyone share with me their
Before anybody tells me there are better, newer options out there let me say that I am in Australia and FCR is my only option first line. I am 12 months watch and wait SLL with bulky nodes everywhere. Just had my second PET and specialist has said that it’s time to treat. Can anyone share with me their
Waves01
in
CLL Support
2 years ago
Anyone thinking to postpone rituximab doses until Omicron wave is over?
I am on Venetoclax plus rituximab treatment and have already had 3 of the 6 Rituximab doses. The 4th dose is due on January 3, but I am reluctant to visit hospital and remain there for so many hours coming into contact with several people of all sorts. I would prefer to wait until the Omicron wave calms
I am on Venetoclax plus rituximab treatment and have already had 3 of the 6 Rituximab doses. The 4th dose is due on January 3, but I am reluctant to visit hospital and remain there for so many hours coming into contact with several people of all sorts. I would prefer to wait until the Omicron wave calms
RamsesII
in
CLL Support
3 years ago
How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
smirnof
in
CLL Support
3 years ago
Any link to treatment for GPA and Stroke
I received my latest round of Rituximab on Wednesday and within 20 mins of finishing took a stroke. I'm ok and after three episodes it cleared away. Is there any evidence that any of my meds could have caused it: Rituximab Prednisalone,?? After fighting GPA for six years you just don't need anything
I received my latest round of Rituximab on Wednesday and within 20 mins of finishing took a stroke. I'm ok and after three episodes it cleared away. Is there any evidence that any of my meds could have caused it: Rituximab Prednisalone,?? After fighting GPA for six years you just don't need anything
Red-head44
in
Vasculitis UK
3 years ago
Hope for a healthier 2022
Wishing everyone a happier & healthier 2022 & hope you’ve all had a great painless Christmas. Feeling a bit anxious as having my 1st Rituximab infusion on the 7th January but I’m sure all will be ok.
Wishing everyone a happier & healthier 2022 & hope you’ve all had a great painless Christmas. Feeling a bit anxious as having my 1st Rituximab infusion on the 7th January but I’m sure all will be ok.
Whiskers64
in
NRAS
3 years ago
Venetoclax - Rituximab and diarrhea
Hello everyone, my mother has been on Venetoclax (400 mg a day) in combination with Rituximab (ones a month) for 2 months now. Bloods are improving but last few days she has having diarrhea. Anyone experienced diarrhea with Venetoclax ? In this case, how did you manage? I will be grateful for
Hello everyone, my mother has been on Venetoclax (400 mg a day) in combination with Rituximab (ones a month) for 2 months now. Bloods are improving but last few days she has having diarrhea. Anyone experienced diarrhea with Venetoclax ? In this case, how did you manage? I will be grateful for
Marymary19
in
CLL Support
3 years ago
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