Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
Be positive
Evening everyone - as usual this place gives me a lift - so much help and support from everyone. I'm reminded that a year ago I was mid FCR (6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA. My overriding
Evening everyone - as usual this place gives me a lift - so much help and support from everyone. I'm reminded that a year ago I was mid FCR (6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA. My overriding
MattGGibson
in
CLL Support
6 years ago
Alcohol
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Sailormoon11
in
CLL Support
6 years ago
My cancer is in remission – what does this mean?
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
AussieNeil
Partner
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Muscle Spasms - Not dehydrated
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these? At their worse, they actually pulse in intensity with the beating of my heart – yes, the intensity worsens with the beating of my
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these? At their worse, they actually pulse in intensity with the beating of my heart – yes, the intensity worsens with the beating of my
Paul_Mangold
in
CLL Support
6 years ago
Second day of first FCR
So second dose of FCR with the long dose of Rituximab. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now! Drinking lots of fluid as per all your wise words and looking forward
So second dose of FCR with the long dose of Rituximab. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now! Drinking lots of fluid as per all your wise words and looking forward
Mandy56
in
CLL Support
6 years ago
Hospital response to lack of monitoring after first FCR
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Mandy56
in
CLL Support
6 years ago
Rituximab pins and needles
Anybody else experienced this ? I had my infusion last Monday , Wednesday had pins and needles in my leg so much so that I had a numb foot .i stood up and my ankle buckled crashed to the floor and have broken my ankle .Ouch Currently off work and won’t be back for at least 2 months as my job involves
Anybody else experienced this ? I had my infusion last Monday , Wednesday had pins and needles in my leg so much so that I had a numb foot .i stood up and my ankle buckled crashed to the floor and have broken my ankle .Ouch Currently off work and won’t be back for at least 2 months as my job involves
Fifi2
in
NRAS
6 years ago
Query re Rituximab and being licensed treatment for lupus?
This is a query for one of my support group members. She has given me permission to post this, as we can’t solve her situation ourselves. So she has lupus and Sjögren’s etc. History of miscarriages and strokes. Very bad headaches. Etc. She has increasingly felt that her methotrexate isn’t working
This is a query for one of my support group members. She has given me permission to post this, as we can’t solve her situation ourselves. So she has lupus and Sjögren’s etc. History of miscarriages and strokes. Very bad headaches. Etc. She has increasingly felt that her methotrexate isn’t working
Wendy39
in
LUPUS UK
6 years ago
Just learning
Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had rituximab drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of
Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had rituximab drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of
HelenL75
in
LUPUS UK
6 years ago
Rituximab
Hi- has anyone received the Rituximab drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore swollen glands?
Hi- has anyone received the Rituximab drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore swollen glands?
yasmine
in
LUPUS UK
6 years ago
Anyone had FCR as second line treatment?
Hi all has any one had FCR for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Hi all has any one had FCR for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Mick491
in
CLL Support
6 years ago
Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?
My 16 year old daughter has been ill since September 2016 following an insect bite which didn't disappear, before then she was a bright, happy, healthy and active young girl. Ana negative neurophyschiatric SLE is suspected but no firm diagnosis yet. She suffers from memory loss, a constant headache,
My 16 year old daughter has been ill since September 2016 following an insect bite which didn't disappear, before then she was a bright, happy, healthy and active young girl. Ana negative neurophyschiatric SLE is suspected but no firm diagnosis yet. She suffers from memory loss, a constant headache,
Vickysmum
in
LUPUS UK
6 years ago
Just getting through the day. Do you find this a supportive site/ informative site?
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the RItuximab dose its magic! One weary lass.
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the RItuximab dose its magic! One weary lass.
Mougette
in
Vasculitis UK
6 years ago
Questions for consultant?
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
AntonMB
in
CLL Support
6 years ago
Treatmant for cll
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
nikolle
in
CLL America Support
6 years ago
First. FCR treatment
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Mandy56
in
CLL Support
6 years ago
Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
Hidden
in
CLL Support
6 years ago
Rash?! Sun, drugs or something else??
Hi all, I’m being treated for GPA with rituximab infusions and steroids, currently 20mg a day down from 60mg a day. I’ve developed a rash that started on my face and neck and is now on the back of my hands but nowhere else. My face seems to have died down a bit now. Still a bit red but looks more like
Hi all, I’m being treated for GPA with rituximab infusions and steroids, currently 20mg a day down from 60mg a day. I’ve developed a rash that started on my face and neck and is now on the back of my hands but nowhere else. My face seems to have died down a bit now. Still a bit red but looks more like
Wengle82
in
Vasculitis UK
6 years ago
Rituximab
Hi I've been on steroids and other lupus medication for 3 years now but no change in my active lupus and when doctor try to reduce steroids I end up with bad flare ups and in hospital. They now want to try me on this new medication 'Rituximab' infusion treatment. I was just wondering if anyone else has
Hi I've been on steroids and other lupus medication for 3 years now but no change in my active lupus and when doctor try to reduce steroids I end up with bad flare ups and in hospital. They now want to try me on this new medication 'Rituximab' infusion treatment. I was just wondering if anyone else has
Charl1503
in
LUPUS UK
6 years ago
Drug Induced Lupus?
Has anybody been diagnosed with this? I have had Sero positive RA for nearly 20 years, & have suddenly broken out in pinky red blotches all over my torso. They don't hurt or itch, & I don't have the Malar rash on my face. I'm on Rituximab infusions, & my Rheumatologist discounted that as the cause So
Has anybody been diagnosed with this? I have had Sero positive RA for nearly 20 years, & have suddenly broken out in pinky red blotches all over my torso. They don't hurt or itch, & I don't have the Malar rash on my face. I'm on Rituximab infusions, & my Rheumatologist discounted that as the cause So
AgedCrone
in
LUPUS UK
6 years ago
1
...
59
60
61
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest