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WBC over 200.000
Hello guys, I’m a general practitioner doctor from Turkey. I’ve been following this forum for a while, since my mom(she is 60 y.o.) was diagnosed with CLL 4 years ago. Her initial WBC was around 20.000. She has been on W&W schedule for all the time. Never got any treatment. On last visit to our hematologist
Hello guys, I’m a general practitioner doctor from Turkey. I’ve been following this forum for a while, since my mom(she is 60 y.o.) was diagnosed with CLL 4 years ago. Her initial WBC was around 20.000. She has been on W&W schedule for all the time. Never got any treatment. On last visit to our hematologist
cllmeonmycellphone
in
CLL Support
4 years ago
Side effects of RCD Chemotherapy
I have undergone 2 cycles of rituximab, cyclophosphamide and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance. Now after every cycle of RCD, I am experiencing extreme pain in my joints and having weakness
I have undergone 2 cycles of rituximab, cyclophosphamide and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance. Now after every cycle of RCD, I am experiencing extreme pain in my joints and having weakness
CLL4
in
CLL Support
4 years ago
Update on treatment after 2 RCHOP rounds
Just wanted to provide a little bit of an update. Had round 2 on Wednesday. Have no reactions when I'm having the treatment, apart from the Benedryl that makes me a bit woozy (but all good). The first treatment was over 6 hours, as they have to drip the Rituximab very slowly to see if there are any reactions
Just wanted to provide a little bit of an update. Had round 2 on Wednesday. Have no reactions when I'm having the treatment, apart from the Benedryl that makes me a bit woozy (but all good). The first treatment was over 6 hours, as they have to drip the Rituximab very slowly to see if there are any reactions
Russ70
in
Non Hodgkin's Lymphoma Friends
4 years ago
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Medication after Rituximab
Hi My OH is due for his second infusion following a relapse of his GPA. He was diagnosed 3 years ago and went into remission quickly after chemo infusions x 6. My question is does he also have an oral immune suppressant following this infusion. He presently takes 100mgs AZA and is on 30 mgs prednisone
Hi My OH is due for his second infusion following a relapse of his GPA. He was diagnosed 3 years ago and went into remission quickly after chemo infusions x 6. My question is does he also have an oral immune suppressant following this infusion. He presently takes 100mgs AZA and is on 30 mgs prednisone
Main1234
in
Vasculitis UK
4 years ago
Prednisone Taper
Hi guys, I’m on a prednisone taper while I wait for my rituximab (date tbc). The issue here is previously every time I lower my steroids I end up in hospital. I been 4 times in the last 9 weeks 3 operations spent a total of 5 weeks there. My case is rare as it affects my prostate. Urulogy do a short
Hi guys, I’m on a prednisone taper while I wait for my rituximab (date tbc). The issue here is previously every time I lower my steroids I end up in hospital. I been 4 times in the last 9 weeks 3 operations spent a total of 5 weeks there. My case is rare as it affects my prostate. Urulogy do a short
jagjitd
in
Vasculitis UK
4 years ago
Rituximab and Methotrexate
Who takes this together please as apparently it works better together?
Who takes this together please as apparently it works better together?
2210
in
NRAS
4 years ago
Pneumonia Booster
Has anyone had a problem getting their pneumonia booster ? My consultant has recommended to GP but it was refused. I am 3 years into remission after 4 sessions of Rituximab and Bendamustine Chemo. Apparently I don’t meet my Health Centres criteria. !
Has anyone had a problem getting their pneumonia booster ? My consultant has recommended to GP but it was refused. I am 3 years into remission after 4 sessions of Rituximab and Bendamustine Chemo. Apparently I don’t meet my Health Centres criteria. !
Content82
in
CLL Support
4 years ago
RITUXIMAB treatment
Hi Everyone, Due to pandemic I cannot travel hence not able to visit my Rheumatologist so, I started visiting a new doc and today she suggested a new treatment call RITUXIMAB. Has anyone done this treatment if yes, then please let me know how effective is it and any side effects. I get joint pain, stiffness
Hi Everyone, Due to pandemic I cannot travel hence not able to visit my Rheumatologist so, I started visiting a new doc and today she suggested a new treatment call RITUXIMAB. Has anyone done this treatment if yes, then please let me know how effective is it and any side effects. I get joint pain, stiffness
Jkan
in
LUPUS UK
4 years ago
In remission after FCR treatment for CLL 7yrs ago. Should I be shielding because of Covid? I did not have a letter from my GP. I am 63yrs.
Now in a household with 2 frontline health workers.
Now in a household with 2 frontline health workers.
Jessian2
in
CLL Support
4 years ago
V+O or FCR
Hi folks, I've been reading your posts for some time, but due to a lack of experience, I haven't been able to provide a response myself. but now I would like to ask your advice. briefly about the background: my husband was diagnosed in 2015 and has been on w & w since then. Due to a slowly but steadily
Hi folks, I've been reading your posts for some time, but due to a lack of experience, I haven't been able to provide a response myself. but now I would like to ask your advice. briefly about the background: my husband was diagnosed in 2015 and has been on w & w since then. Due to a slowly but steadily
Germanguest
in
CLL Support
4 years ago
What will the effects of Rituximab treatment be on the Co-Vid Vaccine when it comes out?
I was discussing with the Consultant about whether to have further treatments as he told me that there was evidence to show that it would have a negative impact on how effective the vaccine would be. At present my GPA is stable and I would want to keep it that way. I have had to weigh up likelihood
I was discussing with the Consultant about whether to have further treatments as he told me that there was evidence to show that it would have a negative impact on how effective the vaccine would be. At present my GPA is stable and I would want to keep it that way. I have had to weigh up likelihood
egre
in
Vasculitis UK
4 years ago
Pneumococcal vaccine
Hello all. I had the pneumococcal vaccine two or three years ago, then had FCR chemotherapy which finished in October 2018. I’ve been invited for a second pneumococcal jab next week. My haematologist is aware. I thought I’d check to see if anyone else has done the same, and if there’s any reason I shouldn
Hello all. I had the pneumococcal vaccine two or three years ago, then had FCR chemotherapy which finished in October 2018. I’ve been invited for a second pneumococcal jab next week. My haematologist is aware. I thought I’d check to see if anyone else has done the same, and if there’s any reason I shouldn
Graham2222
in
CLL Support
4 years ago
fatigue
Hi again. Different topic - fresh post. So here I am 2yrs and 4 mths post FCR (6 cycles) and several months of bone marrow not producing red cells (recovered from that 8mths ago) and I'm still struggling with erratic and intermittent debilitating fatigue. I understand this affects different cancer groups
Hi again. Different topic - fresh post. So here I am 2yrs and 4 mths post FCR (6 cycles) and several months of bone marrow not producing red cells (recovered from that 8mths ago) and I'm still struggling with erratic and intermittent debilitating fatigue. I understand this affects different cancer groups
Jotame
in
CLL Support
4 years ago
Myelodyplastic Syndrome (MDS)
Hi. In my previous post I wrote about reaching a point 18months after completing FCR where my bone marrow stopped producing red cells. This got a diagnosis of MDS which was expected to be irreversible. After several months and 6 blood transfusions I'm thrilled to say my marrow is back in action and
Hi. In my previous post I wrote about reaching a point 18months after completing FCR where my bone marrow stopped producing red cells. This got a diagnosis of MDS which was expected to be irreversible. After several months and 6 blood transfusions I'm thrilled to say my marrow is back in action and
Jotame
in
CLL Support
4 years ago
VA DISABILITY QUESTION
There have been a few questions lately regarding VA disability, Here's mine. I was first diagnosed in 2019 with CLL and started treatment in February of 2020 on B&R for 6 months. I had applied for VA disability because I was exposed to the water contamination at Camp Lejune for 2 1/2 years. I was given
There have been a few questions lately regarding VA disability, Here's mine. I was first diagnosed in 2019 with CLL and started treatment in February of 2020 on B&R for 6 months. I had applied for VA disability because I was exposed to the water contamination at Camp Lejune for 2 1/2 years. I was given
laldoroty
in
CLL Support
4 years ago
Rituximab
My rituximab infusion is badly delayed, though likely to happen in September. Has anyone had experience of moving for rituximab to a treatment you can administer yourself through regular injections? This delay isn’t doing me any good.
My rituximab infusion is badly delayed, though likely to happen in September. Has anyone had experience of moving for rituximab to a treatment you can administer yourself through regular injections? This delay isn’t doing me any good.
cathie
in
NRAS
4 years ago
Ibrutinib plus fludarabine, cyclophosphamide, and rituximab as initial treatment for younger patients with CLL
This is an abstract from the Lancet article. There's a fair bit of detail missing regarding the profile of the CLL patients in terms of IgHV mutation status etc and the follow up is still very short but they are claiming that this is the best response ever published in patients with CLL unrestricted
This is an abstract from the Lancet article. There's a fair bit of detail missing regarding the profile of the CLL patients in terms of IgHV mutation status etc and the follow up is still very short but they are claiming that this is the best response ever published in patients with CLL unrestricted
Jm954
Administrator
in
CLL Support
4 years ago
Rituximab Experience - Pros, Cons?
Any members have experience receiving rituximab? I have recurrent membranous glomerulonephritis in my transplanted organ - the disease that took my native kidneys. The drug mentioned above is the Drs current proposed course of action. Thanks in advance.
Any members have experience receiving rituximab? I have recurrent membranous glomerulonephritis in my transplanted organ - the disease that took my native kidneys. The drug mentioned above is the Drs current proposed course of action. Thanks in advance.
Donaldson0007
in
Kidney Transplant
4 years ago
Treatment with Rituximab
What are the common side effects of this treatment. I will be starting with Rituximab treatment this week
What are the common side effects of this treatment. I will be starting with Rituximab treatment this week
Tac118
in
CLL Support
4 years ago
Newbie here!
Hello! I’m new here (and new to MS!). I was diagnosed with RRMS in October 2019, so very new! Also, I’m a fairly new mom, I have a 2 year old little girl. I’m trying to figure it all out, but so glad I found this resource for questions/support. I started treatment with Rituximab and had a horrible reaction
Hello! I’m new here (and new to MS!). I was diagnosed with RRMS in October 2019, so very new! Also, I’m a fairly new mom, I have a 2 year old little girl. I’m trying to figure it all out, but so glad I found this resource for questions/support. I started treatment with Rituximab and had a horrible reaction
Jer29-11
in
My MSAA Community
4 years ago
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