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Rituximab and working in school
Hi, I’m just wondering what other people’s experiences are of having had Rituximab infusions and working in a primary school. I have been signed off by my GP as he feels that the risk of infection is too great for me . I am 58 and I also have Lupus SLE. I had my first infusion in January and will
Hi, I’m just wondering what other people’s experiences are of having had Rituximab infusions and working in a primary school. I have been signed off by my GP as he feels that the risk of infection is too great for me . I am 58 and I also have Lupus SLE. I had my first infusion in January and will
Seren65
in
Vasculitis UK
1 year ago
Rituximab Infusion
Hi , I had my first Rituximab infusion on 10th and then again on the 24th March. I’ve had numerous types of tablets / injections but unfortunately all had failed. I feel like my lupus & RA is just as bad as ever if not worse.. extreme fatigue, swollen hands, feet elbows just about every joint in
Hi , I had my first Rituximab infusion on 10th and then again on the 24th March. I’ve had numerous types of tablets / injections but unfortunately all had failed. I feel like my lupus & RA is just as bad as ever if not worse.. extreme fatigue, swollen hands, feet elbows just about every joint in
jon3120
in
LUPUS UK
1 year ago
Covid Booster - For Info
Hi all. Just to let you know I had my 8th Covid Jab yesterday (6 Pfizer and 2 Moderna so far, yesterday was Pfizer), managed to book appointment using the app no problem but what I did notice was 2 things. A/ Much less choice of vaccination centre, I ended up driving 23 miles. B/ More stringent checks
Hi all. Just to let you know I had my 8th Covid Jab yesterday (6 Pfizer and 2 Moderna so far, yesterday was Pfizer), managed to book appointment using the app no problem but what I did notice was 2 things. A/ Much less choice of vaccination centre, I ended up driving 23 miles. B/ More stringent checks
Investigator1
in
Vasculitis UK
1 year ago
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Rituximab infusion - side effects?!
Hi everyone, I am awaiting a rituximab infusion and i was just wondering how anyone whos had it reacted? How did you feel the next couple of days after? I am a medical student with exams coming up so I just want to pre-empt how much time I am going to need to rest! Do you need time off after it? Thank
Hi everyone, I am awaiting a rituximab infusion and i was just wondering how anyone whos had it reacted? How did you feel the next couple of days after? I am a medical student with exams coming up so I just want to pre-empt how much time I am going to need to rest! Do you need time off after it? Thank
nada28
in
LUPUS UK
1 year ago
Advice please!
Hi all, hope you are all ok and keeping safe. So, I have recently had my blood results and my consultant rang me as booked to tell me all my bloods are spot on, however my ANCA marker last July was 3.8, in January this year it had risen to 5.4, and in April down to 4.8. So I was a bit put back by that
Hi all, hope you are all ok and keeping safe. So, I have recently had my blood results and my consultant rang me as booked to tell me all my bloods are spot on, however my ANCA marker last July was 3.8, in January this year it had risen to 5.4, and in April down to 4.8. So I was a bit put back by that
Investigator1
in
Vasculitis UK
1 year ago
T-CELLs Collected
Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag
Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag
casanova
in
CLL Support
1 year ago
COVID positive 21 days
Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of Rituximab. Bloods are all fine and within normal ranges as the CLL responded well and very quickly at the start of treatment and I achieved (treatment
Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of Rituximab. Bloods are all fine and within normal ranges as the CLL responded well and very quickly at the start of treatment and I achieved (treatment
Rich316
in
CLL Support
1 year ago
Rituximab Reaction
Hey guys, on Thursday I went for my first (1of2) Rituximab infusions...although I've had two rounds before. I have it for my IgG4 disease which has affected my pancreas. Anyway, it didn't go quite to plan. 😪 I had the pre-meds and was then started on the Ritux at a slow rate. All was fine. Then
Hey guys, on Thursday I went for my first (1of2) Rituximab infusions...although I've had two rounds before. I have it for my IgG4 disease which has affected my pancreas. Anyway, it didn't go quite to plan. 😪 I had the pre-meds and was then started on the Ritux at a slow rate. All was fine. Then
madonbrew
Pioneer
in
Chronic Pancreatitis Support
1 year ago
alternative therapies
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started
MareeM
in
CLL Support
1 year ago
Rituximab finally but ..
Was finally approved this week for Ritibumax. Its been a very long 5 months waiting for them to tick the box and for me to get to the front of another invisible NHS queue. Problem is they want me to stop the Benepali this week and then I have 5 weeks before the first infusion. The nurses are calling
Was finally approved this week for Ritibumax. Its been a very long 5 months waiting for them to tick the box and for me to get to the front of another invisible NHS queue. Problem is they want me to stop the Benepali this week and then I have 5 weeks before the first infusion. The nurses are calling
RootsToots
in
NRAS
1 year ago
Rituximab timing of Covid2 vaccination
This might interest those on Rtx who are due a Covid vaccination……medwireNews: Findings from two studies suggest that among rituximab-treated patients, those with a longer time since their last infusion may be more likely to have an antibody response to vaccines against SARS-CoV-2. For the first
This might interest those on Rtx who are due a Covid vaccination……medwireNews: Findings from two studies suggest that among rituximab-treated patients, those with a longer time since their last infusion may be more likely to have an antibody response to vaccines against SARS-CoV-2. For the first
AgedCrone
in
NRAS
1 year ago
My chemo experience
I started with fludarabine and rituximab which wasn't great. I had feelings of hot and cold, spots before my eyes, vertigo and blacking out. My haematologist was there in minutes, lowered my dose and I was able to complete the course over 6 hours without further adverse effects. Subsequent treatments
I started with fludarabine and rituximab which wasn't great. I had feelings of hot and cold, spots before my eyes, vertigo and blacking out. My haematologist was there in minutes, lowered my dose and I was able to complete the course over 6 hours without further adverse effects. Subsequent treatments
kiwiCanuck
in
CLL Support
1 year ago
Brain shrinking
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
Kw55
in
Encephalitis International
1 year ago
RoActemera (tocilizumab) and headaches
after years of struggling with dcss I finally got the use of RoActemera approved. I’m 6 weeks n in noticing subtle changes already, altho it can take up to 6 months. I do a weekly injection. Problem is about 3 weeks ago I started with awful headaches n in the last week I’ve had 3 episodes that have been
after years of struggling with dcss I finally got the use of RoActemera approved. I’m 6 weeks n in noticing subtle changes already, altho it can take up to 6 months. I do a weekly injection. Problem is about 3 weeks ago I started with awful headaches n in the last week I’ve had 3 episodes that have been
momo17
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Viral infection to Covid and Flu booster gap.
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
JigFettler
Volunteer
in
CLL Support
9 months ago
Covid 19 and Rituximab
Hi all I hope you are all keeping well,I am writing today to see I anyone has any answers or info on my Situation.I have had covid 19 which I caught the last day I was in hospital, that was 21 days ago and still positive. I have had Rituximab at beginning of the year, the covid symptoms I have mostly
Hi all I hope you are all keeping well,I am writing today to see I anyone has any answers or info on my Situation.I have had covid 19 which I caught the last day I was in hospital, that was 21 days ago and still positive. I have had Rituximab at beginning of the year, the covid symptoms I have mostly
sorefeetsoldier
in
Vasculitis UK
1 year ago
Covid vaccine and rituximab
Hi All Can someone tell me please what is the time frame after having a covid jab that rituximab can be given? Many thanks
Hi All Can someone tell me please what is the time frame after having a covid jab that rituximab can be given? Many thanks
Galaxy2
in
Vasculitis UK
1 year ago
Doctor mentioned Richters???
I am on the Bruin trial and was randomized to Arm B which is Idelalisib and Rituximab ( 6 months of infusions ). My bloodwork so far has shown slight improvement since the start in January of this year. Now at my last blood work and appointment the doctor has noticed some lymph nodes increasing in size
I am on the Bruin trial and was randomized to Arm B which is Idelalisib and Rituximab ( 6 months of infusions ). My bloodwork so far has shown slight improvement since the start in January of this year. Now at my last blood work and appointment the doctor has noticed some lymph nodes increasing in size
rcusher
in
CLL Support
1 year ago
moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
10 months ago
mild struggles
hi. It’s been seven years since I was on this site. Diagnosed 2007. FCR. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54.
hi. It’s been seven years since I was on this site. Diagnosed 2007. FCR. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54.
Corin850
in
CLL Support
10 months ago
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