Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
What happens if I refuse a treatment?
Hi, I have seropositive Rheumatoid Arthritis and am currently on methotrexate and Rituximab infusions. I would like to know if anyone has ever refused treatment before and how that works. Essentially the hospital I am under keep loosing my paperwork and every year it is a battle to get my Rituximab infusions
Hi, I have seropositive Rheumatoid Arthritis and am currently on methotrexate and Rituximab infusions. I would like to know if anyone has ever refused treatment before and how that works. Essentially the hospital I am under keep loosing my paperwork and every year it is a battle to get my Rituximab infusions
JulezH
in
NRAS
1 year ago
Change to Rituximab
Hello lovely people. I'm dithering as the Amgevita I've been taking for the last six months has worked amazingly well, but with some side effects I can't tolerate. I have now been offered Rituximab and, looking at all the side effects I've scared myself silly. I'm not needle phobic when it's the auto-inject
Hello lovely people. I'm dithering as the Amgevita I've been taking for the last six months has worked amazingly well, but with some side effects I can't tolerate. I have now been offered Rituximab and, looking at all the side effects I've scared myself silly. I'm not needle phobic when it's the auto-inject
Gnarli
in
NRAS
1 year ago
Jak2 Inhibitors
Hi I was wondering what your experience of these drugs are. My Rheumy is considering putting me on them. I was on enbrel for 17 years till it stopped working. I’ve been o. Rituximab for 18 months but it doesn’t really help and my R.a. D damage has deteriorated. I would really appreciate your comments
Hi I was wondering what your experience of these drugs are. My Rheumy is considering putting me on them. I was on enbrel for 17 years till it stopped working. I’ve been o. Rituximab for 18 months but it doesn’t really help and my R.a. D damage has deteriorated. I would really appreciate your comments
debjw
in
NRAS
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
An indicator in the blood could guide lupus treatment
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Sjogrens and Eyes
Hi, I have Sjogrens and Lupus. On Rituximab Infusions. I was wondering if anyone has had little dots floating across their eye. ( just my right eye at the moment. ) I have the usual dry eyes and photosensitivity which has been very annoying of late. I find lights in shops very hard on eyes. I wear
Hi, I have Sjogrens and Lupus. On Rituximab Infusions. I was wondering if anyone has had little dots floating across their eye. ( just my right eye at the moment. ) I have the usual dry eyes and photosensitivity which has been very annoying of late. I find lights in shops very hard on eyes. I wear
Haired
in
Sjogren's Support
1 year ago
Rituximab
Hi all. I am 100+ days post transplant for AML. Doing well, driving, walking, working. Have been told though that a blood test has flagged up positive for the virus that causes glandular fever and they want me to have rituximab IV treatment in outpatients at Bham. Has anybody else had similar treatment
Hi all. I am 100+ days post transplant for AML. Doing well, driving, walking, working. Have been told though that a blood test has flagged up positive for the virus that causes glandular fever and they want me to have rituximab IV treatment in outpatients at Bham. Has anybody else had similar treatment
Platelets2022
in
Leukaemia Support
1 year ago
Treatment of PMR - Rituximab as a glucocorticoid sparing agent.
1-year results of treatment with rituximab in polymyalgia rheumatica: an extension study of a randomised double-blind placebo-controlled https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(23)00032-2/fulltext?dgcid=raven_jbs_aip_email After a single dose of rituximab (1000 mg), the proportion
1-year results of treatment with rituximab in polymyalgia rheumatica: an extension study of a randomised double-blind placebo-controlled https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(23)00032-2/fulltext?dgcid=raven_jbs_aip_email After a single dose of rituximab (1000 mg), the proportion
Exflex
in
PMRGCAuk
1 year ago
What’s next?
I was diagnosed, in December of 2018, with CLL and placed on W&W. Less than a year later I started FCR. After completing FCR my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly
I was diagnosed, in December of 2018, with CLL and placed on W&W. Less than a year later I started FCR. After completing FCR my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly
Pokerguy
in
CLL Support
11 months ago
acalabrutinib and tegretol
Hi everyone My 70-year-old father had FCR five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol. We’re obviously not thrilled about it but
Hi everyone My 70-year-old father had FCR five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol. We’re obviously not thrilled about it but
MelaniePet
in
CLL Support
11 months ago
Rituximab infusion
Hi all, have my infusion tomorrow but have a slight cold with some mucus being coughed up and am worried if the infusion can still go ahead, your thoughts and knowledge please as I have to be at addenbrooke's at 8-50 am.
Hi all, have my infusion tomorrow but have a slight cold with some mucus being coughed up and am worried if the infusion can still go ahead, your thoughts and knowledge please as I have to be at addenbrooke's at 8-50 am.
Cookyboy1
in
Vasculitis UK
1 year ago
Advice on Rituximab
Hi everyone, I'm struggling a bit with making a decision and I'd really appreciate some thoughts on this. I saw the registrar a few weeks ago and my rash (suspected to be the SCLE rash) has been flaring and a few other symptoms too been going on for about 6 months. The dr asked me what has helped in
Hi everyone, I'm struggling a bit with making a decision and I'd really appreciate some thoughts on this. I saw the registrar a few weeks ago and my rash (suspected to be the SCLE rash) has been flaring and a few other symptoms too been going on for about 6 months. The dr asked me what has helped in
BookishVibes
in
LUPUS UK
1 year ago
Tocilizumab for systemic sclerosis (with mild ILD) - any skin improvement?
Hello dear community, I have systemic sclerosis with mild ILD. Although my lung fibrosis is mild, my skin situation is getting worse. Initially I was recommended to start Rituximab (both by rheumatologist and respiratory doctor) , now a few days ago I received a call from Dr. to tell me that the final
Hello dear community, I have systemic sclerosis with mild ILD. Although my lung fibrosis is mild, my skin situation is getting worse. Initially I was recommended to start Rituximab (both by rheumatologist and respiratory doctor) , now a few days ago I received a call from Dr. to tell me that the final
FelixFelicis
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Windermere
I had FCR in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
I had FCR in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
Windemere
in
CLL Support
11 months ago
UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today
Probably one of the best news stories that we have been able to announce in many years for patients in England and Wales. We are absolutely delighted that this effective treatment is now available for ALL CLL patients as their first treatment if their doctor feels it is appropriate. This treatment
Probably one of the best news stories that we have been able to announce in many years for patients in England and Wales. We are absolutely delighted that this effective treatment is now available for ALL CLL patients as their first treatment if their doctor feels it is appropriate. This treatment
Jm954
Administrator
in
CLL Support
1 year ago
‘Tame The Beast’ ….. I’m sharing for anyone who’s never seen this & am interested in your thoughts ….. https://youtu.be/ikUzvSph7Z4
I was told about this a few days ago by the APP (Advanced Physio Practitioner) at my GP surgery, (It may well be already on Lupus UK somewhere). Yes, neuropathic pain was explained to me a long time ago plus I learned all about how pain is transmitted to the brain during Human Biology lessons approx
I was told about this a few days ago by the APP (Advanced Physio Practitioner) at my GP surgery, (It may well be already on Lupus UK somewhere). Yes, neuropathic pain was explained to me a long time ago plus I learned all about how pain is transmitted to the brain during Human Biology lessons approx
Turquoise-1
in
LUPUS UK
1 year ago
Pain Relief Suggestions
Hello Everyone My first time posting, but i do read the posts that are relevant. Bit of background first: I am hoping for some new ideas. I have had RA since 2010, beautifully controlled by Enbrel. Unfortunately a few years ago I was told I had to go onto a bio similar. I was very anxious about changing
Hello Everyone My first time posting, but i do read the posts that are relevant. Bit of background first: I am hoping for some new ideas. I have had RA since 2010, beautifully controlled by Enbrel. Unfortunately a few years ago I was told I had to go onto a bio similar. I was very anxious about changing
EarthRock
in
NRAS
1 year ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
1 year ago
This one is a bit "left field" but here goes...
"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new mountain bike. BUT... bear with me... I have been 5yrs remission since FCR, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection
"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new mountain bike. BUT... bear with me... I have been 5yrs remission since FCR, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection
JigFettler
Volunteer
in
CLL Support
1 year ago
Update and the end of Ibrutinib
Taking Ibrutinib since 2015 and ends 12/22 after tough end of the year 2022 chronically what was happened : start with strong a strong flu in mid November,couldn't do anything,been only in bed 2 weeks added stomach problems , had to go in hospital and diagnosed with stomach ulcer doctor stopped taking
Taking Ibrutinib since 2015 and ends 12/22 after tough end of the year 2022 chronically what was happened : start with strong a strong flu in mid November,couldn't do anything,been only in bed 2 weeks added stomach problems , had to go in hospital and diagnosed with stomach ulcer doctor stopped taking
guyhighlander
in
CLL Support
1 year ago
Rituximab side effect or stomach bug?
Hi All, My younger sister has been diagnosed with a rare and very progressive form of SLE, that’s affected her organs and vision. She’s had some intensive treatment, that has concluded with her 2nd dose of Rituximab. Unfortunately she’s been experiencing symptoms such as watery diarrhoea, vomiting and
Hi All, My younger sister has been diagnosed with a rare and very progressive form of SLE, that’s affected her organs and vision. She’s had some intensive treatment, that has concluded with her 2nd dose of Rituximab. Unfortunately she’s been experiencing symptoms such as watery diarrhoea, vomiting and
Gooner786
in
LUPUS UK
1 year ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest