My name is David, I'm 24 and I live in LA.
About six months or so, I developed a distinct pain at the head/tip of my penis. I was sexually active at the time, so I figured I may have caught an STD or maybe just had UTI. Got tested for multiple STDs and infections by various urologists and doctors and was negative multiple times, however I was still treated with various antibiotics (doxy, azithromycin, rocephin, cipro, etc.). I also had my prostate examined by ultrasound and a cystoscopy which was also clear.
Meanwhile, my pain began to worsen. The last couple weeks the pain there has gotten so intense and acute that I haven't been able to function. I was in the ER twice the past few days for pain, and only today after consulting with an ER doctor/urologist did I begin to realize and accept the possibility of nerve damage or entrapment (espeicallly after they did ultrasounds of my kidney and bladder and all was good). At the ER I was put on Elavil & Gabapentin for nerve pain and given toradol for pain (my pain was so bad at the hospital they gave me morphine and the only thing that brought the pain down from a 9-10/10 to 6-7/10 was toradol).
At this point I'm at a loss of what to do and how to move forward. I cannot live with this pain- it's unbearable- and I do not want to live like this. Have any of you expirenced such dramatic and debilitating pain in this area without any explanation?
I'm not sure how I got this or what caused it. About a month before I noticed the pain, I was in a car accident. It wasn't a major accident and I left the scene with just scratches.
I also have kyphosis, about a 60 degree curvature, and so I'm wondering if it's possible that my lumbar or especially sacral spine is compressing or putting pressure on the pudendal nerve and is causing this pain. I was going to get spinal fusion surgery for my back to correct the kyphosis soon b/c of pain there and some curve progression, but now I'm not so sure what to do.
This whole thing has totally changed my life. I'm depressed and scared. Does anyone here have any stories of success with treatment? Is possible that someday I could be somewhat or totally cured? Do you know of any good doctors in LA or even in the state who can treat this? Can nerve blocks be successful in reliving pain? If my pain is this severe, is the nerve for sure entrapped? Will I need surgery and who/where should I turn to if i do? Can I have sex or should I stop and let it heal for awhile? Will sex aggravate the nerve further or does it not make a difference?
I have a ton more questions, but I'll start with this. Any feedback or thoughts are greatly appreciated.