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Ceftazidime intravenous infusion
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Rare diagnosis
I’m 39 years old and was just diagnosed with MADSAM neuropathy (Lewis Sumner Syndrome). Does anyone else have this? I know it’s extremely rare. Just wondering if anyone else on this site happens to have the same thing. I start IVIg treatments next week.
I’m 39 years old and was just diagnosed with MADSAM neuropathy (Lewis Sumner Syndrome). Does anyone else have this? I know it’s extremely rare. Just wondering if anyone else on this site happens to have the same thing. I start IVIg treatments next week.
1inamillion
in
Neuropathy Support
6 years ago
Life with ITP with no steroids
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
hannaITP
in
ITP Support Association
6 years ago
ITP - Not Taking Medication - Feedback
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Bueller
in
ITP Support Association
6 years ago
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Platelet count raised from 15k to 63k in a week
I’m too excited to share this! Since my discharged from hospital last two weeks, my platelet count was 32k after IVIG (from 5k), within 5 days dropped to 15k. Today (after 2 weeks) I went to check up again it was 63k! Wow I’m thrilled! I did not change any special medication, my existing medication is
I’m too excited to share this! Since my discharged from hospital last two weeks, my platelet count was 32k after IVIG (from 5k), within 5 days dropped to 15k. Today (after 2 weeks) I went to check up again it was 63k! Wow I’m thrilled! I did not change any special medication, my existing medication is
Yoyoyeoh
in
ITP Support Association
6 years ago
Curious how many people with ITP were in a third world country just prior to getting ITP?
Hi, I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional
Hi, I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional
CDmom
in
ITP Support Association
6 years ago
Platelets & me
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
conquerator2
in
ITP Support Association
6 years ago
Ulcer Preventing Drugs?
So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers, anal ulcers, and oh so fun vaginal ulcers, too. The doctors are suggesting we add an oral drug into the mix. The concern is that I may be forming
So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers, anal ulcers, and oh so fun vaginal ulcers, too. The doctors are suggesting we add an oral drug into the mix. The concern is that I may be forming
NerdyChristina
in
Behçet's UK
6 years ago
IVIG Infusions
Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid. Anyone have experience with this? My first infusion is in 2 weeks. Thanks.
Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid. Anyone have experience with this? My first infusion is in 2 weeks. Thanks.
bayside64
in
CLL Support
6 years ago
Venetoclax and mouth sores
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018. I got Dermatomyositis (skin & Muscle) autoimmune disorder shortly after I started Ibrutinib and when it showed
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018. I got Dermatomyositis (skin & Muscle) autoimmune disorder shortly after I started Ibrutinib and when it showed
Eliotf
in
CLL Support
6 years ago
B12 could it be something else/France/injections
Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and needles in my feet, then to hands and even in face, tip of nose etc. then followed patches of numbness in my ankles and wrists, fasculations everywhere
Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and needles in my feet, then to hands and even in face, tip of nose etc. then followed patches of numbness in my ankles and wrists, fasculations everywhere
lunez22
in
Pernicious Anaemia Society
6 years ago
Chronic itp
My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she
My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she
sreea_dey90
in
ITP Support Association
6 years ago
I am a newby here, but not to ADD!
I knew I was different most of my life, but tried to hide it. Hurt my back at work, had a spinal fusion which worked very well. But i was at a conference and was given a fruit smoothie which turned into the worst food poisoning I could ever imagine. to keep it short I lost consciousness and my forehead
I knew I was different most of my life, but tried to hide it. Hurt my back at work, had a spinal fusion which worked very well. But i was at a conference and was given a fruit smoothie which turned into the worst food poisoning I could ever imagine. to keep it short I lost consciousness and my forehead
StoneJeweler
in
CHADD's Adult ADHD Support
6 years ago
Treatments
What treatments have you used and were they effective? Our hemo says there are two options for my son aged 2. Steriods or IVIG. Steroids failed us and we are currently laying in the best praying IVIG works. I asked my hemo what happens if this doesnt work and she said "then we are going to be extremely
What treatments have you used and were they effective? Our hemo says there are two options for my son aged 2. Steriods or IVIG. Steroids failed us and we are currently laying in the best praying IVIG works. I asked my hemo what happens if this doesnt work and she said "then we are going to be extremely
Shoni89
in
ITP Support Association
6 years ago
APS and my Pregnancy. Advice?
Hi there, I’m a newbie and am so happy to have found you guys. We lost our baby girl a few months ago at 22 weeks I tested positive for antiphospholipid antibodies when I was a little younger, but it was never a concern until I got married and wanted to be on birth control. Only then did we realize
Hi there, I’m a newbie and am so happy to have found you guys. We lost our baby girl a few months ago at 22 weeks I tested positive for antiphospholipid antibodies when I was a little younger, but it was never a concern until I got married and wanted to be on birth control. Only then did we realize
lkn89
in
Hughes Syndrome APS Forum
6 years ago
Fibromyalgia Patients Who Undergo Spinal Fusion Surgery Have More Postoperative Complications, Study Suggests
https://fibromyalgianewstoday.com/2018/08/02/fibromyalgia-patients-spinal-fusion-surgery-more-complications-costs Surgery was offered to me at one point. I refused, I'm agoraphobic and the 12-month rehab scared the hell out of me, let alone the rest of it. I have been sat here trying to understand what
https://fibromyalgianewstoday.com/2018/08/02/fibromyalgia-patients-spinal-fusion-surgery-more-complications-costs Surgery was offered to me at one point. I refused, I'm agoraphobic and the 12-month rehab scared the hell out of me, let alone the rest of it. I have been sat here trying to understand what
FancyTramp
in
Fibromyalgia Action UK
6 years ago
Severe ITP problem..6 months baby
Hi, My baby suffer from ITP from last three months. My Baby born on 1st February 2018 with cesarean delivery. Birth time baby active no other side effects. After one and half months small red pumples came take treatment with skin doctor. They give lotion and cream. We applied and red pumples all are
Hi, My baby suffer from ITP from last three months. My Baby born on 1st February 2018 with cesarean delivery. Birth time baby active no other side effects. After one and half months small red pumples came take treatment with skin doctor. They give lotion and cream. We applied and red pumples all are
ArjunBangalore
in
ITP Support Association
6 years ago
Nplate didn't has any effect
My wife had an inject of Nplate 5 days ago Her platelets count was 76 before inject Now after 5days of inject she has 72 count of platelete It seem Nplate didn't has any effect on my wife, what is reason? She had treatment with ivig and rituximub in the past, and those drugs didn't has complete effect
My wife had an inject of Nplate 5 days ago Her platelets count was 76 before inject Now after 5days of inject she has 72 count of platelete It seem Nplate didn't has any effect on my wife, what is reason? She had treatment with ivig and rituximub in the past, and those drugs didn't has complete effect
hamid_80386
in
ITP Support Association
6 years ago
Enlarged spleen
My son was first diagnosed with ITP in 2016 with platelets in 4 ; he was 17 years old.He was in the hospital for 2 weeks and received IVIG and winRho. The adverse reactions to this two medications were really nasty to the point that the hematologist decided that he is allergic to both of them and don
My son was first diagnosed with ITP in 2016 with platelets in 4 ; he was 17 years old.He was in the hospital for 2 weeks and received IVIG and winRho. The adverse reactions to this two medications were really nasty to the point that the hematologist decided that he is allergic to both of them and don
Buickriviera88
in
ITP Support Association
6 years ago
What can I expect this time round.
Hi everyone. Been off line for a while due to various little issues.Knew there was a problem,but this week its hit home big style and now I have a worrying few days ahead. It started a couple of weeks ago when I had my 3 monthly check up,I had been feeling out of sorts for a couple of weeks and thought
Hi everyone. Been off line for a while due to various little issues.Knew there was a problem,but this week its hit home big style and now I have a worrying few days ahead. It started a couple of weeks ago when I had my 3 monthly check up,I had been feeling out of sorts for a couple of weeks and thought
saintjohn
in
CLL Support
6 years ago
Dex steriods
My son (2) had a relapse of hos itp and has started nose bleeding. Our choices were IVIG or dex steroids. We went with dex as he has croup. Did it work for anyone and how long were your platelets up for?
My son (2) had a relapse of hos itp and has started nose bleeding. Our choices were IVIG or dex steroids. We went with dex as he has croup. Did it work for anyone and how long were your platelets up for?
Shoni89
in
ITP Support Association
6 years ago
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