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Ceftazidime intravenous infusion
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Why is the vien where canulla was inserted in hand, sore I can feel vien is hard to touch from my hand to near elbow!! Any thoughts?
Had full spinal fusion April 2018 then a fall on concrete steps July same year, because of back pain from op I didn't realize I had done any damage had x-ray they found 6 screws and the metal hooks had come out, had an op 3rd Feb to put it right from about a week after my arm been hurting and can feel
Had full spinal fusion April 2018 then a fall on concrete steps July same year, because of back pain from op I didn't realize I had done any damage had x-ray they found 6 screws and the metal hooks had come out, had an op 3rd Feb to put it right from about a week after my arm been hurting and can feel
elvistait
in
Endometriosis UK
6 years ago
Confused
Hi all, I’m new here. Basically I’ve struggled for years with different ailments and was treated with so many different medications, my gps got fed up with me. Despite many obvious problems throughout my life I’ve always pushed on. My eldest daughter I nearly lost when I was pregnant. I was basically
Hi all, I’m new here. Basically I’ve struggled for years with different ailments and was treated with so many different medications, my gps got fed up with me. Despite many obvious problems throughout my life I’ve always pushed on. My eldest daughter I nearly lost when I was pregnant. I was basically
Oliveoi
in
LUPUS UK
6 years ago
Nerve pain left leg 24/7
In 2015 left leg pain started. Diagnosis a year later via several MRIs was l4/l5 spondylolisthesis, disk herniation, central stenosis, pinched exiting nerves. Three surgeons sugested fusion, one suggested laminectomy. I elected the later in 2016. it did not work. Contrary, i had increased pain. i tried
In 2015 left leg pain started. Diagnosis a year later via several MRIs was l4/l5 spondylolisthesis, disk herniation, central stenosis, pinched exiting nerves. Three surgeons sugested fusion, one suggested laminectomy. I elected the later in 2016. it did not work. Contrary, i had increased pain. i tried
mngp
in
Pain Concern
6 years ago
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Decision Time
Hi all, I was diagnosed with thrombocytopenia in 2007 and over the years , my low platelets were managed with IVIG, prednisolone and Rituximab. However, now in my mid 60's the yo-yoing platelets is becoming more often and 3 different haematologists have urged me to go on a more "long term", treatment
Hi all, I was diagnosed with thrombocytopenia in 2007 and over the years , my low platelets were managed with IVIG, prednisolone and Rituximab. However, now in my mid 60's the yo-yoing platelets is becoming more often and 3 different haematologists have urged me to go on a more "long term", treatment
Rafiq
in
ITP Support Association
6 years ago
Kimsome
Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR. In my case the sickness now supposedly in remission but continued to make me critically ill even when it was over. If fact, I was in and out
Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR. In my case the sickness now supposedly in remission but continued to make me critically ill even when it was over. If fact, I was in and out
Kimsome
in
CLL Support
6 years ago
Ivig therapy
Just came from the drs office. My iGg levels dropped again to IGM 21, IGA 27, IGG 213 Dr wants to start replacement therapy:(. He also started talking about me having MONOCLONAL B-cell lymphocytisos. Is that a precursor to cll which I was originally diagnosed with? My white blood cell count has remained
Just came from the drs office. My iGg levels dropped again to IGM 21, IGA 27, IGG 213 Dr wants to start replacement therapy:(. He also started talking about me having MONOCLONAL B-cell lymphocytisos. Is that a precursor to cll which I was originally diagnosed with? My white blood cell count has remained
Downriver555
in
CLL Support
6 years ago
CLL, Medicare & support meds
Hello all. I am about to retire (Mar 1) AND about to begin treatment for CLL - meaning we lose company sponsored BCBS and sign up for Medicare part D. I've been on the Medicare website and have an idea what Ibrutinib will cost on Medicare. I'm especially concerned about the "extra's" for CLL: neutrophil
Hello all. I am about to retire (Mar 1) AND about to begin treatment for CLL - meaning we lose company sponsored BCBS and sign up for Medicare part D. I've been on the Medicare website and have an idea what Ibrutinib will cost on Medicare. I'm especially concerned about the "extra's" for CLL: neutrophil
misterbee
in
CLL Support
6 years ago
TKR April 2018 stiffness and sore at 7 months out.
Hi, Im 7 months out of TKR and wish I had never had this surgery. My knee is very mechanical feeling, sore and stiff. I have pretty good range of motion but not w/o pain. I dont need any pain meds and I dont take any RX or OTC drugs. I suspect my spine is the culprit as Ive have spinal fusion at L3-L5
Hi, Im 7 months out of TKR and wish I had never had this surgery. My knee is very mechanical feeling, sore and stiff. I have pretty good range of motion but not w/o pain. I dont need any pain meds and I dont take any RX or OTC drugs. I suspect my spine is the culprit as Ive have spinal fusion at L3-L5
Hidden
in
Pain Concern
6 years ago
Unexpected elevated and erratic blood pressure
Please could the community help with answers on my recent readings of elevated systolic blood pressure. I have been on Eutroxtig for about 25 years and always been very healthy with normal or low blood pressure of between 110-120/80mm Hg and resting heart rate of around 54 bpm. I'm vegetarian, weight
Please could the community help with answers on my recent readings of elevated systolic blood pressure. I have been on Eutroxtig for about 25 years and always been very healthy with normal or low blood pressure of between 110-120/80mm Hg and resting heart rate of around 54 bpm. I'm vegetarian, weight
maggiesloper
in
Thyroid UK
6 years ago
Fatigue?
Hi everyone good to read posts.I have had. Two days of IVIG for the scleroderma but do not feel so well ache all over and keep going to. Sleep.!Does anyone else feel fatigued all the time? I also have osteoporosis so not very active due to fractures. It is so helpful to belong to this group and my thoughts
Hi everyone good to read posts.I have had. Two days of IVIG for the scleroderma but do not feel so well ache all over and keep going to. Sleep.!Does anyone else feel fatigued all the time? I also have osteoporosis so not very active due to fractures. It is so helpful to belong to this group and my thoughts
Selsey
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
New :)
Hi, I’ve just joined as I’m currently under investigation for EDS, but we are unsure what type. I have a rheumatologist appointment on Tuesday and it seems it is with a really good Dr, he is also a medical director or something fancy like that. I’m just wondering what may happen? My GP completely
Hi, I’ve just joined as I’m currently under investigation for EDS, but we are unsure what type. I have a rheumatologist appointment on Tuesday and it seems it is with a really good Dr, he is also a medical director or something fancy like that. I’m just wondering what may happen? My GP completely
laurenamy_p
in
Ehlers-Danlos Support UK
6 years ago
Introduction
Hi, I was diagnosed with RA age 24, after a deep personal trauma and acute stress. However, I feel like I have always had symptoms since I was a child - I loved gymnastics and despite being a robust, healthy child, doing anything too extravagant always caused me pain (handstands). As a teenager, I
Hi, I was diagnosed with RA age 24, after a deep personal trauma and acute stress. However, I feel like I have always had symptoms since I was a child - I loved gymnastics and despite being a robust, healthy child, doing anything too extravagant always caused me pain (handstands). As a teenager, I
roisin84
in
NRAS
6 years ago
Newly diagnosed
I was diagnosed in late September 2018 when I woke up with a bloody mouth and oral sores to find out my platelets were below 1,000.... was hospitalized for 3 days and given high doses of prednisone and IVIG treatments. When I left the hospital my numbers were 98,000 but I saw a steady drop back to 13,000
I was diagnosed in late September 2018 when I woke up with a bloody mouth and oral sores to find out my platelets were below 1,000.... was hospitalized for 3 days and given high doses of prednisone and IVIG treatments. When I left the hospital my numbers were 98,000 but I saw a steady drop back to 13,000
CrowesyITP
in
ITP Support Association
6 years ago
SO BAD OFF READY TO GIVE UP
I HAD A DOCTOR DO THE WRONG SURGERY ON ME IN 2005. I WAS NEVER GIVEN ANYTHING FOR PAIN AFTER A 8 1/2 LONG SPINAL FUSION. HE SNIPPED MY SPINAL CORD CAUSING ME TO HAVE A NEUROGENIC BOWEL/BLADDER. THE YANKED ME OFF THE OR TABLE VS USING THE DRAW SHEETS CREATING RSD WHICH TODAY ITS CALLED CRPS CHRONIC REGIONAL
I HAD A DOCTOR DO THE WRONG SURGERY ON ME IN 2005. I WAS NEVER GIVEN ANYTHING FOR PAIN AFTER A 8 1/2 LONG SPINAL FUSION. HE SNIPPED MY SPINAL CORD CAUSING ME TO HAVE A NEUROGENIC BOWEL/BLADDER. THE YANKED ME OFF THE OR TABLE VS USING THE DRAW SHEETS CREATING RSD WHICH TODAY ITS CALLED CRPS CHRONIC REGIONAL
DEPRESANXIETYPAIN
in
Anxiety and Depression Support
6 years ago
Platelet count decreased within month of IVIG
Hi, all, My daughter (6.5years) is diagnosed with with ITP, the platelet count dropped to 8000, doctor suggested IVIG as 2 mg per kg, the count slowly increased from 8000...40000...160000 and then 423000 within 10 days. however when we did test after 40day, it got dropped to 70000, what should we
Hi, all, My daughter (6.5years) is diagnosed with with ITP, the platelet count dropped to 8000, doctor suggested IVIG as 2 mg per kg, the count slowly increased from 8000...40000...160000 and then 423000 within 10 days. however when we did test after 40day, it got dropped to 70000, what should we
Yeldha
in
ITP Support Association
6 years ago
I'm new here...
I was diagnosed with ITP April 2018 with a platelet count of 1,000. It's been a rough journey trying different medications. I tried prednisone, dexamethasone, Rituxin and nothing worked. I had an IVIG in the hospital and my counts rose to 12,000. I am currently taking N-plate every week and its keeping
I was diagnosed with ITP April 2018 with a platelet count of 1,000. It's been a rough journey trying different medications. I tried prednisone, dexamethasone, Rituxin and nothing worked. I had an IVIG in the hospital and my counts rose to 12,000. I am currently taking N-plate every week and its keeping
gigi15
in
ITP Support Association
6 years ago
What is your plan?
"YOU" do have a plan don't "YOU"? Just breathing another day is a good start but it is not really a plan. Okay "YOU" have decided on your Disease Modifying Therapy(DMT), "YOU" have an eating plan that "YOU," think is healthy and "YOU" can stick to. Amazon has the cutest protective underwear on
"YOU" do have a plan don't "YOU"? Just breathing another day is a good start but it is not really a plan. Okay "YOU" have decided on your Disease Modifying Therapy(DMT), "YOU" have an eating plan that "YOU," think is healthy and "YOU" can stick to. Amazon has the cutest protective underwear on
RoyceNewton
in
My MSAA Community
6 years ago
Newbie
Hello! I just received my second ivig treatment. The first resulted in a trip to the ER because of Charlie horse muscle spasms and migraines. In was getting sick with a virus. I just had my second infusion. The spasms aren't as bad, but I've had a headache for three days. Each day has been easier than
Hello! I just received my second ivig treatment. The first resulted in a trip to the ER because of Charlie horse muscle spasms and migraines. In was getting sick with a virus. I just had my second infusion. The spasms aren't as bad, but I've had a headache for three days. Each day has been easier than
musicteach85
in
CLL Support
6 years ago
Chronic inflammatory demylinating polyneuropathy (CIDP), MS, & autoimmune issues
I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there
I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there
Julietkellykidwell
in
Healthy Evidence
6 years ago
Getting in touch second time not used to emailing!H
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends
Selsey
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
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