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Ceftazidime intravenous infusion
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Introduction
Hi, I was diagnosed with RA age 24, after a deep personal trauma and acute stress. However, I feel like I have always had symptoms since I was a child - I loved gymnastics and despite being a robust, healthy child, doing anything too extravagant always caused me pain (handstands). As a teenager, I
Hi, I was diagnosed with RA age 24, after a deep personal trauma and acute stress. However, I feel like I have always had symptoms since I was a child - I loved gymnastics and despite being a robust, healthy child, doing anything too extravagant always caused me pain (handstands). As a teenager, I
roisin84
in
NRAS
6 years ago
Newly diagnosed
I was diagnosed in late September 2018 when I woke up with a bloody mouth and oral sores to find out my platelets were below 1,000.... was hospitalized for 3 days and given high doses of prednisone and IVIG treatments. When I left the hospital my numbers were 98,000 but I saw a steady drop back to 13,000
I was diagnosed in late September 2018 when I woke up with a bloody mouth and oral sores to find out my platelets were below 1,000.... was hospitalized for 3 days and given high doses of prednisone and IVIG treatments. When I left the hospital my numbers were 98,000 but I saw a steady drop back to 13,000
CrowesyITP
in
ITP Support Association
6 years ago
SO BAD OFF READY TO GIVE UP
I HAD A DOCTOR DO THE WRONG SURGERY ON ME IN 2005. I WAS NEVER GIVEN ANYTHING FOR PAIN AFTER A 8 1/2 LONG SPINAL FUSION. HE SNIPPED MY SPINAL CORD CAUSING ME TO HAVE A NEUROGENIC BOWEL/BLADDER. THE YANKED ME OFF THE OR TABLE VS USING THE DRAW SHEETS CREATING RSD WHICH TODAY ITS CALLED CRPS CHRONIC REGIONAL
I HAD A DOCTOR DO THE WRONG SURGERY ON ME IN 2005. I WAS NEVER GIVEN ANYTHING FOR PAIN AFTER A 8 1/2 LONG SPINAL FUSION. HE SNIPPED MY SPINAL CORD CAUSING ME TO HAVE A NEUROGENIC BOWEL/BLADDER. THE YANKED ME OFF THE OR TABLE VS USING THE DRAW SHEETS CREATING RSD WHICH TODAY ITS CALLED CRPS CHRONIC REGIONAL
DEPRESANXIETYPAIN
in
Anxiety and Depression Support
6 years ago
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Platelet count decreased within month of IVIG
Hi, all, My daughter (6.5years) is diagnosed with with ITP, the platelet count dropped to 8000, doctor suggested IVIG as 2 mg per kg, the count slowly increased from 8000...40000...160000 and then 423000 within 10 days. however when we did test after 40day, it got dropped to 70000, what should we
Hi, all, My daughter (6.5years) is diagnosed with with ITP, the platelet count dropped to 8000, doctor suggested IVIG as 2 mg per kg, the count slowly increased from 8000...40000...160000 and then 423000 within 10 days. however when we did test after 40day, it got dropped to 70000, what should we
Yeldha
in
ITP Support Association
6 years ago
I'm new here...
I was diagnosed with ITP April 2018 with a platelet count of 1,000. It's been a rough journey trying different medications. I tried prednisone, dexamethasone, Rituxin and nothing worked. I had an IVIG in the hospital and my counts rose to 12,000. I am currently taking N-plate every week and its keeping
I was diagnosed with ITP April 2018 with a platelet count of 1,000. It's been a rough journey trying different medications. I tried prednisone, dexamethasone, Rituxin and nothing worked. I had an IVIG in the hospital and my counts rose to 12,000. I am currently taking N-plate every week and its keeping
gigi15
in
ITP Support Association
6 years ago
What is your plan?
"YOU" do have a plan don't "YOU"? Just breathing another day is a good start but it is not really a plan. Okay "YOU" have decided on your Disease Modifying Therapy(DMT), "YOU" have an eating plan that "YOU," think is healthy and "YOU" can stick to. Amazon has the cutest protective underwear on
"YOU" do have a plan don't "YOU"? Just breathing another day is a good start but it is not really a plan. Okay "YOU" have decided on your Disease Modifying Therapy(DMT), "YOU" have an eating plan that "YOU," think is healthy and "YOU" can stick to. Amazon has the cutest protective underwear on
RoyceNewton
in
My MSAA Community
6 years ago
Newbie
Hello! I just received my second ivig treatment. The first resulted in a trip to the ER because of Charlie horse muscle spasms and migraines. In was getting sick with a virus. I just had my second infusion. The spasms aren't as bad, but I've had a headache for three days. Each day has been easier than
Hello! I just received my second ivig treatment. The first resulted in a trip to the ER because of Charlie horse muscle spasms and migraines. In was getting sick with a virus. I just had my second infusion. The spasms aren't as bad, but I've had a headache for three days. Each day has been easier than
musicteach85
in
CLL Support
6 years ago
Chronic inflammatory demylinating polyneuropathy (CIDP), MS, & autoimmune issues
I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there
I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there
Julietkellykidwell
in
Healthy Evidence
6 years ago
Getting in touch second time not used to emailing!H
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends
Selsey
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Rare diagnosis
I’m 39 years old and was just diagnosed with MADSAM neuropathy (Lewis Sumner Syndrome). Does anyone else have this? I know it’s extremely rare. Just wondering if anyone else on this site happens to have the same thing. I start IVIg treatments next week.
I’m 39 years old and was just diagnosed with MADSAM neuropathy (Lewis Sumner Syndrome). Does anyone else have this? I know it’s extremely rare. Just wondering if anyone else on this site happens to have the same thing. I start IVIg treatments next week.
1inamillion
in
Neuropathy Support
6 years ago
Life with ITP with no steroids
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
hannaITP
in
ITP Support Association
6 years ago
ITP - Not Taking Medication - Feedback
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Bueller
in
ITP Support Association
6 years ago
Platelet count raised from 15k to 63k in a week
I’m too excited to share this! Since my discharged from hospital last two weeks, my platelet count was 32k after IVIG (from 5k), within 5 days dropped to 15k. Today (after 2 weeks) I went to check up again it was 63k! Wow I’m thrilled! I did not change any special medication, my existing medication is
I’m too excited to share this! Since my discharged from hospital last two weeks, my platelet count was 32k after IVIG (from 5k), within 5 days dropped to 15k. Today (after 2 weeks) I went to check up again it was 63k! Wow I’m thrilled! I did not change any special medication, my existing medication is
Yoyoyeoh
in
ITP Support Association
6 years ago
Curious how many people with ITP were in a third world country just prior to getting ITP?
Hi, I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional
Hi, I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional
CDmom
in
ITP Support Association
6 years ago
Platelets & me
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
conquerator2
in
ITP Support Association
6 years ago
Ulcer Preventing Drugs?
So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers, anal ulcers, and oh so fun vaginal ulcers, too. The doctors are suggesting we add an oral drug into the mix. The concern is that I may be forming
So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers, anal ulcers, and oh so fun vaginal ulcers, too. The doctors are suggesting we add an oral drug into the mix. The concern is that I may be forming
NerdyChristina
in
Behçet's UK
6 years ago
IVIG Infusions
Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid. Anyone have experience with this? My first infusion is in 2 weeks. Thanks.
Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid. Anyone have experience with this? My first infusion is in 2 weeks. Thanks.
bayside64
in
CLL Support
6 years ago
Venetoclax and mouth sores
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018. I got Dermatomyositis (skin & Muscle) autoimmune disorder shortly after I started Ibrutinib and when it showed
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018. I got Dermatomyositis (skin & Muscle) autoimmune disorder shortly after I started Ibrutinib and when it showed
Eliotf
in
CLL Support
6 years ago
B12 could it be something else/France/injections
Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and needles in my feet, then to hands and even in face, tip of nose etc. then followed patches of numbness in my ankles and wrists, fasculations everywhere
Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and needles in my feet, then to hands and even in face, tip of nose etc. then followed patches of numbness in my ankles and wrists, fasculations everywhere
lunez22
in
Pernicious Anaemia Society
6 years ago
Chronic itp
My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she
My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she
sreea_dey90
in
ITP Support Association
6 years ago
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