Hello, first time ever on a web site like this. I have had limited scleraderma symptoms since the 80's, with raynaulds first symptom, dry eyes for years as well, petechia on fingers, lips, face. Official scleraderma Dx In 2010,
And sjogrens...along w fatigue that when it hits- I am exhausted!
Raynaulds- vasoconstrict to hands, feet, lips, sometimes nose
Some problems now- increasing GI symptoms- have had gerd, ulcer in past, I get cold, and vasoconstrict symptoms of hands when eat anything - for several years, unable to swallow food without fluid- which seems to be worse lately- have to drink a lot w eat- if no drink
I can not eat.
Stay full long time, lower belly pains periodic,
With sporadic incontince...😩No weight loss
My dry eyes have been worse -higher steroid drops from Opthalmalogist and now going thru Cataract Surgery due to steroid induced.
Dr's have thought possible back- as 2016 I had spinal fusion w instrumentation in lower back - still muscleskeltal problems..
have treated pelvic prolapse...Jan 2018 surgery pelvic reconstruction
Upper abdomen problems too- lots heartburn even w meds
Just saw my scleraderma- rheumatoid doc and he thinks could be my scleraderma
Wants me to follow...have a local GI now for initial- having EGD next week/ will see GI special at university hospital in July...
So o - very much to ponder...and worries- could it be scleraderma and if so...what options to help....