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Ceftazidime intravenous infusion
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Anterior Spinal Fusion means I can no longer sit upright due to severe pain in my SI Joints/Sit bones. Anyone else had the same happen?
I had a 2 level (L4 /L5 & L5/S1) Posterior Fusion revised in 2017. Plus an additional Anterior Fusion at the same level. Now, 4 years later I am unable to sit upright. Not even in bed. Eating or movement in my lower abdomen also causes a great deal of pain in my SI Joints, groin, and thighs. I'd be
I had a 2 level (L4 /L5 & L5/S1) Posterior Fusion revised in 2017. Plus an additional Anterior Fusion at the same level. Now, 4 years later I am unable to sit upright. Not even in bed. Eating or movement in my lower abdomen also causes a great deal of pain in my SI Joints, groin, and thighs. I'd be
emmy-loue
in
Pain Concern
3 years ago
Covid antibodies
I got back my test result with 1036 AU/ml. Cut-off is 50, so this is clear positiv. Test was done by CMIA Abott SARS-Covid-2 IgG II Quant Assay and it was mentioned that there are nutralising antibodies in the neutralisation test. I am extremly surprised and happy as needing IVIG and having had O+V
I got back my test result with 1036 AU/ml. Cut-off is 50, so this is clear positiv. Test was done by CMIA Abott SARS-Covid-2 IgG II Quant Assay and it was mentioned that there are nutralising antibodies in the neutralisation test. I am extremly surprised and happy as needing IVIG and having had O+V
Reinhard
in
CLL Support
3 years ago
Need a medical researcher by 5/31 for the ITP study I want done - Eradication of Unidentified Organisms Can Cure Some ITP
Hi, I am looking for a researcher to lead the study "Eradication of Unidentified Organisms through Rife Ultrasonic Therapy and Homeopathics Can Cure Some Idiopathic Thrombocytopenic Purpura (ITP)". Once I have a researcher, I will submit a RFP due by June 1, 2021, to the Platelet Disorder Support Association
Hi, I am looking for a researcher to lead the study "Eradication of Unidentified Organisms through Rife Ultrasonic Therapy and Homeopathics Can Cure Some Idiopathic Thrombocytopenic Purpura (ITP)". Once I have a researcher, I will submit a RFP due by June 1, 2021, to the Platelet Disorder Support Association
CDmom
in
ITP Support Association
3 years ago
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Please help........new patient
Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed
Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed
Bradyella
in
ITP Support Association
3 years ago
Next steps after failed IVF with NK cell protocol
UPDATE Hi everyone, I’ve had a couple of messages recently about immune treatment after this post and thought it might be helpful to update. After finding out about various immune problems and undergoing LIT, IVIG and taking an assortment of medication we finally got our little miracle. Our little
UPDATE Hi everyone, I’ve had a couple of messages recently about immune treatment after this post and thought it might be helpful to update. After finding out about various immune problems and undergoing LIT, IVIG and taking an assortment of medication we finally got our little miracle. Our little
Poppyhb
in
Fertility, Miscarriage & IVF Support
3 years ago
IVIG for polymyositis, side effects?
Hello? Has anyone suffered scary IVIG side effects? I've been having IVIG for about 18 months and it was going great, with some side effects but nothing too bad. Recently I had really bad chest pain for 3 days after my treatment, starting the afternoon of my last day of treatment, and also my knees
Hello? Has anyone suffered scary IVIG side effects? I've been having IVIG for about 18 months and it was going great, with some side effects but nothing too bad. Recently I had really bad chest pain for 3 days after my treatment, starting the afternoon of my last day of treatment, and also my knees
ClareR12345
in
Myositis UK
3 years ago
Large complex ovarian cyst
If anyone can give me some advice I'd be very grateful! I was recently diagnosed with a complex ovarian cyst measuring 5.5x4x5cm. With an endometrium of 1mm. In the left adnexa there is a multiloculated cyst with thickened septations calcification largest 5mm. Also some small calcifications visible
If anyone can give me some advice I'd be very grateful! I was recently diagnosed with a complex ovarian cyst measuring 5.5x4x5cm. With an endometrium of 1mm. In the left adnexa there is a multiloculated cyst with thickened septations calcification largest 5mm. Also some small calcifications visible
kym46
in
My Ovacome
3 years ago
Covid and kiddos-what's your strategy?
All through quarantine we have been telling our 12 year old that she will be able to visit and sleepover at friends once my husband and I ( me with CLL and he in his 60s) were vaccinated and barring no big Covid surprises. Here we are, both fully vaccinated, and not sure we are ready to deliver on that
All through quarantine we have been telling our 12 year old that she will be able to visit and sleepover at friends once my husband and I ( me with CLL and he in his 60s) were vaccinated and barring no big Covid surprises. Here we are, both fully vaccinated, and not sure we are ready to deliver on that
CoCoLuna11
in
CLL Support
3 years ago
Retinal thinning anyone? A sign of NPSLE?
Something funny to start the day! ☺️ A sign from an actual Texas restaurant that always has hilarious postings. Don’t you love when you have something wrong and no one tells you? Saw neuro-optho for follow up yesterday and apparently I have retinal thinning in upper, outer portion of my retina. I saw
Something funny to start the day! ☺️ A sign from an actual Texas restaurant that always has hilarious postings. Don’t you love when you have something wrong and no one tells you? Saw neuro-optho for follow up yesterday and apparently I have retinal thinning in upper, outer portion of my retina. I saw
Jmiller623
in
LUPUS UK
3 years ago
IVIG - Joint Pain - Hydrocortisone
I have written before that IVIG seems to reduce the join pain that I experience. I have been off IVIG for the last 4 months due to the pandemic and have notice an increase in the last months in the pain I experience in the shoulders, arms and legs. I restarted my 1st IVIG infusion on Saturday, by
I have written before that IVIG seems to reduce the join pain that I experience. I have been off IVIG for the last 4 months due to the pandemic and have notice an increase in the last months in the pain I experience in the shoulders, arms and legs. I restarted my 1st IVIG infusion on Saturday, by
RobertCLL
in
CLL Support
3 years ago
Have Hashimoto's thyroiditis, fibromyalgia and now High cholesterol. Any help with cholesterol will be greatful.
Hi I am 54 and have Hashimoto's thyroiditis for over 10 years and on 200 Levothyroxine, I also have fibromyalgia for around 17 years and Just had my yearly bloods done and been told my cholesterol was very high and was asked to do a urine sample as well but not had results for that yet. I have arthritis
Hi I am 54 and have Hashimoto's thyroiditis for over 10 years and on 200 Levothyroxine, I also have fibromyalgia for around 17 years and Just had my yearly bloods done and been told my cholesterol was very high and was asked to do a urine sample as well but not had results for that yet. I have arthritis
AFCUK67
in
Cholesterol Support
3 years ago
Covid Vaccination and IVIG
I just wanted to check my memory. I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and IVIG infusion. Is that correct?
I just wanted to check my memory. I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and IVIG infusion. Is that correct?
RobertCLL
in
CLL Support
3 years ago
Does the haematologist really know what he's talking about?!
So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions
So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions
happyclappy
in
CLL Support
3 years ago
From a Concerned Father.
My name is Saleem Ahmed. This site has been God send. I wanted to seek about my daughter. She is recovering from viral encephalitis (Herpes encephalitis). She is 15.5 years old and had been a good student in Grade 9. Its been 3 months since she was discharged from hospital. She also was diagnosed with
My name is Saleem Ahmed. This site has been God send. I wanted to seek about my daughter. She is recovering from viral encephalitis (Herpes encephalitis). She is 15.5 years old and had been a good student in Grade 9. Its been 3 months since she was discharged from hospital. She also was diagnosed with
saleembhai69
in
Encephalitis International
3 years ago
Weight Gain with Ibrance/Fulvestrant
Hi beautiful ladies. For those on Ibrance/Fulvestrant, have you had weight gain and if so, how are you combatting that? With the combo of Ibrance, Fulvestrant, menopause and an underactive thyroid, I feel like I am at the bottom of a hill looking up and it's going to be a really tough climb! I don't
Hi beautiful ladies. For those on Ibrance/Fulvestrant, have you had weight gain and if so, how are you combatting that? With the combo of Ibrance, Fulvestrant, menopause and an underactive thyroid, I feel like I am at the bottom of a hill looking up and it's going to be a really tough climb! I don't
Andibo
in
SHARE Metastatic Breast Cancer
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
Here’s what rheumatologists and other specialists are telling their patients about getting the vaccine even during higher than usual disease activity. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Arthritis Hand Wrist Pain If you live with
Here’s what rheumatologists and other specialists are telling their patients about getting the vaccine even during higher than usual disease activity. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Arthritis Hand Wrist Pain If you live with
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers. What to Ask Rheumatologist About COVID-19 Vaccine It’s understandable
Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers. What to Ask Rheumatologist About COVID-19 Vaccine It’s understandable
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Hello. New to the forum but not to OA. Thought I’d say hello and add my story.
I posted this in another thread so I apologize if you have read it already. I did not pay attention to the length of time since the last comment so that post is buried toward the bottom. I enjoy research so I hope to add some articles or links to help all of us in our daily and sometimes hourly battle
I posted this in another thread so I apologize if you have read it already. I did not pay attention to the length of time since the last comment so that post is buried toward the bottom. I enjoy research so I hope to add some articles or links to help all of us in our daily and sometimes hourly battle
Blackknight1989
in
Osteoarthritis Action
4 years ago
Death of a family member
I don’t really know where to go or where to share this but I am heartbroken right now and I can’t sleep. I know this group will understand. I have a strong family history of lupus and vascular problems on my fathers side. My paternal uncle died at age 41 of a ruptured aortic aneurysm. No one knows
I don’t really know where to go or where to share this but I am heartbroken right now and I can’t sleep. I know this group will understand. I have a strong family history of lupus and vascular problems on my fathers side. My paternal uncle died at age 41 of a ruptured aortic aneurysm. No one knows
Jmiller623
in
LUPUS UK
4 years ago
ITP after COVID vaccine
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
DoNorth
in
ITP Support Association
4 years ago
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