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brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
a amazing news!!
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Eriksendi
in
My Ovacome
7 months ago
vitamin B12 injection
I am SO exhausted and want to see if I’m lacking B12 (I’m vegetarian) please can you let me know a good but cheap company to use. Thank you
I am SO exhausted and want to see if I’m lacking B12 (I’m vegetarian) please can you let me know a good but cheap company to use. Thank you
sidneymark70
in
Thyroid UK
4 months ago
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Second opinion on Biopsy
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
carlsbadjack
in
Prostate Cancer Network
7 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
6 months ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
7 months ago
consultant Gastroenterologist
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
Doris11
in
Pernicious Anaemia Society
3 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
7 months ago
Ebus failure
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Mindini1964
in
The Roy Castle Lung Cancer Foundation
7 months ago
Pain management change of meds.
Hi there , after a recent visit with a pain management doctor I have been ask the try some new medication called Celecoxib instead of Naproxen has anyone else use this medicine for chronic pain they said in a newish drug so not sure what to expect side affects etc...a also take pregablain 75mg day dose
Hi there , after a recent visit with a pain management doctor I have been ask the try some new medication called Celecoxib instead of Naproxen has anyone else use this medicine for chronic pain they said in a newish drug so not sure what to expect side affects etc...a also take pregablain 75mg day dose
Rob172
in
Fibromyalgia Action UK
4 months ago
B12 Folate and Ferritin
I have got a Vitamin D supplement. Can anybody recommend a brand of B12, Folate and Ferritin?
I have got a Vitamin D supplement. Can anybody recommend a brand of B12, Folate and Ferritin?
foamfollower
in
Thyroid UK
4 months ago
Need Help With Results From Blood Test
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Jadaboo4
in
LUPUS UK
3 months ago
Radiation therapy or Turp first?
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
3putt
in
Advanced Prostate Cancer
7 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
7 months ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
3 months ago
Not sure what to do next
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Sootymouse
in
Acoustic Neuroma Support
7 months ago
confused whether to go ahead with laparoscopy
31 year old female Hi everyone I am due to have a diagnostic laparoscopy in 2.5 weeks. I am so nervous about the procedure and unsure whether to go ahead. My pain over the last few months has been manageable and my periods are ok. I don’t know whether I’m getting used to the pain. I have changed my
31 year old female Hi everyone I am due to have a diagnostic laparoscopy in 2.5 weeks. I am so nervous about the procedure and unsure whether to go ahead. My pain over the last few months has been manageable and my periods are ok. I don’t know whether I’m getting used to the pain. I have changed my
Penguinpal
in
Endometriosis UK
4 months ago
Small cell advanced prostate cancer spread to liver and lungs.
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
lcfcpolo
in
Advanced Prostate Cancer
7 months ago
Advances in solid tumors: finnish clinical trial
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Maxone73
in
Advanced Prostate Cancer
7 months ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
4 months ago
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