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Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Wednesday Words
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
interesting Xeloda trial
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
HelenWi
in
SHARE Metastatic Breast Cancer
9 months ago
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Biopsy 8-month Change - progression or sampling differences?
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
adventure4me
in
Prostate Cancer Network
9 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
9 months ago
Cyproterone and Blood Pressure
I am currently on LHRH hormone therapy in preparation for radiotherapy followed by HDR brachytherapy for my locally advanced PCa, T3a Gleason 8, no visible mets fortunately. I have been suffering from quite unpleasant hot flushes which have shown no signs of going away. I discussed this with my consultant
I am currently on LHRH hormone therapy in preparation for radiotherapy followed by HDR brachytherapy for my locally advanced PCa, T3a Gleason 8, no visible mets fortunately. I have been suffering from quite unpleasant hot flushes which have shown no signs of going away. I discussed this with my consultant
tunybgur
in
Advanced Prostate Cancer
7 months ago
PT-112 Immunotherapy Trial
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
TeleGuy
in
Advanced Prostate Cancer
9 months ago
sciatic pain
I’ve recently been diagnosed with Adenomyosis and suffer daily with pelvic pain and like a sciatic pain in my back and down my legs. Has anyone else had this, I’m not sure if the two are related. I also have diverticulosis so falling apart at the seems. 🤯
I’ve recently been diagnosed with Adenomyosis and suffer daily with pelvic pain and like a sciatic pain in my back and down my legs. Has anyone else had this, I’m not sure if the two are related. I also have diverticulosis so falling apart at the seems. 🤯
Racergirl9
in
Endometriosis UK
7 months ago
The Science is Coming as Fish Says
Just realised I posted on wrong community (LoL.) The AZD5069 and enzaltutamide trial has been widely reported in the UK press. Very small sample size to check the concept but it targets white myeloid blood cells which apparently can fuel tumour growth. The drug combo works is designed to block the CXCR2
Just realised I posted on wrong community (LoL.) The AZD5069 and enzaltutamide trial has been widely reported in the UK press. Very small sample size to check the concept but it targets white myeloid blood cells which apparently can fuel tumour growth. The drug combo works is designed to block the CXCR2
GreenStreet
in
Fight Prostate Cancer
9 months ago
Concerned, nervous…
where do I begin…aside from apologizing in advance for this photo.. just showing only a little bit of what I’ve been experiencing this past year. well I’m currently writing this on 12/16/2023. I am getting a colonoscopy/endoscopy done on 12/18/2023. I SUCK at writing, but I don’t honestly have anyone
where do I begin…aside from apologizing in advance for this photo.. just showing only a little bit of what I’ve been experiencing this past year. well I’m currently writing this on 12/16/2023. I am getting a colonoscopy/endoscopy done on 12/18/2023. I SUCK at writing, but I don’t honestly have anyone
HersheyDropz
in
Colon Cancer Connected
7 months ago
Colonoscopy polyp worries
Hiya there, 34yo male here who had a colonoscopy 2 weeks ago after having abdominal and back pain, constipation on and off since June. I had a positive FIT test which my doctor believes to be because I have an anal fissure and I have rectal bleeding. The colonoscopy was clear apart from a 4mm sessile
Hiya there, 34yo male here who had a colonoscopy 2 weeks ago after having abdominal and back pain, constipation on and off since June. I had a positive FIT test which my doctor believes to be because I have an anal fissure and I have rectal bleeding. The colonoscopy was clear apart from a 4mm sessile
MagnusMoo
in
Colon Cancer Connected
7 months ago
Could this be IBS?
Hiya everyone, 34yo male who is really struggling right now with gastrointestinal problems. Looking for some advice please. Since June of this year I've been having really bad abdominal and back pain on and off in cycles - it's worse at times and better at times - it really does come and go. I'm badly
Hiya everyone, 34yo male who is really struggling right now with gastrointestinal problems. Looking for some advice please. Since June of this year I've been having really bad abdominal and back pain on and off in cycles - it's worse at times and better at times - it really does come and go. I'm badly
MagnusMoo
in
IBS Network
7 months ago
Very promising trial!
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Maxone73
in
Advanced Prostate Cancer
9 months ago
Where do I go from here?
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
ChaoticEmu
in
Anxiety and Depression Support
4 months ago
Flecainide & Constipation!
Hi, Ever since my Flecainide was increased to 150mg twice daily I have suffered with never-ending constipation causing very impacted and large hard to pass stools. Naturally I have tried all sorts of remedies (have always consumed prunes every day together with a high fibre oats/wheat-bran/toasted
Hi, Ever since my Flecainide was increased to 150mg twice daily I have suffered with never-ending constipation causing very impacted and large hard to pass stools. Naturally I have tried all sorts of remedies (have always consumed prunes every day together with a high fibre oats/wheat-bran/toasted
Fib36
in
AF Association
7 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
9 months ago
set back
my mind is going in overdrive with worry and anxiety. I’ve told someone about a couple of my anxiety triggers that I’ve never told anyone before. The thing is they’re so pathetic and small that I feel so ashamed and embarrassed and wished I’d never let the cat out of the bag so to speak. I was under
my mind is going in overdrive with worry and anxiety. I’ve told someone about a couple of my anxiety triggers that I’ve never told anyone before. The thing is they’re so pathetic and small that I feel so ashamed and embarrassed and wished I’d never let the cat out of the bag so to speak. I was under
Junkjournal1
in
Anxiety and Depression Support
4 months ago
May be doing IV chemo for the first time. Need tips - really freaked out!
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Verbena1
in
SHARE Metastatic Breast Cancer
9 months ago
Decision Time (again)
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
adventure4me
in
Prostate Cancer Network
9 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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