Search
Search
About
Log in
Join
Experiences with
Axid
Posts
Communities
2,840 public posts
Filter results
I was able to have my fourth Covid vaccination....
I thought you may be interested that yesterday I was able to have my fourth Covid vaccination. I was diagnosed with PMR in December last year and began with a dose of 15mg of prednisolone raised to 20mg almost immediately and have been tapering down since then with one flare. Currently on 15mg. I have
I thought you may be interested that yesterday I was able to have my fourth Covid vaccination. I was diagnosed with PMR in December last year and began with a dose of 15mg of prednisolone raised to 20mg almost immediately and have been tapering down since then with one flare. Currently on 15mg. I have
Rostom
in
PMRGCAuk
2 years ago
The end of Parkinson's as we know it today. From the Levodopa era to the "transformative" information era.
1. History and Time. As a vocational and professional historian, I have contemplated the world of Parkinson's for many years. The changes over time in the way the disease is viewed, the possible treatments and everything that makes up the world of Parkinson's (multinationals, neurologists, associations
1. History and Time. As a vocational and professional historian, I have contemplated the world of Parkinson's for many years. The changes over time in the way the disease is viewed, the possible treatments and everything that makes up the world of Parkinson's (multinationals, neurologists, associations
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
Really bad DEXA scan result
Hi folks, I've not posted in a while but have used the time wisely - more about that later. You may remember I was being railroaded into a Zoledronic acid infusion without having a DEXA scan first-the GP insisted I'd need the infusion anyway after being on high dose Prednisolone for more than a year
Hi folks, I've not posted in a while but have used the time wisely - more about that later. You may remember I was being railroaded into a Zoledronic acid infusion without having a DEXA scan first-the GP insisted I'd need the infusion anyway after being on high dose Prednisolone for more than a year
strawclutching
in
PMRGCAuk
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
IBS general: my experience
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Stuart24
in
IBS Network
2 years ago
Painful shoulder blade.
I posted last week asking for help choosing osteoporosis/osteopenia treatments. Everyone was so kind and I was offered lots of experience and advice, thank you all. I had already taken my first dose of Alendronic acid and was having a reaction to it in the form of shoulder blade pain. 8 days later
I posted last week asking for help choosing osteoporosis/osteopenia treatments. Everyone was so kind and I was offered lots of experience and advice, thank you all. I had already taken my first dose of Alendronic acid and was having a reaction to it in the form of shoulder blade pain. 8 days later
Pandora2
in
PMRGCAuk
2 years ago
Should my husband take Alendronic Acid
Hi, my husband is being advised to go on Alendronic Acid because he has brittle bones and two fractures in his spine. He has stage 4 prostate cancer and also broke his femur last Christmas 2021, his femur has not healed. They are advising him to go on AA because of the breaks and he has brittle bones
Hi, my husband is being advised to go on Alendronic Acid because he has brittle bones and two fractures in his spine. He has stage 4 prostate cancer and also broke his femur last Christmas 2021, his femur has not healed. They are advising him to go on AA because of the breaks and he has brittle bones
Darcra
in
Bone Health and Osteoporosis UK
2 years ago
Possibility of wrong diagnosis Osteporosis Be Aware
Back in October was diagnosed with severe Osteoporosis, fractured a vertebrae stood at the kitchen sink. My T-scores were -2.7 hip and 4.8 spine. I was diagnosed over the phone following a Dexa scan. I was so shocked as this was all out of the blue. The doctor prescribed me Alendronic Acid. As I
Back in October was diagnosed with severe Osteoporosis, fractured a vertebrae stood at the kitchen sink. My T-scores were -2.7 hip and 4.8 spine. I was diagnosed over the phone following a Dexa scan. I was so shocked as this was all out of the blue. The doctor prescribed me Alendronic Acid. As I
Daisi124
in
Bone Health and Osteoporosis UK
2 years ago
You are not alone
I fought taking something for low bone density from prednisone. Asked my PC if I could try calcium and vitamin D first because I was so afraid of the side effects. I regret waiting now because things got worse. I talked it over with my dentist and she set my mind at ease by telling me she had many patients
I fought taking something for low bone density from prednisone. Asked my PC if I could try calcium and vitamin D first because I was so afraid of the side effects. I regret waiting now because things got worse. I talked it over with my dentist and she set my mind at ease by telling me she had many patients
Logic
in
PMRGCAuk
2 years ago
IV Alpha Lipoic Acid Treatment for PBC and autoimmune hepatitis
Has anyone looked into or done the IV alpha lipoic acid infusion treatment for PBC, developed by Dr. Berkson? I've been diagnosed with overlapping PBC and autoimmune hepatitis and doctors are hesitant to prescribe immunosuppressants since I recently had breast cancer. I'm looking for treatment alternatives
Has anyone looked into or done the IV alpha lipoic acid infusion treatment for PBC, developed by Dr. Berkson? I've been diagnosed with overlapping PBC and autoimmune hepatitis and doctors are hesitant to prescribe immunosuppressants since I recently had breast cancer. I'm looking for treatment alternatives
Sanov
in
PBCers Organization
2 years ago
Voice Tremor
FYI Octanoic Acid = nutritional supplement Caprillic Acid https://www.enttoday.org/article/octanoic-acid-may-reduce-tremor-magnitude-for-essential-voice-tremor-patients/
FYI Octanoic Acid = nutritional supplement Caprillic Acid https://www.enttoday.org/article/octanoic-acid-may-reduce-tremor-magnitude-for-essential-voice-tremor-patients/
House2
in
Cure Parkinson's
2 years ago
Can I take my 112mg levothyroxine first thing in the morning and at the same time as my 5mg Felodipine? (Blood pressure tablets)
Hi everyone, I usually take my levothyroxine on its own at about midnight. However, I possibly now need to take sleep aid tablets at night, so I am thinking of changing times and taking my levothyroxine first thing in the morning instead. However, first thing in the morning I have to take my high blood
Hi everyone, I usually take my levothyroxine on its own at about midnight. However, I possibly now need to take sleep aid tablets at night, so I am thinking of changing times and taking my levothyroxine first thing in the morning instead. However, first thing in the morning I have to take my high blood
Rezzar
in
Thyroid UK
2 years ago
New medication
I have just been prescribed obeticholic acid as a 2nd line treatment, and just wondered if anyone has had any side effects, and if so what.
I have just been prescribed obeticholic acid as a 2nd line treatment, and just wondered if anyone has had any side effects, and if so what.
Kieraferret
in
PBC Foundation
2 years ago
Alpha lipoic acid
I read recently that alpha lipoic acid may help with pain in the feet and hands, and help you handle glucose. Does anyone know if there are contra indications from breast cancer (and the drugs that treat it) to taking it? Thanks in advance.
I read recently that alpha lipoic acid may help with pain in the feet and hands, and help you handle glucose. Does anyone know if there are contra indications from breast cancer (and the drugs that treat it) to taking it? Thanks in advance.
Hopefulwmbc
in
SHARE Metastatic Breast Cancer
2 years ago
Advice wanted: organising a run
Our village is punting for ideas for the Queen’s jubilee celebrations. To the parish council, I floated a run from here to the next village and back (10km) with 5 hard hills. I tried torpedoing the idea by saying “of course we’d never get permission to close the roads”. But someone said it would be
Our village is punting for ideas for the Queen’s jubilee celebrations. To the parish council, I floated a run from here to the next village and back (10km) with 5 hard hills. I tried torpedoing the idea by saying “of course we’d never get permission to close the roads”. But someone said it would be
HeavyFoot
Graduate10
in
Bridge to 10K
2 years ago
Medication on GPA
Hi everyone, I was diagnosed with GPA in February 2020. I was wondering what medications others are on. Im on 4 500mg mycophenolate daily, calceous and alendronic acid. I was tapered off predisinolone and stopped in May 2021 and also stopped co tricamazole. I get no feed back from consultant or
Hi everyone, I was diagnosed with GPA in February 2020. I was wondering what medications others are on. Im on 4 500mg mycophenolate daily, calceous and alendronic acid. I was tapered off predisinolone and stopped in May 2021 and also stopped co tricamazole. I get no feed back from consultant or
Mingtai
in
Vasculitis UK
2 years ago
FAQ HOW TO RUN C25k.....A GUIDE.
[i]
This is a revised version of the original “How to run C25k” post, which became uneditable. If you link others to this post please delete the old link.
[/i] So, You are wanting to know how to do the Couch to 5k training plan for non runners and have loads of questions. This forum is designed
[i]
This is a revised version of the original “How to run C25k” post, which became uneditable. If you link others to this post please delete the old link.
[/i] So, You are wanting to know how to do the Couch to 5k training plan for non runners and have loads of questions. This forum is designed
IannodaTruffe
Mentor
in
Couch to 5K
2 years ago
Alpha-lipoic- acid
I have peripheral neuropathy (not caused by diabetes) and read that alpha-lipoic- acid can help with pain. I am taking 200mg ALA and would like to know if anyone else is trying this and what dose and results? Thanks
I have peripheral neuropathy (not caused by diabetes) and read that alpha-lipoic- acid can help with pain. I am taking 200mg ALA and would like to know if anyone else is trying this and what dose and results? Thanks
foxglove
in
Pain Concern
2 years ago
Coming off Pred
Hi everyone. First post here but I’ve been following for some time. I was diagnosed with PMR in 2018 and started on 20mg of Pred. I’ve been reducing gradually like many over last three years. I was hoping to get off completely before now but several times when moving from 5 to 4 Found my hands stiffened
Hi everyone. First post here but I’ve been following for some time. I was diagnosed with PMR in 2018 and started on 20mg of Pred. I’ve been reducing gradually like many over last three years. I was hoping to get off completely before now but several times when moving from 5 to 4 Found my hands stiffened
Bobwif
in
PMRGCAuk
2 years ago
Dental problems & alendronic acid…anybody had ONJ (necrosis of jaw) please?
History: 4 tooth infections (same tooth) in 4 years. 5 courses of antibiotics. More toothache & swelling. Off to dentists (closed for 2 years due to Covid). X-Ray & exam…tooth needs to come out, & explains why root canal wouldn’t work. Good, yes please, I said. But due to fact I’m on low dose of pred
History: 4 tooth infections (same tooth) in 4 years. 5 courses of antibiotics. More toothache & swelling. Off to dentists (closed for 2 years due to Covid). X-Ray & exam…tooth needs to come out, & explains why root canal wouldn’t work. Good, yes please, I said. But due to fact I’m on low dose of pred
Pixix
in
PMRGCAuk
2 years ago
Alendronic acid
I have been taking alendronic acid for over 5 years. When I spoke with my doctor about having a break from it, he seemed to think I could go to 7 years. Is this correct?
I have been taking alendronic acid for over 5 years. When I spoke with my doctor about having a break from it, he seemed to think I could go to 7 years. Is this correct?
Delphy
in
Bone Health and Osteoporosis UK
2 years ago
1
...
31
32
33
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
574 results
Endometriosis UK
482 results
Bone Health and Osteoporosis UK
267 results
View top 10 communities
Sort by
Most Relevant
Newest