1. History and Time.
As a vocational and professional historian, I have contemplated the world of Parkinson's for many years. The changes over time in the way the disease is viewed, the possible treatments and everything that makes up the world of Parkinson's (multinationals, neurologists, associations, foundations, governments, investors, journals, etc.), provide us with much valuable information.
Comparisons are essential for change. They are only unpleasant when the intentions behind them are unpleasant.
In these years we are at a crossroads. We have two main options:
1. we can leave the levadopa era (1970-2022) behind, keeping what is worthwhile and move into another way of looking at the disease and its treatments. We cannot continue without introducing Mucuna (with or without carbidopa); homocysteine reduction with vitamins B2, B6, B9 and B12; the use of sublingual vitamin B12; substances that raise glutathione as well as providing innumerable benefits (alpha lipoic acid, vitamin C, selenium, turmeric, etc.); high doses of vitamin D3 (5000-10000 IU per day) and even calcitriol, etc.
2. Or continue in the loop, in the labyrinth, going round in circles waiting for the treatment that will change everything. I know what I am talking about because my father and I were lost for more than a decade, like mice on a wheel in the maze. The volume of information produced today is a hundred times greater than it was 20 years ago, but the goal is receding. The complexity of research is now impossible to harness and increasingly resembles the Maelstrom, the giant sea whirlpool that drags everything to the bottom.
2. Neurology can take different paths.
We are not talking about alternative issues or issues far removed from science. The studies, proposals and therapies of doctors Hinz, Wahls, Hoffer, Perlmutter, Coimbra, Costantini, Birkmayer, Ahlskog, Fahn (1992), Shults (2002), Suzuki (2013), Espay (2019), etc., remain unheeded.
We are ending the month of March 2022 and what I see reminds me of what I experienced 30 years ago with my father. "Old wine in a new bottle". Or "The same dog with a different collar", is a frequent saying in my mother language, Spanish.
3. The Internet, a double-edged sword.
The Internet, search engines, databases, forums, have changed everything. It is true that they are a double-edged sword. Alongside invaluable information there are oceans of rubbish and unimportant information.
We search and search. Thanks to all this volume of information we can go astray or stumble upon vitamin D3, sublingual vitamin B12, a multivitamin of methylated B vitamins, green tea polyphenols, turmeric, Mediterranean diet, mucuna, melatonin, etc.
4. Re-learning to read.
"People don't know how much time and effort it takes to learn to read. It has taken me eighty years to achieve it, and I still can't say whether I have succeeded.
Goethe
Looking back, I remember how many times I "read" books and articles without understanding what their authors were saying. How the years went by and I did not understand what they were shouting at us from those pioneering pages... How many prejudices, ignorance, separated us from the paths that lead to hope based on realities.
5. Not a step back.
I am finishing the translation of "The Healing of Parkinson's" into English, I still can't find a patron or publisher who will allow me to devote myself to research and disseminate full time, etc. Intuition (shortcut to knowledge) tells me that there is still a lot to bring to light, to gather and summarise, to explain in an understandable way what is essential for the majority of patients and their families who do not have the free time or the drive to search and search. Or that their mother tongue does not allow them to access 99% of the information, which is nowadays only available in English.
As I receive more and more messages from readers who are changing their view of Parkinson's in a positive way thanks to the book in Spanish (actually to the fact that I have gathered so many treasures from others in it), I have to come to the conclusion that (almost) nobody cares about the future of sufferers and their families. Except ourselves, of course.
And we are in danger of being almost erased from the internet, from memory, as happened to Annetta Freeman and her exceptional protocol in the 1990s, which brings us to Jay Kimball with his product Liquid Deprenyl Citrate (LDC), imprisoned and banned respectively, etc.
But we must not forget that it would put an end to the current and future profits of the giant "actors" in this drama. Nor can we ignore that the colossal "Parkinson's world" is already seeking its own survival as if it were a living organism.
We must make the best of the Laboratory, of Nature and of the treasures of the East.
If we do not do it ourselves, it is likely to remain undone. When you come to this conviction, everything changes.
As a caregiver, can anyone help me with suggestions on how to handle the dementia aspect of Parkinson's?
