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thank you for the help! ❤️
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
Loobie72
in
LUPUS UK
5 days ago
Research that may be of benefit to those of us with Gut disorders and also Autoimmune diseases involving the arteries. I wondered about GCA
https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway Have not yet had the chance to read further around the subject.
https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway Have not yet had the chance to read further around the subject.
SheffieldJane
in
PMRGCAuk
24 days ago
North Wales Lupus Group - Get together - 12th November 1.30pm!
Come join the North Wales Lupus Group on Sunday 12th November from 1:30 until 3:30pm, at Betty’s Café, Penmaenmawr, LL34 6AA. A great opportunity to meet others with lupus or an associated condition. Everyone welcome! Refreshments included! If you would like to join or for more information, please
Come join the North Wales Lupus Group on Sunday 12th November from 1:30 until 3:30pm, at Betty’s Café, Penmaenmawr, LL34 6AA. A great opportunity to meet others with lupus or an associated condition. Everyone welcome! Refreshments included! If you would like to join or for more information, please
michaellasmith
Administrator
in
LUPUS UK
8 months ago
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Tingly Legs
Been on 25mg levothyroxine for about 18 months due to Tsh being 3.0 and GP wanted it under 2.0 as trying to conceive. Never noticed any side affects. For about 4 weeks now I've had a tingling feeling in legs and feet and one hand which is carpal tunnel like. Bloods fine, b12 satisfactory and tsh is 1.9
Been on 25mg levothyroxine for about 18 months due to Tsh being 3.0 and GP wanted it under 2.0 as trying to conceive. Never noticed any side affects. For about 4 weeks now I've had a tingling feeling in legs and feet and one hand which is carpal tunnel like. Bloods fine, b12 satisfactory and tsh is 1.9
Bristolgal8
in
Thyroid UK
8 months ago
Thyroid results
Hi I've struggled years with an underactive thyroid I have just received latest results wondered if anyone can help
Hi I've struggled years with an underactive thyroid I have just received latest results wondered if anyone can help
Rockingdog54
in
Thyroid UK
8 months ago
New to all this.
Im a 47yr old male and have recently been having blood tests after displaying all the standard underactive thyroid symptoms including huge fatigue. After being put on 25mg levothyroxine (to get me started on medication), the most recent tests showed a TSH of 3.6 (coming down from 6.2 on previous test
Im a 47yr old male and have recently been having blood tests after displaying all the standard underactive thyroid symptoms including huge fatigue. After being put on 25mg levothyroxine (to get me started on medication), the most recent tests showed a TSH of 3.6 (coming down from 6.2 on previous test
BiffAHiram
in
Thyroid UK
8 months ago
24 hour fight or flight
I have
autoimmune
diseases
, resistant blood pressure, vascular issues, and I’m only 53. I try to exercise when I can and eat healthy. You would look at me and think I’m fine, but I’m absolutely a wreck inside. I feel like I could have a stroke every day.
I have
autoimmune
diseases
, resistant blood pressure, vascular issues, and I’m only 53. I try to exercise when I can and eat healthy. You would look at me and think I’m fine, but I’m absolutely a wreck inside. I feel like I could have a stroke every day.
Goldenlover0730
in
Anxiety and Depression Support
6 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
8 months ago
B12 Deficiency or Underactive Thyroid at Play?
Recently, my FBC came back with:
Mean cell haemoglobin level 32.7 pg [27.0 - 32.0]; Above high reference limit
Only just above the range. Am I right in thinking this confirms anemia? I have been supplementing with B complex, so my blood serum tests show they are quite healthy (upper quarter
Recently, my FBC came back with:
Mean cell haemoglobin level 32.7 pg [27.0 - 32.0]; Above high reference limit
Only just above the range. Am I right in thinking this confirms anemia? I have been supplementing with B complex, so my blood serum tests show they are quite healthy (upper quarter
HealthStarDust
in
Thyroid UK
8 months ago
Sjogren's Syndrome and Coeliac disease.
I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with Sjogren's has also been diagnosed with coeliac disease and how they got diagnosed as I would like to get tested.
I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with Sjogren's has also been diagnosed with coeliac disease and how they got diagnosed as I would like to get tested.
maxie4969
in
The Australian Sjögren's Syndrome Association
8 months ago
what to do??
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
Vorney
in
Thyroid UK
8 months ago
Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
RupertW-SUMS
in
LUPUS UK
8 months ago
anxiety/holding down jobs
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
dolphin66stag
in
Pernicious Anaemia Society
8 months ago
results of inspire study
INSPIRE (Investigating Neuropsychiatric Symptom Prevalence and Impact in Rheumatology patient Experiences) research I took part in this study and they have published the results which may be of interest- it was looking at the hidden mental health symptoms of people with
autoimmune
diseases
, so cognitive
INSPIRE (Investigating Neuropsychiatric Symptom Prevalence and Impact in Rheumatology patient Experiences) research I took part in this study and they have published the results which may be of interest- it was looking at the hidden mental health symptoms of people with
autoimmune
diseases
, so cognitive
Tbrz
in
Vasculitis UK
11 months ago
Thrombocytopenia
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
nunbrook
in
PBC Foundation
8 months ago
A vaccine for PMR?
But if it works for these other
diseases
, it might work for PMR, too. https://www.thehealthsite.com/
diseases
-conditions/
autoimmune
-disorder-treatment-new-vaccine-may-completely-reverse-
diseases
-1009841/
But if it works for these other
diseases
, it might work for PMR, too. https://www.thehealthsite.com/
diseases
-conditions/
autoimmune
-disorder-treatment-new-vaccine-may-completely-reverse-
diseases
-1009841/
papadapadoo
in
PMRGCAuk
9 months ago
Warning, ugly face
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
Lozza812
in
LUPUS UK
8 months ago
Covid vaccines and Lupus Flare - up
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
seabreezegirl
in
LUpus Patients Understanding and Support
8 months ago
Thyroid antibody result
Hi there, I was just wondering if a thyroid antibody level of 822 is quite high? My T4 is 9.6 and TSH is 12.04 Have been on Levothroxine 50mg for nearly 6 weeks so awaiting another blood test to see if it’s helped bring the levels down. I haven’t had a chance to discuss the antibody result with
Hi there, I was just wondering if a thyroid antibody level of 822 is quite high? My T4 is 9.6 and TSH is 12.04 Have been on Levothroxine 50mg for nearly 6 weeks so awaiting another blood test to see if it’s helped bring the levels down. I haven’t had a chance to discuss the antibody result with
Cloud77
in
Thyroid UK
8 months ago
Do I have lupus?
Several years ago I was having a lot of joint pains in my legs and fevers. I was referred to haematology who then referred me on to infectious diseases. The consultant did blood tests and told me I had a positive ANA test and anti-Double stranded dna antibody test which was positive, he diagnosed me
Several years ago I was having a lot of joint pains in my legs and fevers. I was referred to haematology who then referred me on to infectious diseases. The consultant did blood tests and told me I had a positive ANA test and anti-Double stranded dna antibody test which was positive, he diagnosed me
Poppy-12345
in
LUPUS UK
8 months ago
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