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Aplastic anaemia
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Is Anyone Using Indivina HRT With Success (no thyroid med interactions and weight gain)?
I am considering trying Indivina HRT due to it being hair growth friendly as I have hair thinning, and also to prevent further bone loss ( I have early onset osteoporosis). If anyone who is hypo and uses Indivina, I would be grateful if they could advise on how successful they are finding it, particularly
I am considering trying Indivina HRT due to it being hair growth friendly as I have hair thinning, and also to prevent further bone loss ( I have early onset osteoporosis). If anyone who is hypo and uses Indivina, I would be grateful if they could advise on how successful they are finding it, particularly
Hidden
in
Thyroid UK
2 years ago
Temgesic - Buprenorphine difference
Hello team 😊 I have recently started Temgesic 🥳🥳 and my neuro advised breaking the dose to twice in 24 hours. I made a straight switch, (with a 12 or so hour break from Oxynorm) and so far everything is very positive. After many years of broken sleep, say around 4/5 hours a night, I can now sleep
Hello team 😊 I have recently started Temgesic 🥳🥳 and my neuro advised breaking the dose to twice in 24 hours. I made a straight switch, (with a 12 or so hour break from Oxynorm) and so far everything is very positive. After many years of broken sleep, say around 4/5 hours a night, I can now sleep
smilingjane
in
Restless Legs Syndrome
2 years ago
covid booster
Hi I live in Northern Ireland I was wondering what everyone’s status is with regard to covid boosters. I have had my 2 primary vaccines and 1 booster last November, my GP hasn’t called me for further boosters, and I have been told I’m not on the vulnerable category list, although I was during lock
Hi I live in Northern Ireland I was wondering what everyone’s status is with regard to covid boosters. I have had my 2 primary vaccines and 1 booster last November, my GP hasn’t called me for further boosters, and I have been told I’m not on the vulnerable category list, although I was during lock
Roxy1959
in
MPN Voice
2 years ago
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Monocytosis?
Hey folks, I searched but saw no other posts on this. Yesterday had my 6 month check up, new doc, didn't review tests with me but summarized. This morning I saw online that my monocytes have gone sky high (2.0 versus .4 etc.) registering as high on the test as well (in fact, they spike to the same
Hey folks, I searched but saw no other posts on this. Yesterday had my 6 month check up, new doc, didn't review tests with me but summarized. This morning I saw online that my monocytes have gone sky high (2.0 versus .4 etc.) registering as high on the test as well (in fact, they spike to the same
Vlaminck
in
CLL Support
2 years ago
Had a blood test at GP's, not for CLL
I was called to my GP's for a blood test related to my new heart medication. I also had an Echocardigram and a 24 hour monitoring tape. Surprise, surprise no one seems to know where they have sent the results. I have telephoned every department I can think of but no one admits to knowing anything!!
I was called to my GP's for a blood test related to my new heart medication. I also had an Echocardigram and a 24 hour monitoring tape. Surprise, surprise no one seems to know where they have sent the results. I have telephoned every department I can think of but no one admits to knowing anything!!
kitchengardener2
in
CLL Support
2 years ago
diagnosis and symptoms
Hello everyone - first post and looking for feedback. I have been low in B12 for some time. I would go to the doctor and told I need to take a supplement or a jab but no one ever looked into why I was deficient so I thought nothing of it. Fast forward to June of this year and I feel terrible - low B12
Hello everyone - first post and looking for feedback. I have been low in B12 for some time. I would go to the doctor and told I need to take a supplement or a jab but no one ever looked into why I was deficient so I thought nothing of it. Fast forward to June of this year and I feel terrible - low B12
Bluebell7575
in
Pernicious Anaemia Society
2 years ago
It is worth persevering!
I thought fellow RLS sufferers would be interested in the following sequence of events. Following advice from people on this website I wrote the following letter to my doctor: "[i]Dear Dr C,[/i] [i]I have suffered with severe Restless Legs Syndrome for four months now, often not being able to get to
I thought fellow RLS sufferers would be interested in the following sequence of events. Following advice from people on this website I wrote the following letter to my doctor: "[i]Dear Dr C,[/i] [i]I have suffered with severe Restless Legs Syndrome for four months now, often not being able to get to
Desperate100
in
Restless Legs Syndrome
2 years ago
Seeking info about impact of B12 deficiency in GI and digestion and changes in GI symptoms post B12 deficiency treatment
I watched 5 hours of resource videos on the PA youtube site, mainly a conference, and I came across some interesting slides that showed the small intenstine vili and cells of the GI tract before and after B12 injections. They healed! From what I understand, B12 deficiency can result in DNA replication
I watched 5 hours of resource videos on the PA youtube site, mainly a conference, and I came across some interesting slides that showed the small intenstine vili and cells of the GI tract before and after B12 injections. They healed! From what I understand, B12 deficiency can result in DNA replication
Beccy_123
in
Pernicious Anaemia Society
2 years ago
Can oral B12 supplements help in a functional B12 deficiency and more q's
As a follow on from my first post here: https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare , I visited Dr K at Nuffield on Friday at Cambridge and he strongly suspects I have non-autoimmune functional B12 deficiency and based on history
As a follow on from my first post here: https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare , I visited Dr K at Nuffield on Friday at Cambridge and he strongly suspects I have non-autoimmune functional B12 deficiency and based on history
Beccy_123
in
Pernicious Anaemia Society
2 years ago
muscle stiffness
Hey guys, I am dealing with some of the side effects of a b12 deficiency. I am still awaiting the results from a blood test, testing for intrinsic factor. Most of my symptoms have improved a lot but I am left with a burning pain all down my leg, off balance and most importantly speech difficulty.
Hey guys, I am dealing with some of the side effects of a b12 deficiency. I am still awaiting the results from a blood test, testing for intrinsic factor. Most of my symptoms have improved a lot but I am left with a burning pain all down my leg, off balance and most importantly speech difficulty.
Hidden
in
Pernicious Anaemia Society
2 years ago
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
2 years ago
B12 vitamin
Morning all, I have hypothyroidsim and on my medichecks blood test in Jan this year my b12 was 89.800 (37.5-188). This seems low. I've been taking Thorne Basic b for 18months but just one tablet. Ive put in a call to my GP as I'm concerned this wasnt tested in my annual check with them last month
Morning all, I have hypothyroidsim and on my medichecks blood test in Jan this year my b12 was 89.800 (37.5-188). This seems low. I've been taking Thorne Basic b for 18months but just one tablet. Ive put in a call to my GP as I'm concerned this wasnt tested in my annual check with them last month
292426
in
Thyroid UK
2 years ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
2 years ago
Seemingly a sudden drop in ferritin but is it really?
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
Noelnoel
in
Thyroid UK
2 years ago
Stopping B12 and folate supplementation to assist diagnosis??
As a follow up from my first post https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare, I wanted members thoughts about PA diagnosis protocol. I take B12 and methyl-folate supplementation orally. Hence my blood test discussed in my first
As a follow up from my first post https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare, I wanted members thoughts about PA diagnosis protocol. I take B12 and methyl-folate supplementation orally. Hence my blood test discussed in my first
Beccy_123
in
Pernicious Anaemia Society
2 years ago
Iron blood test results
I recently had a full iron panel done. I would be grateful if I could get some feedback on my results. I gave up vitamin c and my multivitamin patch which contains iron a week before my blood test. Many thanks CRP HS Inflammation 15 Sep 2022 0.38 mg/L (0 - 5 ) IRON 15 Sep 2022 23.2
I recently had a full iron panel done. I would be grateful if I could get some feedback on my results. I gave up vitamin c and my multivitamin patch which contains iron a week before my blood test. Many thanks CRP HS Inflammation 15 Sep 2022 0.38 mg/L (0 - 5 ) IRON 15 Sep 2022 23.2
Caze
in
Thyroid UK
2 years ago
Help with diagnosis (GP) and anyone sought help from private healthcare?
Hi, I recently learned about PA after googling my comprehensive blood test results recently. I joined the PA society this weekend and I have found myself here after chatting to a lovely lady in the helpdesk there. I am a wellness coach and have some knowledge of nutrition and improving resilience holistically
Hi, I recently learned about PA after googling my comprehensive blood test results recently. I joined the PA society this weekend and I have found myself here after chatting to a lovely lady in the helpdesk there. I am a wellness coach and have some knowledge of nutrition and improving resilience holistically
Beccy_123
in
Pernicious Anaemia Society
2 years ago
help with iron results please?
hi everyone, I have just had my medichecks results for my iron levels and wondered if I could kindly have some opinions/recommendations. I know they aren’t terrible but I am trying to increase my NDT and want to have as little issues as possible when trying to raise. Would you recommend trying
hi everyone, I have just had my medichecks results for my iron levels and wondered if I could kindly have some opinions/recommendations. I know they aren’t terrible but I am trying to increase my NDT and want to have as little issues as possible when trying to raise. Would you recommend trying
Beau55
in
Thyroid UK
2 years ago
Iron Infusions
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption. It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are
Joolsg
in
Restless Legs Syndrome
2 years ago
A loud, proud, lonely ride
She's rickety, an old yellow school bus no one knows how to fix With loose, rattling seats A freed bolt vibrating on the metal floor Rattling loud and groaning, a teeth clenching ride It's the prednisone in the gas that keeps her running And even though she ain't what she used to be She's my only
She's rickety, an old yellow school bus no one knows how to fix With loose, rattling seats A freed bolt vibrating on the metal floor Rattling loud and groaning, a teeth clenching ride It's the prednisone in the gas that keeps her running And even though she ain't what she used to be She's my only
WeAreAllMutants
in
PMRGCAuk
2 years ago
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