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Aplastic anaemia
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Questions for Hematologist?
Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of
Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of
BgpjbA
in
Pernicious Anaemia Society
2 years ago
Discussing Doctors Blood Test
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
sunnyday7
in
Thyroid UK
2 years ago
Spacing between Peg injections
Hello, I’ve been on Peg for PV for 2 years. Now down to 45 mcg every two weeks. Platelets remain where my doc wants them (between 100 and 200). Despite PV, I have only ever had HCT at higher end of normal - never higher than that. Over last year, my lymphocytes have been a bit low but no cause for concern
Hello, I’ve been on Peg for PV for 2 years. Now down to 45 mcg every two weeks. Platelets remain where my doc wants them (between 100 and 200). Despite PV, I have only ever had HCT at higher end of normal - never higher than that. Over last year, my lymphocytes have been a bit low but no cause for concern
Mymble
in
MPN Voice
2 years ago
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Test results - can someone help?
Hi all, I had an iron test (fasted, no supplements for iron in months) and could do with some help, if anyone can? Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements
Hi all, I had an iron test (fasted, no supplements for iron in months) and could do with some help, if anyone can? Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements
Suzanneharb
in
Thyroid UK
2 years ago
Vertigo as a side effect of B12 injection?
Hello all, I have “spells” of vertigo which I usually chalk up to sinus congestion or chronic ear problems. I injected 2 days ago, not having had any vertigo prior for a few months. The vertigo started within 12 hours of the hydroxy injection and is quite severe now 48 hours later. Could this be a side
Hello all, I have “spells” of vertigo which I usually chalk up to sinus congestion or chronic ear problems. I injected 2 days ago, not having had any vertigo prior for a few months. The vertigo started within 12 hours of the hydroxy injection and is quite severe now 48 hours later. Could this be a side
EiCa
in
Pernicious Anaemia Society
2 years ago
Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
2 years ago
Just been approved for Vitamin B12 injection treatment.
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
MikeyO
in
Pernicious Anaemia Society
2 years ago
Taking B12 injections daily.
Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD, I have been injecting since Nov. 2021, in the early days, I really didn’t know what I was doing and my GP knew less, I was injecting once a month
Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD, I have been injecting since Nov. 2021, in the early days, I really didn’t know what I was doing and my GP knew less, I was injecting once a month
RisingOne
in
Pernicious Anaemia Society
2 years ago
B12 ferritin connection??
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
gypsy_child
in
Pernicious Anaemia Society
2 years ago
Shout at the Moon
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
pennygates
in
Restless Legs Syndrome
2 years ago
abnormal MCV - what does it mean? Any ideas please?
I have had an abnormal MCV result after having routine blood tests and have had many abnormal MCV and MCH results in the past. Years ago I asked my GP what it meant I think he said it just meant I had a lot of blood… he didn’t think it was anything to be concerned about. I haven’t had contact with
I have had an abnormal MCV result after having routine blood tests and have had many abnormal MCV and MCH results in the past. Years ago I asked my GP what it meant I think he said it just meant I had a lot of blood… he didn’t think it was anything to be concerned about. I haven’t had contact with
Artemis2
in
Pernicious Anaemia Society
2 years ago
co-trimoxazole and anaemia/folate deficiency
I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed Co-trimoxazole for roughly 6 years, and over the last 9 months I have become more and more anaemic, even though I was taking Iron, I have just had
I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed Co-trimoxazole for roughly 6 years, and over the last 9 months I have become more and more anaemic, even though I was taking Iron, I have just had
fapumpkin
in
CLL Support
2 years ago
David Cassidy, alcoholism or pernicious anemia?
just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious anemia along with his mother and his grandfather. I'm wondering I don't know if I'm allowed to post this link but I would love for people to watch
just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious anemia along with his mother and his grandfather. I'm wondering I don't know if I'm allowed to post this link but I would love for people to watch
EllaNore
in
Pernicious Anaemia Society
2 years ago
Anti iFAB tests
Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone know if it’s just your luck on the day (I.e. do antibody levels fluctuate significantly, possibly when you are having a gastritis flare - I’ve
Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone know if it’s just your luck on the day (I.e. do antibody levels fluctuate significantly, possibly when you are having a gastritis flare - I’ve
Sparklyjenson
in
Pernicious Anaemia Society
2 years ago
Side effects from low dose levo
After starting on 50, then 25 and getting bad epigastric pain and palpitations on two different brands, I've now been on 12.5 teva for two weeks and just upped 4 days ago to 25 on advice of endo. The good news is that I'm not getting the epigastric pain and other gastric symptoms are being controlled
After starting on 50, then 25 and getting bad epigastric pain and palpitations on two different brands, I've now been on 12.5 teva for two weeks and just upped 4 days ago to 25 on advice of endo. The good news is that I'm not getting the epigastric pain and other gastric symptoms are being controlled
Vic56
in
Thyroid UK
2 years ago
breathlessness and bp
hi, looking for advice please. Had PA and AIG for 5 years, I inject myself and last 3 weeks have been having episodes of breathlessness/palpitations, have seen Gp and listened to my chest didn’t think heart, but have done lots of tests, not back yet. My BP is always low but at GP was high for me.
hi, looking for advice please. Had PA and AIG for 5 years, I inject myself and last 3 weeks have been having episodes of breathlessness/palpitations, have seen Gp and listened to my chest didn’t think heart, but have done lots of tests, not back yet. My BP is always low but at GP was high for me.
Jb01
in
Pernicious Anaemia Society
2 years ago
Can Pernicious Anemia cause Parkinson type symptoms?
This is my first post. I have found the information here really helpful. I was told 6 weeks ago my blood test showed a very low b12 level of 109 and i was likely to have Pernicious anemia. Because of neuro issues they told me injections every other day and if needed to continue until I improve then every
This is my first post. I have found the information here really helpful. I was told 6 weeks ago my blood test showed a very low b12 level of 109 and i was likely to have Pernicious anemia. Because of neuro issues they told me injections every other day and if needed to continue until I improve then every
Marlboro123
in
Pernicious Anaemia Society
2 years ago
Self-injecting B12 1000mcg/2ml ampoules
I've sourced a ready supply of Hydroxocobalamin 1000mcg (brand name Hevert), but instead of coming in (what is for me) the usual 1ml ampoules, they come in the same strength of 1000mcg, but in 2ml injectable ampoules. Do/can/should I inject these as normal into my upper arm, or is this not the form with
I've sourced a ready supply of Hydroxocobalamin 1000mcg (brand name Hevert), but instead of coming in (what is for me) the usual 1ml ampoules, they come in the same strength of 1000mcg, but in 2ml injectable ampoules. Do/can/should I inject these as normal into my upper arm, or is this not the form with
CyclingDog
in
Pernicious Anaemia Society
2 years ago
Levothyroxine and iron prescription
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
RomyJean
in
Thyroid UK
2 years ago
Lyrica/Pregabalin side effects
I am currently taking Lyrica/pregabalin with side effects of fatigue, clumsiness and eye twitching. Has anyone had these side effects subside with time? I've been taking it for about a month now. It seems to work fairly well but not sure I can handle the side effects. I'm only on 25mg.
I am currently taking Lyrica/pregabalin with side effects of fatigue, clumsiness and eye twitching. Has anyone had these side effects subside with time? I've been taking it for about a month now. It seems to work fairly well but not sure I can handle the side effects. I'm only on 25mg.
charlie1234567890
in
Restless Legs Syndrome
2 years ago
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