I have terrible RLS, it includes not only LEGS, but also my HANDS AND MOUTH CHATTERING

[Ramuu]

I have been suffering, RLS which includes not only my LEGS but also my HANDS AND MOUTH & JAWS CHATTERING, can anyone can help me ??. I HAVE ATTACHED my IRON REPORT.

Patient Name: Mr.RAMANATH T SCollected: 16/Jul/2023 09:14AM

Age/Gender: 64 Y 4 M 24 D /MReceived: 16/Jul/2023 12:52PM

UHID/MR No: APJ1.0022519234Reported: 16/Jul/2023 01:51PM

Visit ID: DPJYOPV16726Status: Final Report

Ref Doctor: Dr.SELFClient Name: PUP 24X7_CREDIT

IP/OP NO:Patient location: Jayangar,Bangalore

DEPARTMENT OF BIOCHEMISTRY

Test Name

ResultUnitBio. Ref. RangeMethod

IRON

TOTAL IRON BINDING CAPACITY ( TIBC)98.0

274µg/dL

µg/dL70-180

261-462% OF SATURATION35.77%14-50TPTZ

TPTZ AND NITROSO-

PSAP

Calculated

IRON STUDIES (IRON + TIBC) , SERUM

Comment:

Transferrin is the primary plasma iron transport protein, which binds iron strongly at physiological pH. Transferrin is generally only

25% to 30% saturated with iron. The additional amount of iron that can be bound is the unsaturated iron-binding capacity (UIBC).

Diurnal variation is seen in serum iron levels—normal values in midmorning, low values in midafternoon, very low values

(approximately 10 μg/dL) near midnight.

TIBC measures the blood’s capacity to bind iron with transferrin (TRF). Estrogens and oral contraceptives increase TIBC levels.

Asparaginase, chloramphenicol, corticotropin, cortisone, and testosterone decrease the TIBC levels.

% saturation represents the amount of iron-binding sites that are occupied. Iron saturation is a better index of iron stores than

serum iron alone. % saturation is decreased in iron deficiency anemia (usually <10% in established deficiency).VV

[Madlegs1]

Namaste.

Welcome. Can you tell us what medications you are on and have been on and the dosages.

Did you get a serum ferritin reading from your blood test?

Hopefully,we can then help you in finding a solution to your troubling symptoms.

[Ramuu in reply to Madlegs1]

Madlegs1, NAMASTE .Thank you very much for your response. Yes, I have PARKINSON's. I am managing with NATURAL DOPA, KAPIKACHUU i.e INDIAN MUCANA. IRON STUDIES (TIBC+IRON), SERUM : My TIBC 274, NORMAL RANGE :70 -180 , IRON 98,NORMAL RANGE: 261 -462 and SATURATION:35.77 %,NORMAL RANGE : 14-50.

[Ramuu in reply to Ramuu]

CAN I HAVE YOUR FEEDBACK ON, WHAT COULD BE THE REASONS FOR HAVING TERRIBLE TREMORS AND HOW TO CONTROL BY MEDICATI ONS OR OTHERWISE

[Ramuu in reply to Madlegs1]

Sorry , mistake : MY iron is : 98 Normal range : 70-180 and TIBC : 274 Nomal Rang e 261-462

[SueJohnson]

I see you have Parkinson's and Parkinson's patients have too much iron as opposed to those of us with RLS who often have too little. I am confused by your test results though. Is your TIBC 98 or 274. And is the 70 - 180 the normal range? Looking up online it says the normal TIBC is 250 - 450 mcg/dl. What does your doctor say?

[Ramuu in reply to SueJohnson]

SueJohnson, Thank you very much for your response. Yes, I have PARKINSON's. I am managing with NATURAL DOPA, KAPIKACHUU i.e INDIAN MUCANA. My TIBC 274, NORMAL RANGE :70 -180 , IRON 98,NORMAL RANGE: 261 -462 and SATURATION:35.77 %,NORMAL RANGE : 14-50.

[Ramuu in reply to SueJohnson]

Sorry , mistake : MY iron is : 98 Normal range : 70-180 and TIBC : 274 Nomal Rang e 261-462

[Ramuu in reply to SueJohnson]

CAN I HAVE YOUR FEEDBACK ON, WHAT COULD BE THE REASONS FOR HAVING TERRIBLE TREMORS AND HOW TO CONTROL BY MEDICATI ONS OR OTHERWISE

[SueJohnson in reply to Ramuu]

I assume your tremors are caused by your Parkinsons. Gabapentin has been used to help with them. I would ask the question on the Cure Parkinsons community in HealthUnlocked.

[Ramuu in reply to SueJohnson]

As, GABAPENTIN is not helping me manage my RLS, rather it is causing BREATHLESSNESS, I am in the process of cutting down the GABAPENTIN, I forgot to mention that I used to take GABAPENTIN,200mg one each after B/F, after LUNC H, and one after Dinner. Now have cut down one 200 mg after B/F , which used to cause BREATHLESSNSESS, after LUNCH while KAPIKACHHU, a NATURAL DOPA, which loses its strength, which I would have taken at 12.45 PM, to puts me in ON condition at1.10 PM. I still TAKING WITHOUT ANY HELP TO MANAGE RLS, one 200mg after LUNCH, one at 5.30 PM i.e. 3 HRS before going to bed

[SueJohnson in reply to Ramuu]

If you don't have any breathing problems or underlying pulmonary problems separate from taking gabapentin, you might want to try switching to pregabalin. Although it is basically the same drug except you don't need to divide the doses, and the side effects are basically the same, some people find that the side effects that bother them on one don't bother them on the other. Divide the gabapentin amount by 6 to get the correct dose. For your 200 mg that would be 1-1/3 of the 25 mg capsules. Since that would be difficult I would suggest just taking one 25 mg capsule.

[Ramuu in reply to SueJohnson]

Thanks for your response. There is some confusion w.r..t dosage calculations of Pregabalin, Am I correct in understanding the dosage of Pregabalin ?? You suggested to me at the end of the para to try Pregabalin, i.e. 25 mg Capsules instead of 200mg GABA, which is one of the divided doses of GABA per day. But You have also mentioned that I don't have to divide the doses, which is a bit confusing, please let me know whether I have to take only one 25mg of Pregabalin or 3 times 25 mg of Pregabalin.

[Avocadopal in reply to Ramuu]

Hello I take Pregabali 25mg x 3 all together at 9pm every evening. This works fairly well. I did increase to Pregabalin x 4 but had very bad tinnitus the next day. I am profoundly deaf so tinnitus was HORRENDOUS. switched back to x 3 Pregabalin but also use an air compression leg massager for 20 mins before bed. This is excellent and most nights sleep very well. Has anyone else tried a leg massager ?

[Ramuu in reply to Avocadopal]

Thank for your response. Your suggestion is for me to take at once 3x25 mg at 9.00PM, I need your advise, whether to take start taking 1x25mg and gradually to increase to 3x25 mg, i.e. by increasing 1x25mg every week, keep a close watch on dosage, where there is maximum relief and stop the dosage increase after that. IF the relief is not there,even at 3x25mg , I can increase further by 1x25mg every week and stop at the dosage, where I get the relief. Please let me know, whether you are taking ANY ADDITIONAL MEDICINE FOR SOUND SLEEP. I DON'T GET ANY SLEEP AT ALL, I HAVE NOT SLEPT FOR THE LAST OVER ONE YEAR

[Avocadopal in reply to Ramuu]

Yes start with Progabalin 1x 25 mg for one month then increase to 2 x pregabalin for another month then to 3 x pregabalin. Increase to 4 if you can but gave me bad tinnitus so use leg massagers every night before bed for 20 mins.

[Ramuu in reply to Avocadopal]

I SLEEP AT 9,00 PM , should I have to take 3x25 mg Pregablin at 5.30 PM i.e . 3 hrs before I go to bed.

[Avocadopal in reply to Ramuu]

Take at 7pm if you go yo bed at 9pm.

[Ramuu in reply to Avocadopal]

THANK you very much for your advise to take in steps of 1x25 mg pregabslin. Can you please send me Leg Massager's Link to purchase an appropriate massager from on line, as there are several types of Leg massagers available on online.

[Avocadopal in reply to Ramuu]

I'm having trouble sending you the link but here is my recommendation.

FIT KING Leg Air Massager for Circulation Sequential Compression Calf Massager for RLS and Edema FT-008A

They cost about £59.00 but worth every penny.

[Ramuu in reply to Avocadopal]

THANK YOU VERY MUCH

[SueJohnson in reply to Ramuu]

Sorry for the confusion. If you were taking more than 600 mg of gabapentin at a time you would need to divide the dose but you are not. Take one 25 mg of pregabalin in place of a 200 mg of gabapentin at the times you are taking them.

[Ramuu in reply to SueJohnson]

THANK you very much for your advice. Please confirm whether I have understood your advice correctly, I have to take 1x25 mg Pregabalin in place of 200mg GABA at the times, I have been taking GABA viz; First dose of 1x25 Pregbalin after LUNCH, Second dose of 1x25mg Pregabalin at5.30 PM i.e about 2 Hrs .30 hrs before bedtime. As I have seen your advice to other patients to take Pregabalin on an empty stomach, for better absorption, I would rather take after Lunch dose of 1x25mg Pregabalin at about 12.30 PM, i.e. about one hr before lunch about 3 HRS before the actual tremor starts and the tremor peaks at 3.30 PM and continue till 7.15 AM next day morning that is when the First dose of KAPIKACHHU a NATURAL DOPA, which was taken at 6.30 AM starts working.

[SueJohnson in reply to Ramuu]

Correct.

[Ramuu in reply to SueJohnson]

THANK YOU VERY MUCH. Correction, the Second dose is at 5.30 P.M., which is about 2hrs to 2.Hrs.30Mins, before, dinner and about 3 Hrs to 3.30 Mins before bedtime

[Ramuu in reply to SueJohnson]

I started taking PREGABALIN 25 mg , one after LUNCH TIME and another 25 mg after Dinner, it was able to control to RLS well first day and on subsequent day, it was not, on third day I took 25mg after Dinner at7.30 PM, the RLS was pretty bad, I took one more 25 mg at 10.30 PM, the RLS was unbearable. I don't know why. I switched back to GABA, but RLS was Unbearable again. Can you pleas advise me.

[SueJohnson in reply to Ramuu]

Did you have any breathlessness on pregabalin? If not I would increase to 50 mg

[Ramuu in reply to SueJohnson]

It seems my above communication was not clear to you, I once again would like to repeat. First day I took 1X25 mg PREGABALIN after LUNCH and 1x25 mg after Dinner, it was able to control RLS tremor, but SECON D DAY I took 1X25 mg PREGABALIN after LUNCH and 1x25 mg after Dinner, it was not able to control the RLS TREMOR, hence I took additional 1x25mg Preagabalin at 10.30 P.M , the RLS TREMOR was unbearable throughout the NIGHT. Third DAy NIGHT , I switched back to GABAPENTIN, it was unbearable again, FOURTH DAY, I continued with GABA, it was better. PLEASE ADVISE.

[SueJohnson in reply to Ramuu]

If you don't have the side effects on pregabalin, increase the dose. 25 mg is a low dose. The maximum is 450 mg. That's why I suggested you increase the 25 mg to 50 mg.

[Ramuu in reply to SueJohnson]

Thank you very much.

[Ramuu in reply to SueJohnson]

I will take additional 25mg and give the feed back.

[Ramuu in reply to SueJohnson]

I would like a clarification w.r.t dosage of Pregabalin, you are suggesting me to take 50mg Pregabalin, inplace of 25mg ??. THAT IS 50mg AFter Lunch , 50mg at 5.30 PM and 50mg after Dinner THAT MEANS 150Mg per day ??

[SueJohnson in reply to Ramuu]

If the 25 mg after lunch or at 5:30 controls your symptoms you don't need to increase it to 50 mg. If it doesn't then yes increase it to 50 mg. You definitely need to increase the after dinner one, which I agree with Avocadopal should be taken 1 t 2 hours before bedtime..

[Ramuu in reply to SueJohnson]

AS I HAD BAD EXPERIENCE WHEN I INCREASED PREGABALIN AFTER DINNER TO 50MG, I AM BIT AFRAID. THIS IS WHAT HAPPENED, I TOOK 1X25 MG AFTER LUNCH, AS MY NATURAL DOPA WEAKENS BY 2.45 PM - 3.30 PM, THE TREMOR STARTED AT, 2.45 PM AND PEAKED BY 3.30 PM AND CONTINUED, RLS TILL NEXT DAY MORNIGN 7.00; AM TILL MY DOPA STARTED WORKIGN , WHICH WAS TAKEN AT 6.30 AM.

AFTER I TOOK 1X25MG, AT 7.45 PM, DINNER. RLS WAS ATN PEAK , SO I TOOK 1X25 MG ADDITIONAL AT 10.30PM, MAKING IT 50MG. BUT THROUGHOUT NIGHT RLS WAS HORRIBLE !! SO I SWITCHED BACK TO GABA. NOW MY TREMOR HAS SET IN ,I AMOT ABLE TO TYPE ANYMO.RE

[SueJohnson in reply to Ramuu]

By the way you don't need to take pregabalin on an empty stomach. That applies to iron tablets.

[bluegrassheart]

With all these symptoms in other parts of your body, is it possible you have augmentation syndrome?

[Ramuu in reply to bluegrassheart]

I DON'T UNDERSTAND, WHAT IS AUGMENTATION SYNDROME ??. PLEASE LET ME KNOW .

[SueJohnson in reply to Ramuu]

The signs of augmentation are when you have to keep increasing your dose to get relief, or when your symptoms occur earlier in the day or there is a shorter period of rest or inactivity before symptoms start or when they move to other parts of your body (arms, trunk or face) or when the intensity of your symptoms worsen. It is referring to dopamine agonists used for RLS.

[Ramuu in reply to SueJohnson]

The third dose of KAPIKACHHU, a NATURAL DOPA, which was taken at 12.30 PM, starts working at 1.10 PM, I will have LUNCH by 1 10 PM - 1.40 PM, thereafter, I take 25 to 50ML of MED ICATED OIL ENEMA, a treatment to GUT HEALTH improvement and take a nap upto 2.30 P.M. By 2.30 P.M. the tremor starts at both the foot bases and toes, then it will quickly spread to both the HANDS, FINGERS, MOUTH, JAWS CHATTERING BEGINS, A JAW GUARD IS WORN TO PROTECT THE TEETH, HEAD & NECK tremors starts, by 3,00 P.m -3.30 PM, the tremor will peak. The neck and head tremors will come down by 4.00 PM, but tremors in other .parts of the body continue till 7.15 AM next day morning, when the KAPIKACHHU taken at 6.30 AM starts working.

[Ramuu in reply to SueJohnson]

Please let me know, why tremor INTENSITY is very very HIGH during NIGHT time ??

[SueJohnson in reply to Ramuu]

Because your dopamine levels are lower at night.

[Ramuu in reply to SueJohnson]

THANK you very much

[Ramuu in reply to SueJohnson]

WHAT happens,if the DOPAMINE levels goes down too much, and it is not corrected by taking DOPA medicine for a longer period of time

[SueJohnson in reply to Ramuu]

Your symptoms just get worse but they will get better again when the dopamine levels go up. You really should be posting these questions on the Parkinson's Forum.

[Ramuu in reply to SueJohnson]

I ,don't take dopa after LUNCH . I will take the dopa dopa dosage only, next day morning at 6.30AM, I MANAGE TO WALK WITHOUT DOPA IN THE EVENING,FOR ONE HR ON THE TERRACE WITH SHAKING HANDS, WITH SHORT PACE, AT TIMES FREEZING, POOR GAIT, AT TIMES TEND TO LOOSE BALANCE,BUT NEVER FALLEN SO FAR. I COME BACK FROM WALK AT ABOUT 7.30 PM AND HAVE FOOD AT 7.45 PM W/O TAKING THE DOPA I AM ABLE TO CHEW THE FOOD AND SWALLOW THE FOOD, I WILL ABLE TO DRINK THE WATER. I HAVE EXCESS GENARTION OF SALIVA, WHICH I SWALLOW, I GET IRRIATION IN THE THROAT, I KEEP CLEARIGN THROAT, SOME TIMES I GET COUGH AND SNEEZING. I KEEP WATCHING THE TV DURIGN DINNER FROM 7.45P.M TO 900 P/M. I SIT ON A CHAIR WITH BROAD HEAD RE, WHILE SITTING, ON THE CHAIR,

MY BOTH THE HANDS ON THE ARMS REST, THERE WILL BE IRRITATIGN TREMORS AT ANKLES, LEGS AND HEAD WILL BE POPING. I SLEEP AT 9.00 PM, AFTER HAVIGN A GLASS OF WATER., TREMOR WILL START AT ABOUT 9.30 PM FROM LEGS AND SPEADS TO HANSDS, FINGERS, NECK,HAND AND LOWER BACK

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during second time urination, at about 4.00am the intensity of the tremor will be less , att bout 5.00AM, 3rd time urination, the tremor intensity will pi ck up.

ANY LINK BETWEEN THE INTENSITY OF TREMORS AND URINATION ??. OR ANY RELATION TO THE AYURVEDIC CLOCK. AS 2.000L AM TO 6.00 AM IS VATA

I CONTROL THE TREMOR FOR short DUARTIONS, BY CHANGING POSITIONS OF MY RIGHT HAND ON THE BED, BUT TREMOR WILL HIT BACKS: THE TREMOR WILL STOP ABSOLUTELY TO ZERO WHEN MY RIGHT HAND WITH FINGERS IN A SEMI-CLOSED POSITION SIMILAR TO AGNI -MUDRA, PLACED ON THE BED AT SHOULDER HEIGHT, AND LEFT HAND IN CHIN- MUDARA POSITION, RAISED A LITTLE ABOVE THE BED BY THE SUPPORT OF A PILLOW.

ALL OF A SUDDEN THERE WILL BE TEMOR PICKS UP AT THE LEGS AND SPREADS TO BOTH THE HANDS AND HEAD, BUT IT CAN BE CONTROLLED FOR SMALL DURATION AGAIN BY CHANGING THE RIGHT HAND POSITION ON THE BED. THIS GOES ON THROUGHOUT THE NIGHT WITHOUT SLEEP !!.

WHETHER TEMOR INCREASE DURIGN THE NIGT AS DOPA GOES VERY LOW AT NIGHT ??

DOPA GOES BELOW CERTAIN MINIMUM LEVEL, WILL DAMAGE THE ORGNAS OF THE BODY ??

[SueJohnson in reply to Ramuu]

You should be asking these questions of your doctor. As far as RLS there is no relation to urination.

[Ramuu in reply to SueJohnson]

I am experiencing , weak knee and thigh with GABAPENTIN, is it normal ?? IT is it high time to leave this MEDICINE ?? whatelse I should try to control the RLS??

[Ramuu in reply to Ramuu]

FASTING WILL HELP ?? can this reverse PD ??

The INSANE BENEFITS Of Fasting & Foods You Need To STOP EATING! | Dr. Pradip Jamnadas\

[Ramuu in reply to Ramuu]

WHETHER FASTIGN WILL HELP RIVERSING OF PD.

youtu.be/RuOvn4UqznU(Not working as expected?)

[Ramuu in reply to Ramuu]

FASTING OVER 36 HRS ;- 72 HRS, WILL KICK IN AUTOFIGY, WHICH WILL RELEASE STEM CELLS FROM BONE MARROW, WHICH IN TURN, REPLACE THE DEAD CELLS IN THE BODY, IN THIS CASE, DOPAMINE CELLS, WHICH WILL REVERSE THE PD. LET ME KNOW YOUR OPINION ABOUT F ASTING.

[SueJohnson in reply to Ramuu]

Muscle pain or weakness is an uncommon side effect. If you decide to stop it reduce by 100 or 200 mg every 2 weeks to avoid withdrawal effects. A low dose opioid like buprenorphine is usually what is next.

[Ramuu in reply to SueJohnson]

For me neither GABAPENTIN nor PREGABALIN,seems to work for me, is it due to B12 Suppliment that I am taking ??> I take plant based B12 supplmiment , please advise : amazon.in/dp/B0BQYYXLDC?ref...

[SueJohnson in reply to Ramuu]

No it is not due to Vit B12

[Ramuu in reply to SueJohnson]

I, have tried with PREGABALI 1x25Mg after lunch at 1.30 - 1.45 PM, alternatively with.200MG of GABAPENTIN please tell advise me on what I should do to completely stop the RLS or keep the RLS to a minimum level, where it does not become irritating viz; stops shaking of Legs. Ankles & Head rigorously, which start after NATURAL DOPA weaken after one hr of taking LUNCH i.e. about 2.30 - 2.45 PM, become very intense at about 3.30 PM to 3.45 PM. At about 4.00 P.M.the rigorous shaking of the HEAD and neck comes down, but there will be irritating fine tremors of toes, fingers, and knee joints, there will be electric shocks at the foot bases, toes, knee joints, hip joints, and at & fingertips. I also experience at random intervals, sudden vigorous tremors of ANKELS, LEGS, and HANDS. DURING THE NIGHT TIME TREMORS AND MOUTH CHATTERING IS OF VERY VERY HIGH INTENSITY. I have tried with 1x25 mg PREGABALIN at .7.30 PM , as it was not controlling the tremors, I took at one more 1x25mg < PREGBALIN AT 10.30 PM, THAT NIGHT IT WAS TERRIBLE , TERRIBLE RLS OF ALL BODY PARTS. YESTERDAY I HAVE SWITCHED BACK TO GABAPENTIN -NT , 200 MG AFTER LUNCH, THIS IS NOT CONROLLING THE RLS , WHICH STARTS AT 2 .40 PM HITS PEAK RLS AT 3.30 PM TO 3.45 PM, AND CONTINUED IN THE EVENING. I HAVE TAKEN 1X200 MG GABA AT 5,30 PM , BUT THE PEAK RLS CONTINUED IN THE EVENING. AFTER DINNER AT 7.30 AM TO 7.45 PM, ,I, TOOK 1X200 MG, GABA AT 7.50 PM BUT I HAD HIGH-INTENSITY RLS TREMORS THROUGHOUT THE NIGHT. AT4. 00 AM ,I URINATED, THEN THE TREMORS CAME DOWN DRASTICALLYY, WHICH I HAV E HIGHLIGHTED BEFORE. BUT TODAY MORNING, 5.30AM , I GOT UPTO GO TO WSAH ROOM, THE RLS WAS VERY VERY HIGH, MY ANKELS , LEGS ,HANDS WERE SHAKING VERY BADLY AND HEAD WAS SHAKIGNG UP AND DOWN, IT WAS A CHALLENGE TO SIT ON THE COMODE MY ANKELS WERE SHAKING BADLY, I WAS LOOSING MY GRIP ON THE FLOOR, I COULD NOT FIRMLY SIT ON THE COMODE SEAT, AS MY HEAD WAS POPING UP AND DOWN, AND TE HANDS WERE SAHKING BADLY HITTING THE SIDE WALLS OF THE WASH ROOM, WITH GREAT DIFFICUTY , MY WIFE WAS HOLDING ME CARE FULLY. ,I PASED THE URINE. MY WIFE BROUGHT ME BACK, AND PUT ME ON THE CHAIR, MY MOUTH AND JAWS WERE CONTINEOUSL CHATTERING , MAKING BIG NOISE. WITH GREAT DIFFICULTY, I DRANK AYURVEDIC KASHAYA AT ABOUT 5.30 AM AND KAPIKACHHU AT 6.30 AM, IT WAS A NIGHT MARE,

[SueJohnson in reply to Ramuu]

I'm afraid I cant help you. The symptoms sound much more like Parkinson's. Talk to your doctor.

[Ramuu in reply to SueJohnson]

THANK YOU VERY MUCH FOR YOUR RESPONSE. YOU SUSPECT THAT I AM EXPERIENCING NONSTOP HORRIBLE TREMORS ARE DUE TO PARKINSON'S ONLY OR THEY ARE R . L . S INDUCED PARKINSON'S. YOUR REASONING FOR MY CONDITION IS THAT AS THE NEITHER THE GABAPENTIN NOR PREGABALIN DID NOT CONTROL MY TREMOR CONDITION. YOU HAVE SUGGESTED THE NEXT THING, WOULD BE TO GO FOR " A low-dose opioid like buprenorphine is usually what is next". BUT I HAVE TAKEN OPIOIDS FOR TREMOR PAINS AND TO GET GOOD SLEEP, BUT THE OPIOIDS, HAVE NOT BEEN HELPFUL, AS THE INTENSITY OF TREMORS AND ASSOCIATED PAIN, DOE NOT ALLOW ME TO SLEEP WITH EVEN STRONG OPIOIDS, RATHER THEY MAKE ME SICKER, AS THEY WORK IN OPPOSITE DIRECTIONS, I.E. OPIOIDS TRY TO PUT ME TO SLEEP, WHEREAS TREMORS AND ASSOCIATED PAIN DUE TO TREMORS KEEP ME AWAKE, WHICH WILL BURN MY EYES, BECOMES RED AND THIS MAKES ME FEEL TIRED AND SICK.

I CONSULT AN AYURVEDIC DOCTOR FOR MY CONDITION, AS PER THEM, MY TREMORS ARE DUE TO EXCESSIVE VATA OR GAS PRESENT IN THE BODY. THIS IS ALSO TERMED AS VATA IMBALANCE. ANCIENT INDIAN AYURVEDA, OVER 5000 YEARS OLD, GUT HEALTH IS RESPONSIBLE FOR ALL THE DISEASES IN THE BODY, WHICH NOW MODERN SCIENCE HAS ALSO NOW DISCOVERED. AYURVEDA TREATS THE VATA DISORDER BY ADMINISTERING MEDICATED OIL ENEMA DAILY TILL IT IS CORRECTED AND ALSO BY ENEMA BY USING DECOCTION OF 10 MEDICINAL HERBS AND ROOTS, THIS IS ALSO TERMED A S KHASHAYA VASTI. THERE WILL BE DIET 'RESTRICTIONS TO CONTROL THE VATA. IT IS A LONG-DRAWN AFFAIR !!.

[Ramuu in reply to SueJohnson]

can I TRY magnesium glycinate ?? WILL IT HELP ME ?? PLEASE A DVISE THE DOSAGE

[SueJohnson in reply to Ramuu]

Yes it may help your RLS. Take it at night and start with 200 mg and can gradually increase it to 350 mg. if it doesn't bother you.

[Ramuu in reply to SueJohnson]

THANK YOU VERY MUCH.SORRY I DIDN'T SEE HEALTHUNLOCKED FOR LAST 3 DAYS, AS MY CONDITION WAS PRETTY BAD . I WILL GIVE YOU FEED BACK.

[Ramuu in reply to SueJohnson]

I HAVE NOW CONSULTED NEUROLOGIST. HE HAS ADVISED ME TO TAKE PRAMIPEX 0.25 M G AFTER FOOD AT NIGHT TIME BEFORE GOING TO BED FOR R.L.S. AND H E HAS PRESCRIBED PACITANE 0.2 MG FOR PARKINSON'S TERMORS. PLEASE ADVISE.

[Ramuu in reply to SueJohnson]

The Neurologist has to me to drop me the 200Mg at a time, when I take the PARIMPEX. Today , I will drop 200Mg , after dinner i.e at 7.45 PM. Now in the After noon, I have taken 0.25 MG PACIATNE at 12.30 PM before LUNCHand 0.25 MG ,PARIMPEX aftre lUNCH at1.45 PM. <I will give youfeed back of these medication tommow

[Ramuu in reply to SueJohnson]

TO BE TAKEN AFTER FOOD OR BEFORE ??

[SueJohnson in reply to Ramuu]

It doesn't matter.

[Ramuu in reply to SueJohnson]

can I TRY magnesium glycinate ?? WILL IT HELP ME ?? PLEASE A DVISE THE DOSAGE

[Ramuu in reply to SueJohnson]

can I TRY magnesium glycinate ?? WILL IT HELP ME ?? PLEASE A DVISE THE DOSAGE

[Ramuu in reply to SueJohnson]

I HAVE OBSERVED THAT I HAVE PLMD !!, whether GABA AN GIVE SOME RELIEF ??

[SueJohnson in reply to Ramuu]

Yes it is used for that.

[Ramuu in reply to SueJohnson]

THANK YOU, VERY MUCH FOR YOUR REPLY

[SueJohnson]

Some things that can make RLS symptoms worse for some people are alcohol, nicotine, caffeine, sugar, carbs, foods high in sodium, foods that cause inflammation, ice cream, estrogen, dehydration, MSG, collagen supplements, electrolyte imbalance, melatonin, stress and vigorous exercise. Some things that help some people include caffeine, moderate exercise, weighted blankets, compression socks, elastic bandages, masturbation, magnesium glycinate, fennel, low oxalate diet, selenium, 5 minute shower alternating 20 seconds cold water with 10 seconds hot water finishing with hot water for another couple of minutes, hot baths, distractions, CBD, applying a topical magnesium lotion or spray, doing a magnesium salts soak, vitamins B1, B3, B6, B12, D3, K2, if deficient, and potassium and copper if deficient, massage including using a massage gun, using a standing desk, listening to music, meditation and yoga.