Search
Search
About
Log in
Join
Experiences with
Aplastic anaemia
Posts
Communities
7,649 public posts
Filter results
Topamax insomnia?
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
wantokporo
in
Restless Legs Syndrome
1 year ago
How likely is it I have PA
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Sparkleros
in
Pernicious Anaemia Society
8 months ago
Tested my b12 level again after loading doses
Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000 microgram cyanocobalamin. At the first one my vitb12 level was 165(160-845pg/ml). I injected 5 dose of vitb12 shot during 56 days (July 07-september01
Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000 microgram cyanocobalamin. At the first one my vitb12 level was 165(160-845pg/ml). I injected 5 dose of vitb12 shot during 56 days (July 07-september01
Emiroskui
in
Pernicious Anaemia Society
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
waiting for ferritin infusion
I suffer with low iron and often have anaemia. The problem I am having is that when I have my infusion my ferritin goes up to 163 and then it slowly starts dropping I normally get about 6 months before my levels start dropping that I need regular blood tests I start feeling exhausted but I need to
I suffer with low iron and often have anaemia. The problem I am having is that when I have my infusion my ferritin goes up to 163 and then it slowly starts dropping I normally get about 6 months before my levels start dropping that I need regular blood tests I start feeling exhausted but I need to
Jolee91
in
Restless Legs Syndrome
1 year ago
Taking Ferrous Sulphate Exhausts Me, Any Alternatives?
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Sparklymacarons
in
Pernicious Anaemia Society
1 year ago
I noticed something.
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
1 year ago
Iron could help B12 levels
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
MarvelDC
in
Pernicious Anaemia Society
8 months ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
1 year ago
Boron, an interesting article about supplement for T3 increase
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Humphre
in
Thyroid UK
8 months ago
Ferritin success, anyone wishing to try the same ... especially if vegan
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
thyr01d
in
Thyroid UK
1 year ago
My evaluation of which form of B12 is best.
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
update pins n needles in both thumbs
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
9lives
in
PMRGCAuk
1 year ago
B12 and Serum Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Mumof3z
in
Pernicious Anaemia Society
1 year ago
Elevated enzymes from my blood test
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
Hope4me1
in
British Liver Trust
1 year ago
Advice on latest test results
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Shoesy99
in
Thyroid UK
8 months ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
advice please b12/folate
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Emmy1991
in
Pernicious Anaemia Society
1 year ago
So nervous
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
25092
in
Pernicious Anaemia Society
10 months ago
Conjecture
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
1
...
33
34
35
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3528 results
Thyroid UK
2437 results
Restless Legs Syndrome
352 results
View top 10 communities
Sort by
Most Relevant
Newest