I would appreciate some feedback on your own experiences of diagnosis.
- 3 months ago I had a B12 level of <142 and a range of related symptoms
- Full Blood count did not show an abnormalities but I was also deficient in ferritin.
- I am 37 and have been diagnosed with hashimotos since I was 23. I take thyroxine.
- I was prescribed the 6 injections and then 1 a month for 3 months
- intrinsic factor came back negative
- Gastric Parietal Cell Antibodies came back positive on Friday but the notes on the results said ‘they are no longer recommended for the diagnosis of PA’ quotes from NICE guidelines 2015.
I’ve yet to see the Dr again as he requested I book a non urgent apt which will likely take a while!
Thanks for reading!
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Sparkleros
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If you have or had neurological symptoms, my understanding is that you should be on the pattern "For people with neurological involvement" outlined in link below.
One thing I urge UK forum members to do is to track down the local B12 deficiency guidelines used by their ICB (Integrated Care Board) in England or Health Board in Wales/Scotland and compare them with NICE CKS B12 deficiency and Folate deficiency link in my other reply.
Also worth looking at ICB/Health Board guidelines for Anaemia/Macrocytic Anaemia.
Macrocytic anaemia can be associated with both B12 deficiency and Folate deficiency.
Red blood cells are larger than normal in macrocytic anaemia.
Some local B12 deficiency guidelines are not helpful. See blog post below.
As Nackapan says, we really need to see your test results to help you more. If ferritin's low you need a full iron panel to get a better clinical picture. Check folate and vit D levels and mention any neurological symptoms if you have any.
- neurological symptoms prior to injections were: tingling in left hand and tongue, unexplained anxiety and first experience of a panic attack, slowing of thought - unable to multi task like usual and substituting words.
- also had muscle weakness and pain in legs after little exercise.
- all have resolved apart from tingling in my tongue and some anxiety.
- ferritin levels were 15 (ref range 30-200) no full iron study done. Started taking 1 iron tablet a day although it’s intermittent because I don’t tolerate them well! I’ve always struggled to get ferritin above 30.
- folate level was 4.5 ug/L and is now 6 post injections. (Ref range 3 - 29.5)
- B12 was <148 (ref range 200-900) and is now 749 2 months post 6 injections.
Thanks for advice and all the links on above posts!
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