Muscle twitching around the body and in the tongue I’m convinced I have mnd (ALS)

[Mark02]

THIS IS A LONG POST BUT PLZ READ TO THE END AND HELP ME OUT IF YOU HAVE GONE THROUGH THE SAME THING. I feel crazy for writing this but iv had muscle twitches for last 9 months that has gradually got worst and worst and now my muscle tightens up for a few seconds then stop. at the start after a month or so I searched my symptoms up online and convinced my self I had a brain tumour! Crazy ino I went to the doctors 7 times and the hospital a few times about them. I’m 18 and even went to the extremes to pay £375 on a MRI scan on my brain and neck which obviously came up clear apart from mucopolypoid disease which isn’t serious but was casing pressure in my forehead but as the twitching has got worst and now I have twitches in my tongue that started a few months ago and weakness in my legs I have convinced my self I have mnd or als in other words I’m terrified and generally think I’m going to be paralysed soon and dead not soon after and I can’t shake the thoughts out of my head I have a 4 month old baby and all these big plans for my future but I’m convinced I have this mnd and the doctors won’t do any test I’m trying this out for the first time to see if anyone has gone through or is going through what I am if you have I beg you to reply with your story please I don’t know what else to do, one more thing if this doesn’t work can u pay private doctors to do tests for diseases they don’t think you have???

[Dorsey]

What have you been told it is.?

[Dolphin14]

Are you taking any medications? If so check out the side effects see if anything is there.

[TrustnGod]

Hello Mark. You are not alone. I went through this exact thing and I was CONVINCED I had ALS. I was looking up treatments and all sorts of stories. I would literally come home from work EAGER to read about ALS. it was ridiculous. I literally had an entire document on ALS. My doctor ended up having me see a neurologist because she thought I could have carpal tunnel. My symptoms were weakness in my hands and legs and painful muscle twitching that would literally keep me up at night. The neurologist did an MRI and an EEG. The day of the EEG I was praying continuously. I was so nervous and I felt so sick. Well got the EEG and the results were normal. I asked the doctor “no ALS”? And she and the technician helping her both laughed and told me I’d been googling too much. I’m not kidding when I say that afterwards, every bit of weakness I had went away. The muscle twitches continue but I think that’s just apart of anxiety. Our muscles need oxygen and nutrients to be able to work properly. But anxiety often causes too much or too little oxygen to get to our muscles which then causes them to act a little weird. I hold my breath when I’m anxious and days when I’ve been holding my breath a lot tend me to days when I also experience a lot of muscle spasms. Also, dehydration is a big one too. I try to really drink water and breathe deeply when I have the spasms and it helps immensely.

It’s very very rare for anyone to have ALS let alone an 18 year old. I’m sure you’re fine. Since I live in the US, I’m not sure if you’d be able to find a doctor who would do unnecessary testing. But again, I do think you’re ok.

~Lia