I am in a mental quandary. After reading a out xerostomia(dry mouth, often permanent), I am seriously considering cancelling the Ac225 and just going with a prostatectomy along with having more APCEDEN vaccines made. Have been stable for 2 full years confirmed by PSMA PET scans now using the vaccines of and on for over 2 years and Keytruda for a year. Also, a short Zytiga stint, and 18 months or so of Xtandi, and Xgeva. Started in August 2014 with PSA of 212, Gleason 9 so it's an aggressive SOB'ing strain. Was showing up in my spine, cheekbone, and sacrum in March, 2017. Vaccines only resolved appx 30 mets but the primary has remained
Feel really good and may be an outlier for awhile if the treatment I am on doesn't have to fight the primary anymore. And damn, just had Keytruda and found out my alk phos is up to 117 from 56 on July 25th which is the lowest it had been in some time. It always goes down after taking a vaccine which is what I am having for lunch. I think surgery followed by more vaccines etc is my best bet for now. I've had 10 surgeries in my life so what's one more.