Search
Search
About
Log in
Join
Experiences with
Amyotrophic lateral sclerosis (ALS)
Posts
Communities
899 public posts
Filter results
My Cancer Is Going Strong & A Warning
First, the warning. A week ago, I was in the airport in Bucharest, Romania after finishing a Danube river cruise. I set off an alarm and was taken out of line for a Geiger counter check. Five weeks after my VISION Lu-177 infusion and I was still radioactive! Romania had a radiation terrorist attack
First, the warning. A week ago, I was in the airport in Bucharest, Romania after finishing a Danube river cruise. I set off an alarm and was taken out of line for a Geiger counter check. Five weeks after my VISION Lu-177 infusion and I was still radioactive! Romania had a radiation terrorist attack
Stegosaurus37
in
Advanced Prostate Cancer
5 years ago
What does this result mean please can anyone help
Hi hope someone can help I had thyroid blood test and results came back saying Abnormal need to speak with doctor ,they have booked me appointment by phone on 15 sept.my results were as follows TSH level 0.081 miu/L ( 0.38-5.33) says below low reference limit.T4 level 10.3 pmol/L ( 7.0-16.0) serum free
Hi hope someone can help I had thyroid blood test and results came back saying Abnormal need to speak with doctor ,they have booked me appointment by phone on 15 sept.my results were as follows TSH level 0.081 miu/L ( 0.38-5.33) says below low reference limit.T4 level 10.3 pmol/L ( 7.0-16.0) serum free
jessiejakes
in
Thyroid UK
5 years ago
What kind of Alk Phos numbers suggest bone mets?
Are numbers markedly elevated when there are bone mets or just higher than ones " usual " ie... substantially out of range... or just elevated substantially relative to ones historical readings
Are numbers markedly elevated when there are bone mets or just higher than ones " usual " ie... substantially out of range... or just elevated substantially relative to ones historical readings
Tommyj2
in
Advanced Prostate Cancer
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Gut microbes and neurological health
If it can help
ALS
, There is hope for us all. What say you all?
If it can help
ALS
, There is hope for us all. What say you all?
monkeybus
in
AMN EASIER
5 years ago
Looking for data-
Looking for data-currently on taxotere and just finished 3rd infusion- Sharp increase over 200 points in Alk pho’s and AST, ALT. Yes I have bone and liver Mets- but this is second rechallenge with Taxotere after first in 2016- numerous treatments- Xofigo Xtandi Zytiga - You would think if taxotere is
Looking for data-currently on taxotere and just finished 3rd infusion- Sharp increase over 200 points in Alk pho’s and AST, ALT. Yes I have bone and liver Mets- but this is second rechallenge with Taxotere after first in 2016- numerous treatments- Xofigo Xtandi Zytiga - You would think if taxotere is
DSEE
in
Advanced Prostate Cancer
5 years ago
Enzalutamide + Abiraterone Acetate in Bone CRPC
New study below [1]. Abiraterone [Zytiga, Abi] & Enzalutamide [Xtandi, Enza] both target the androgen receptor [AR] axis, with Abi limiting the supply of androgens & Enza restricting access to the AR itself. It might seem worthwhile to combine the two, but that would depend on how effective the drugs
New study below [1]. Abiraterone [Zytiga, Abi] & Enzalutamide [Xtandi, Enza] both target the androgen receptor [AR] axis, with Abi limiting the supply of androgens & Enza restricting access to the AR itself. It might seem worthwhile to combine the two, but that would depend on how effective the drugs
pjoshea13
in
Advanced Prostate Cancer
5 years ago
PARKINSONS, RLS, ALS, MS INFORMATION, HELP
This information may save my life (and yours). I don't know, but we're all searching here. See what you think: https://www.youtube.com/watch?v=6d-yiLiDc8w&list=WL&index=5&t=0s
This information may save my life (and yours). I don't know, but we're all searching here. See what you think: https://www.youtube.com/watch?v=6d-yiLiDc8w&list=WL&index=5&t=0s
SuperMNew
in
Restless Legs Syndrome
5 years ago
Still having crazy thoughts
I still have this health anxiety to where it switches almost daily to me having parkinsons or
als
or both. I obsess over my twitches and every sensation in my body. I literally have nightmares about it.
I still have this health anxiety to where it switches almost daily to me having parkinsons or
als
or both. I obsess over my twitches and every sensation in my body. I literally have nightmares about it.
Ericamo1
in
Anxiety and Depression Support
5 years ago
Advice on an MO at Johns Hopkins?
I am going to be in Baltimore in a couple of weeks and am thinking it might be a good idea to try to schedule a consultation. I live in Utah, am a physician who did pediatric residency at Johns Hopkins long ago, don’t know anyone outside of pediatrics there now. I have CHEK2c1100 deletion (blood test
I am going to be in Baltimore in a couple of weeks and am thinking it might be a good idea to try to schedule a consultation. I live in Utah, am a physician who did pediatric residency at Johns Hopkins long ago, don’t know anyone outside of pediatrics there now. I have CHEK2c1100 deletion (blood test
Milkweed
in
Advanced Prostate Cancer
5 years ago
The Importance of 1) sleep, 2) exercise type, and 3) time of day: imperative to understand the correlation to minimize motor dysfunctions.
I am NOT a PWO/PD/
ALS
person who is on a journey with this type of neurodegenerative affliction, nor am I a care giver of someone afflicted. I do coordinate 2 PD support groups, etc. but I don’t consider that patient care. As some of you know, I am not “sugar and sweetness”.
I am NOT a PWO/PD/
ALS
person who is on a journey with this type of neurodegenerative affliction, nor am I a care giver of someone afflicted. I do coordinate 2 PD support groups, etc. but I don’t consider that patient care. As some of you know, I am not “sugar and sweetness”.
sharoncrayn
in
Cure Parkinson's
5 years ago
GRAVES AND THYROTOXICOSIS : GASTROINTESTINAL FINDINGS
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ GASTROINTESTINAL FINDINGS The appetite is characteristically increased. The effect of this increase is to offset, in part (sometimes completely), the loss of weight that might be expected
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ GASTROINTESTINAL FINDINGS The appetite is characteristically increased. The effect of this increase is to offset, in part (sometimes completely), the loss of weight that might be expected
ling
in
Thyroid UK
5 years ago
Can we give CuATSM a try without waiting for the Australian trial completion (5 years from now)
Mutations in SOD1, which alter its metal binding capacity and can result in protein misfolding and aggregation, have been linked to familial amyotrophic lateral sclerosis (
ALS
).
Mutations in SOD1, which alter its metal binding capacity and can result in protein misfolding and aggregation, have been linked to familial amyotrophic lateral sclerosis (
ALS
).
Farooqji
in
Cure Parkinson's
5 years ago
PEA (Normast) More effective with Ashwagandha?
PD and
ALS
are both disorders of the serotonergic system. Serotonin regulates melatonin (insomnia) and our autonomic function (dry eyes, gut dysmotility etc.) On the
ALS
forums, people are combining PEA with ashwagandha to good effect.
PD and
ALS
are both disorders of the serotonergic system. Serotonin regulates melatonin (insomnia) and our autonomic function (dry eyes, gut dysmotility etc.) On the
ALS
forums, people are combining PEA with ashwagandha to good effect.
SilentEchoes
in
Cure Parkinson's
5 years ago
Need your opinion on today's bloodwork.
Okay, So as mentioned before, I am aggressively loosing weight to deal with my liver disease. I have been on an all liquid diet for a month an half and on average I have been losing 7lbs a week since. Since my Fibroscan test in April, (where I was around 350lbs), I am not around 258lbs. I am slated
Okay, So as mentioned before, I am aggressively loosing weight to deal with my liver disease. I have been on an all liquid diet for a month an half and on average I have been losing 7lbs a week since. Since my Fibroscan test in April, (where I was around 350lbs), I am not around 258lbs. I am slated
Johnnyjaundice
in
Living with Fatty Liver and NASH
5 years ago
Health anxiety worry
I am 19 years old and I stress out about every little thing my body is doing and a month or two ago I got muscle twitches and I started worrying
Als
and I went to my GP and she said she was not worried about it and said if she was she would have referred me to a neurologist.
I am 19 years old and I stress out about every little thing my body is doing and a month or two ago I got muscle twitches and I started worrying
Als
and I went to my GP and she said she was not worried about it and said if she was she would have referred me to a neurologist.
Nikofun
in
Anxiety Support
5 years ago
Advanced Metastatic PC-Cervical Lymph node involvement
Hello All! I am active on other sites/forums but in need of some help/advice. Hubby dx at 44 yrs in April of 2017. Extensive mets to bones and lymph nodes. Diagnosed based on enlarged cervical lymph node above the clavicle on the left side of his neck. Completed 6 cycles of , takes daily casodex with
Hello All! I am active on other sites/forums but in need of some help/advice. Hubby dx at 44 yrs in April of 2017. Extensive mets to bones and lymph nodes. Diagnosed based on enlarged cervical lymph node above the clavicle on the left side of his neck. Completed 6 cycles of , takes daily casodex with
Bird8
in
Advanced Prostate Cancer
5 years ago
Advice on confusing results
I would really appreciate one of you lovely forumites giving me feed back on these blood results please? After waiting 4.5 weeks to see a GP and going armed with an ammo of facts and figures all gleaned from previous posts, advice, suggested links and personal research I was bowled over to finally find
I would really appreciate one of you lovely forumites giving me feed back on these blood results please? After waiting 4.5 weeks to see a GP and going armed with an ammo of facts and figures all gleaned from previous posts, advice, suggested links and personal research I was bowled over to finally find
ILR2019
in
Thyroid UK
5 years ago
Newbie to this forum - hello everyone
I saw my GP in March for a routine health check and I told him my ankles and abdomen had become swollen - he ordered blood tests and an abdominal ultrasound. Test results showed Serum alkaline phosphatase level at 150 and Serum alanine aminotransferase level at 54 (both above the high reference limit
I saw my GP in March for a routine health check and I told him my ankles and abdomen had become swollen - he ordered blood tests and an abdominal ultrasound. Test results showed Serum alkaline phosphatase level at 150 and Serum alanine aminotransferase level at 54 (both above the high reference limit
IanM1957
in
British Liver Trust
5 years ago
Alk phos went up.
Hello everyone, I was diagnosed almost.a year ago after I gave birth to my daughter. My alk phos was around 348. I started urso last July. I have no scarring. My numbers came down to 151. However. I went to the doctor and it went up to 187. I'm worried and frankly I always been stressed since being
Hello everyone, I was diagnosed almost.a year ago after I gave birth to my daughter. My alk phos was around 348. I started urso last July. I have no scarring. My numbers came down to 151. However. I went to the doctor and it went up to 187. I'm worried and frankly I always been stressed since being
Th1712
in
PBC Foundation
5 years ago
Health anxious but all good
Feeling fine , but just getting creeping thoughts wheather is it anxiety ir somethin else , getting numb arms, muscle twitches, and in my mind it could be something bad like MS,
ALS
etc..but i try not to overthink it , i also fear saying this will make it come true, i really feel like im messed up
Feeling fine , but just getting creeping thoughts wheather is it anxiety ir somethin else , getting numb arms, muscle twitches, and in my mind it could be something bad like MS,
ALS
etc..but i try not to overthink it , i also fear saying this will make it come true, i really feel like im messed up
Kevin160
in
Anxiety Support
5 years ago
1
...
20
21
22
...
45
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Thyroid UK
174 results
Cure Parkinson's
116 results
Advanced Prostate Cancer
105 results
View top 10 communities
Sort by
Most Relevant
Newest