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MID-COURSE TREATMENT SNAPSHOT 25Sept19
Lupron injection was 29MAY19, so I'm about 4 months into a 6 month ADT cycle. PSA - 0.8 (down from 2.14 29MAY19) Testosterone - 3 (down from 359, 29MAY19) Testosterone (free) - 0.5 (down from 42.7, 29MAY19) ALT and AST both slightly above normal. Glucose a little above normal. Alk Phos normal
Lupron injection was 29MAY19, so I'm about 4 months into a 6 month ADT cycle. PSA - 0.8 (down from 2.14 29MAY19) Testosterone - 3 (down from 359, 29MAY19) Testosterone (free) - 0.5 (down from 42.7, 29MAY19) ALT and AST both slightly above normal. Glucose a little above normal. Alk Phos normal
GranPaSmurf
in
Advanced Prostate Cancer
5 years ago
Rising Liver enzymes 16 months post liver transplant!
Hello guys.. need your help Has anyone experienced rising Liver enzyme levels after being stable for most of the time? I'm really worried. My SGPT is 322, SGOT is 267, GGT and ALP are also raised.
Hello guys.. need your help Has anyone experienced rising Liver enzyme levels after being stable for most of the time? I'm really worried. My SGPT is 322, SGOT is 267, GGT and ALP are also raised.
akanksha9479
in
British Liver Trust
5 years ago
Anti ds dna and cardio lipid results
Hello, you have all been a big help previously and I was after, what will hopefully be, one final bit of help. Back story, positive ANA result and Ro52 and RO60 positive. Found out I was pregnant on the day of my first rheumatologist appointment so he requested the anti ds dna and sticky blood blood
Hello, you have all been a big help previously and I was after, what will hopefully be, one final bit of help. Back story, positive ANA result and Ro52 and RO60 positive. Found out I was pregnant on the day of my first rheumatologist appointment so he requested the anti ds dna and sticky blood blood
Ilovechips81
in
LUPUS UK
5 years ago
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Does anyone have any info on endometriosis and peri menopause/menopause?
I am currently peri menopausal and I’m experiencing symptoms in relation to the lowering of oestrogen. I have not had a period for a year, I’ve had dry eyes, hair loss, forgetfulness, mind fog, emotional and low mood. My GP recommend St Johns Wort and isoflavon herbal supplements, which I’ve been on
I am currently peri menopausal and I’m experiencing symptoms in relation to the lowering of oestrogen. I have not had a period for a year, I’ve had dry eyes, hair loss, forgetfulness, mind fog, emotional and low mood. My GP recommend St Johns Wort and isoflavon herbal supplements, which I’ve been on
Sooshandy
in
Endometriosis UK
5 years ago
Upper right quadrant pain
Hello all! I think this is my first post. I visit this site a few times a week and appreciate all the information you wonderful people provide. I was diagnosed with PBC 2 1/2 years ago after a slightly elevated ALT 32.. the blood tests revealed AMA 1:641, I was referred to a gastroenterologist who
Hello all! I think this is my first post. I visit this site a few times a week and appreciate all the information you wonderful people provide. I was diagnosed with PBC 2 1/2 years ago after a slightly elevated ALT 32.. the blood tests revealed AMA 1:641, I was referred to a gastroenterologist who
Lili1214
in
PBC Foundation
5 years ago
Hopeful for diagnosis tomorrow!🤞
Tomorrow I see my rheumatologist consultant after over 6 months on hydroxychloroquine and two depomedrone steroid injections. I have positive ANA and have had symptoms escalating for over 4 years. Been under neurologist and then rheumatologist to finally get to this point. The consultant was unwilling
Tomorrow I see my rheumatologist consultant after over 6 months on hydroxychloroquine and two depomedrone steroid injections. I have positive ANA and have had symptoms escalating for over 4 years. Been under neurologist and then rheumatologist to finally get to this point. The consultant was unwilling
Sallmell
in
LUPUS UK
5 years ago
Costochondritis in Lupus
Chest pain in Lupus - when is it due to costochondritis? Chest pain in Lupus is a potentially serious condition and can arise because of different problems. These include: Pleurisy (inflammation of the lung lining) Pulmonary Embolism (a blood clot) Pericarditis (heart lining inflammation) Myocardial
Chest pain in Lupus - when is it due to costochondritis? Chest pain in Lupus is a potentially serious condition and can arise because of different problems. These include: Pleurisy (inflammation of the lung lining) Pulmonary Embolism (a blood clot) Pericarditis (heart lining inflammation) Myocardial
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Joint pain
Hi everyone! I have been lurking for awhile without posting. I have had many symptoms over the years, mainly headaches and fatigue that have always been dismissed. In January I started having pain in my toe joints on the right side of my foot that would come and go. It then spread to my left foot as
Hi everyone! I have been lurking for awhile without posting. I have had many symptoms over the years, mainly headaches and fatigue that have always been dismissed. In January I started having pain in my toe joints on the right side of my foot that would come and go. It then spread to my left foot as
rue04
in
LUPUS UK
5 years ago
Positive Ana and pregnancy
You guys have been a great help and wonder if you can help again? So 4weeks pregnant with positive Ro 52 and 60. No diagnosis yet from first private rheumatology appointment. (Either inactive lupus or sjogrens) currently listed as inactive connective tissue disorder Midwives have just advised I should
You guys have been a great help and wonder if you can help again? So 4weeks pregnant with positive Ro 52 and 60. No diagnosis yet from first private rheumatology appointment. (Either inactive lupus or sjogrens) currently listed as inactive connective tissue disorder Midwives have just advised I should
Ilovechips81
in
LUPUS UK
5 years ago
Had my first consultant appointment
Hi, I had a positive Ana test 1:320 and positive RO 52 and 60. Good news is that whatever I have he believes is currently inactive. No joint swelling, mouth looks ok, eyes are producing tears. Blood pressure all good too. So no medication for now. Just had the dna and aps test done today as gp hadn
Hi, I had a positive Ana test 1:320 and positive RO 52 and 60. Good news is that whatever I have he believes is currently inactive. No joint swelling, mouth looks ok, eyes are producing tears. Blood pressure all good too. So no medication for now. Just had the dna and aps test done today as gp hadn
Ilovechips81
in
LUPUS UK
5 years ago
Does this sound right? Really confused
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
chicolini
in
Pernicious Anaemia Society
5 years ago
Advice needed
Iv had to come off Prozac made me feel so ill. I just have 10mg if Amitriptyline at night. A friend of mine has had good results with St. John’s wort. Does anyone know if it’s safe to take during the day. With me having the other tablet at night. I know there’s certain things that don’t mix with St.
Iv had to come off Prozac made me feel so ill. I just have 10mg if Amitriptyline at night. A friend of mine has had good results with St. John’s wort. Does anyone know if it’s safe to take during the day. With me having the other tablet at night. I know there’s certain things that don’t mix with St.
Megs64
in
Anxiety and Depression Support
5 years ago
AMA 2 results.
My daughter has a positive AMA 2 reported back not as a titre but as 2560.0. Also ANA positive, speckled titre 80. Does anyone know what that means and how the AMA 2 result can be translated to titre. Thank you
My daughter has a positive AMA 2 reported back not as a titre but as 2560.0. Also ANA positive, speckled titre 80. Does anyone know what that means and how the AMA 2 result can be translated to titre. Thank you
sueprou1956
in
PBCers Organization
5 years ago
Curious about labs from past
Last night I dug more into my all my labs and I noticed besides my gfr being low the creatine was high but my am phos was always low this has been since 2014. I don’t really understand much about alk phos does that have anything to do with kidneys
Last night I dug more into my all my labs and I noticed besides my gfr being low the creatine was high but my am phos was always low this has been since 2014. I don’t really understand much about alk phos does that have anything to do with kidneys
Lexilou77
in
Kidney Disease
5 years ago
New PSMA ligand treatment with less side effects than Ac225?
I am in a mental quandary. After reading a out xerostomia(dry mouth, often permanent), I am seriously considering cancelling the Ac225 and just going with a prostatectomy along with having more APCEDEN vaccines made. Have been stable for 2 full years confirmed by PSMA PET scans now using the vaccines
I am in a mental quandary. After reading a out xerostomia(dry mouth, often permanent), I am seriously considering cancelling the Ac225 and just going with a prostatectomy along with having more APCEDEN vaccines made. Have been stable for 2 full years confirmed by PSMA PET scans now using the vaccines
Fuzzman77
in
Advanced Prostate Cancer
5 years ago
Positive ANA, antiRO52 and AntiRO60 - any advice appreciated
Hi, I wrote a while ago as I had been told I had positive ANA but had to wait to see the Gp. I’ve seen him today and got the following results ANA positive 1:320 titre nuclear coarse speckled pattern Anti RO52 positive La negative Sm negative RNP negative Jo 1 negative Scl 70 negative Anti RO60 positive
Hi, I wrote a while ago as I had been told I had positive ANA but had to wait to see the Gp. I’ve seen him today and got the following results ANA positive 1:320 titre nuclear coarse speckled pattern Anti RO52 positive La negative Sm negative RNP negative Jo 1 negative Scl 70 negative Anti RO60 positive
Ilovechips81
in
LUPUS UK
5 years ago
Feeling very lost and alone.
Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an urgent referral to neurology (6 weeks ago now - doesn't seem very urgent) after worsening muscle weakness. My physio did muscle strength test, wasn't
Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an urgent referral to neurology (6 weeks ago now - doesn't seem very urgent) after worsening muscle weakness. My physio did muscle strength test, wasn't
eescvc
in
LUPUS UK
5 years ago
Can someone explain what my Blood Test Results mean?
In 2018 I got a blood test following a Kallman Syndome diagnosis (age 17 at time of test), but several problems have arrisen since then. After several months I finally got access to the blood test results but its essencially Chinese to me. The Dr told me that testosterone was far below average and I
In 2018 I got a blood test following a Kallman Syndome diagnosis (age 17 at time of test), but several problems have arrisen since then. After several months I finally got access to the blood test results but its essencially Chinese to me. The Dr told me that testosterone was far below average and I
BecauseGenes
in
Pernicious Anaemia Society
5 years ago
Very confused about ANA test?
Hi there! I have Hashimoto’s + hypothyroidism. I had a full ANA panel done. My ANA screen was positive. Anti-Chromatin antibodies were positive and Anti-Ribosome antibodies were positive. But the DSDNA was negative. The lab results said consider lupus or mixed connective tissue disorder. I have no symptoms
Hi there! I have Hashimoto’s + hypothyroidism. I had a full ANA panel done. My ANA screen was positive. Anti-Chromatin antibodies were positive and Anti-Ribosome antibodies were positive. But the DSDNA was negative. The lab results said consider lupus or mixed connective tissue disorder. I have no symptoms
Sieramelon
in
LUPUS UK
5 years ago
Increase in PSA during Taxotere?
In the last few months- post 3 more taxotere infusions after liver Mets were discovered in March- keeping in mind this is the second time I have had taxotere- first in 2016- PSA has really climbed to 44 from about 8- However Alk Phos down and hemoglobin remains at same level which normally goes down
In the last few months- post 3 more taxotere infusions after liver Mets were discovered in March- keeping in mind this is the second time I have had taxotere- first in 2016- PSA has really climbed to 44 from about 8- However Alk Phos down and hemoglobin remains at same level which normally goes down
DSEE
in
Advanced Prostate Cancer
5 years ago
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