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Finally good news/PSA heading down.(first time in 13 months..Fenben? Delayed miracle from The Mayo Clinic? Ribeye steaks/chocolate sundaes?
well...after 13 months of PSA going steadily upward...rather quickly, actually, My PSA FINALLY dropped from 5.34 last month to 3.94 this month. My ALK Phos also dropped from 80 to 61) ** For the past 18 months I have been on just Lupron and Xtandi...I stopped doing BIRM about a year ago...and added
well...after 13 months of PSA going steadily upward...rather quickly, actually, My PSA FINALLY dropped from 5.34 last month to 3.94 this month. My ALK Phos also dropped from 80 to 61) ** For the past 18 months I have been on just Lupron and Xtandi...I stopped doing BIRM about a year ago...and added
greatjohn
in
Advanced Prostate Cancer
5 years ago
Dukoral - Cholera Vaccine
I just took my first dose of Dukoral. I will wait a week to take the second dose. A friend of mine who lives outside of Detroit Michigan went over to Windsor and made the purchase and had no problem crossing the border with it. He declared it as an over the counter diarrhea med. The agent laughed
I just took my first dose of Dukoral. I will wait a week to take the second dose. A friend of mine who lives outside of Detroit Michigan went over to Windsor and made the purchase and had no problem crossing the border with it. He declared it as an over the counter diarrhea med. The agent laughed
Drphil1938
in
Advanced Prostate Cancer
5 years ago
latest bloods
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
mandy72
in
Thyroid UK
5 years ago
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Could I have dermatomyositis?
Firstly let me apologise for the length of this. I know it's not a good idea to ask for diagnoses on here, but I have a VERY long wait ahead of me here to see a rheumatologist (6 months!) and wondered if I might get a head's up. I asked to be referred because I suspected psoriatic arthritis. This was
Firstly let me apologise for the length of this. I know it's not a good idea to ask for diagnoses on here, but I have a VERY long wait ahead of me here to see a rheumatologist (6 months!) and wondered if I might get a head's up. I asked to be referred because I suspected psoriatic arthritis. This was
Chancery
in
Myositis UK
5 years ago
ANAs - How well do you understand them?
Curious: During your diagnosis and/or treatment process, how well have your doctors explained what antinuclear antibodies are, the subtypes and what should/shouldn't be showing up on your blood tests?
Curious: During your diagnosis and/or treatment process, how well have your doctors explained what antinuclear antibodies are, the subtypes and what should/shouldn't be showing up on your blood tests?
katidid
in
LUPUS UK
5 years ago
DIL vs SLE - Anti Histone Antibody
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
katidid
in
LUPUS UK
5 years ago
Tell me
Any body aps patient have positive ANA test i.e at the time of aps diagnosis
Any body aps patient have positive ANA test i.e at the time of aps diagnosis
bhaskar2boda
in
Hughes Syndrome APS Forum
5 years ago
Hai
Can aps syndrome patient have positive ANA test......and symptoms free of lupus so that why am asking question is .....in 2013 am diagnosed with acL igm positive and ANA positive....am on warfarin therapy up to now....am asking doctor what was ana positive mean I have lupus....they said u r symptoms
Can aps syndrome patient have positive ANA test......and symptoms free of lupus so that why am asking question is .....in 2013 am diagnosed with acL igm positive and ANA positive....am on warfarin therapy up to now....am asking doctor what was ana positive mean I have lupus....they said u r symptoms
bhaskar2boda
in
Hughes Syndrome APS Forum
5 years ago
Hashimoto’s now Ana positive
Hello I have had Hashimoto’s since I was 16, and never had a positive Ana, I’m now 39 with positive ana of 1:40 and homogeneous pattern has anyone seen this happen with thyroid disease only?
Hello I have had Hashimoto’s since I was 16, and never had a positive Ana, I’m now 39 with positive ana of 1:40 and homogeneous pattern has anyone seen this happen with thyroid disease only?
Litha
in
Thyroid UK
5 years ago
Numbers
I have a problem understanding my numbers, I was at my consultant yesterday, he gave me my numbers as follows, Bilirubin 8, alk phos 118, alt 14 can anyone tell me if this is ok, he says they are good, What is AMA & Albumin, I'm getting very confused with it all, I don't and never have, had the Urso,
I have a problem understanding my numbers, I was at my consultant yesterday, he gave me my numbers as follows, Bilirubin 8, alk phos 118, alt 14 can anyone tell me if this is ok, he says they are good, What is AMA & Albumin, I'm getting very confused with it all, I don't and never have, had the Urso,
Jaycee
in
PBC Foundation
5 years ago
Results help please
Sorry yet more results. please help Was diagnosed 3 years ago and finally got round to posting results. Am currently on 50micrograms levo. Sublingual vit D and Vit B12 once a week. No Iron tabs. I am concerned about the Ferritin results and the Thyroid peroxidase antibodies. would also like to know
Sorry yet more results. please help Was diagnosed 3 years ago and finally got round to posting results. Am currently on 50micrograms levo. Sublingual vit D and Vit B12 once a week. No Iron tabs. I am concerned about the Ferritin results and the Thyroid peroxidase antibodies. would also like to know
Dizzy938
in
Thyroid UK
5 years ago
Anyone who has SLE, and lung issues?
Hi guys, Me again.... I’m literally going insane tonight. My left upper back is throbbing which is always does near my lung... Does anyone have any issues with there lungs from SLE, my CT was Monday and was told today to come see the consultant first thing thing tomorrow morning to discuss them
Hi guys, Me again.... I’m literally going insane tonight. My left upper back is throbbing which is always does near my lung... Does anyone have any issues with there lungs from SLE, my CT was Monday and was told today to come see the consultant first thing thing tomorrow morning to discuss them
Staceylouise90
in
LUPUS UK
5 years ago
Fluctuating sugar levels on Zytiga and Prednisone
So, my dad has been on Zytiga and prednisone for 4 months now with a break of 2 weeks recently...in August he was prescribed 1000 mg zytiga and 10 mg prednisone - on 1 month follow up his blood sugar levels were elevated with Plasma Glucose - fasting at 239- so the doc changed the prednisone to 5 mg
So, my dad has been on Zytiga and prednisone for 4 months now with a break of 2 weeks recently...in August he was prescribed 1000 mg zytiga and 10 mg prednisone - on 1 month follow up his blood sugar levels were elevated with Plasma Glucose - fasting at 239- so the doc changed the prednisone to 5 mg
Life5
in
Advanced Prostate Cancer
5 years ago
Do you accept your diagnosis?
My general practitioner has suggested to me that I have fibromyalgia after I continually return for visits for different ailments: neuropathy, heel pain, aches and pain, muscle twitches, itching, TMJ, bruising, burning tongue, anxiety and depression. I have hashimotos, but my numbers look optimal and
My general practitioner has suggested to me that I have fibromyalgia after I continually return for visits for different ailments: neuropathy, heel pain, aches and pain, muscle twitches, itching, TMJ, bruising, burning tongue, anxiety and depression. I have hashimotos, but my numbers look optimal and
crw2ddd
in
Fibromyalgia Action UK
5 years ago
Invisible diesease
I’m 46 got 3 children living with partner woke up one morning thinking I had a splinter in my index finger after several visits to walk in centres aswell as a&e and five nights of excruciating pain I was told I had a blood clot trapped in my finger by this time I had gangrene the pain was unbearable
I’m 46 got 3 children living with partner woke up one morning thinking I had a splinter in my index finger after several visits to walk in centres aswell as a&e and five nights of excruciating pain I was told I had a blood clot trapped in my finger by this time I had gangrene the pain was unbearable
leighlfc
in
LUPUS UK
5 years ago
Private consultations
Hi everyone . I posted a few months back after my gp told me they felt I had lupus , ana positive very elevated dsdna and lots of associated symptoms . I was referred to rheumatologist at that point . I have felt awful the last few weeks so called the appointment secretary to find out about my appointment
Hi everyone . I posted a few months back after my gp told me they felt I had lupus , ana positive very elevated dsdna and lots of associated symptoms . I was referred to rheumatologist at that point . I have felt awful the last few weeks so called the appointment secretary to find out about my appointment
Harry19
in
LUPUS UK
5 years ago
My next step in my journey after A&E visit - few questions for people who’s been diagnosed if poss?
After day 6 of what is looking like to be a flare up, I did end up in A&E. Just thought I’d share my experience this week and thank you to everyone on this forum who has helped me in the right direction as gave me guidance of what has been the most challenging week for me. Recap for anyone who’s
After day 6 of what is looking like to be a flare up, I did end up in A&E. Just thought I’d share my experience this week and thank you to everyone on this forum who has helped me in the right direction as gave me guidance of what has been the most challenging week for me. Recap for anyone who’s
Staceylouise90
in
LUPUS UK
5 years ago
Possible Lupus?
Hello, I was wondering if anyone could give me advice, I have been feeling poorly for the last few years with different things, but the last year I’ve been getting a lot worst, last night my doctor called and said 2 blood tests came back positive, ANA autoimmune and dsDNA Elisa, they were both raised
Hello, I was wondering if anyone could give me advice, I have been feeling poorly for the last few years with different things, but the last year I’ve been getting a lot worst, last night my doctor called and said 2 blood tests came back positive, ANA autoimmune and dsDNA Elisa, they were both raised
Staceylouise90
in
LUPUS UK
5 years ago
Overmedicated?
Just got my latest test results back. I've been feeling off (not that I've ever been well since my diagnosis) but worse than usual. I have a burning tongue, body aches and worsening nerve tingles and burning in my hands and even groin area too (that's new). I've had a increased appetite and looser stools
Just got my latest test results back. I've been feeling off (not that I've ever been well since my diagnosis) but worse than usual. I have a burning tongue, body aches and worsening nerve tingles and burning in my hands and even groin area too (that's new). I've had a increased appetite and looser stools
crw2ddd
in
Thyroid UK
5 years ago
Getting rid of EBV?
Hi, I have Hashimoto’s. The endocrinologist I see tested for past EBV infection as suspected something else contributing to my symptoms. And the test results say I have a past infection. He says there’s not much I can do other than to rest, and believes 8 weeks off work would help. I’m not averse to
Hi, I have Hashimoto’s. The endocrinologist I see tested for past EBV infection as suspected something else contributing to my symptoms. And the test results say I have a past infection. He says there’s not much I can do other than to rest, and believes 8 weeks off work would help. I’m not averse to
Yppah
in
Thyroid UK
5 years ago
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