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ANA, DSDNA. Results?
ANA positive, DSDNA 11.8. ANA went negative at my following Rheumatology appointment. Had another appointment on the 19th July, received a letter before this appointment stating bloods will be redone. However this wasn’t the case. Received diagnosis of Fibromyalgia on the 19th July. I’m confused!!
ANA positive, DSDNA 11.8. ANA went negative at my following Rheumatology appointment. Had another appointment on the 19th July, received a letter before this appointment stating bloods will be redone. However this wasn’t the case. Received diagnosis of Fibromyalgia on the 19th July. I’m confused!!
JLK1990
in
Fibromyalgia Action UK
3 years ago
Spinal Cord Stimulator
Hello Everyone! Has anyone ever heard of this treatment or tried it for AMN? I will be having my trial for this procedure next week and I am just wondering if anyone else has tried this. It is was my neuroligst is suggesting is the next step to help deal with the pain I am in every day. Then will also
Hello Everyone! Has anyone ever heard of this treatment or tried it for AMN? I will be having my trial for this procedure next week and I am just wondering if anyone else has tried this. It is was my neuroligst is suggesting is the next step to help deal with the pain I am in every day. Then will also
mvruggink
in
AMN EASIER
3 years ago
More on natural inhibitors of P13K/AKT, also a reference to PTEN reactivation
Just wanted to add a few more P13K/AKT inhibitors to the list in LearnAll's excellent post. As none of the epigenitic pathways are completely isolated, from the nuclear receptors outside the cells(of which AR is one), to the chromatin changes they induce when transported inside the cell's nucleus, to
Just wanted to add a few more P13K/AKT inhibitors to the list in LearnAll's excellent post. As none of the epigenitic pathways are completely isolated, from the nuclear receptors outside the cells(of which AR is one), to the chromatin changes they induce when transported inside the cell's nucleus, to
FRTHBST
in
Advanced Prostate Cancer
3 years ago
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Next step. Comments?
I posted a couple of weeks ago. Please look at that plus bio for more background. After Taxotere (6 ending in Feb 2021), PSA went form 1100 (Aug 2020) to 8. From April 20 to July 10, my PSA has risen from 8 to 36. My Alk Phos has risen from 60 to 154. I have had some pain in my hips, sometimes bad, but
I posted a couple of weeks ago. Please look at that plus bio for more background. After Taxotere (6 ending in Feb 2021), PSA went form 1100 (Aug 2020) to 8. From April 20 to July 10, my PSA has risen from 8 to 36. My Alk Phos has risen from 60 to 154. I have had some pain in my hips, sometimes bad, but
RunThru
in
Advanced Prostate Cancer
3 years ago
Government News Regarding Covid Vaccinations and Clinical Risk Groups
Morning Peeps 😀 I received this notification today regarding vaccines and clinically vulnerable people. It suggests talking to your medical team about your personal situation 🤔Tried that, to not avail 🤷🏻♀️ This is the update: 10 July 2021 Updated to clarify that some people in clinical risk groups
Morning Peeps 😀 I received this notification today regarding vaccines and clinically vulnerable people. It suggests talking to your medical team about your personal situation 🤔Tried that, to not avail 🤷🏻♀️ This is the update: 10 July 2021 Updated to clarify that some people in clinical risk groups
Moomin8
in
NRAS
3 years ago
Just been told what I have is lupus and maybe more autoimmune things
HI Can I just start by saying They thought I had Giant cell arteritis. Was treated with high dose steriods for that felt better .But then coming of them .I struggled I had previously had really sore head felt as thought it was swelling and pressure and hair loss and breakage brittle No my ANA test postive
HI Can I just start by saying They thought I had Giant cell arteritis. Was treated with high dose steriods for that felt better .But then coming of them .I struggled I had previously had really sore head felt as thought it was swelling and pressure and hair loss and breakage brittle No my ANA test postive
suitcase1
in
LUPUS UK
3 years ago
Blood test results. Help please.
After two days of chasing round in ever decreasing circles I've finally managed to obtain a copy of my last blood test results. As you all suspected, the only thyroid test was TSH. These bloods were taken at 1:40pm after breakfast, coffee, and lunch. No one mentioned needing to have them taken first
After two days of chasing round in ever decreasing circles I've finally managed to obtain a copy of my last blood test results. As you all suspected, the only thyroid test was TSH. These bloods were taken at 1:40pm after breakfast, coffee, and lunch. No one mentioned needing to have them taken first
Horsey07
in
Thyroid UK
3 years ago
What to expect
I had my first rheumatology appointment last week and I'm happy that I've been seen and will hopefully be finding out more! I was referred because of a positive ANA (speckled, 1:1280 titre) and general aches and pains and feeling tired. I had a bunch more blood tests taken and a urine sample (which
I had my first rheumatology appointment last week and I'm happy that I've been seen and will hopefully be finding out more! I was referred because of a positive ANA (speckled, 1:1280 titre) and general aches and pains and feeling tired. I had a bunch more blood tests taken and a urine sample (which
josee94
in
LUPUS UK
3 years ago
Amazing what you discover on the NHS app
My hubby and I have been very worried about how bad my mobility has got in the last year. There has been a marked decline but the pain in my spine and joints have become horrendous. I now have to use an electric chair to get about and have had to order a wheelchair access vehicle. I received a letter
My hubby and I have been very worried about how bad my mobility has got in the last year. There has been a marked decline but the pain in my spine and joints have become horrendous. I now have to use an electric chair to get about and have had to order a wheelchair access vehicle. I received a letter
jillydabrat
in
MPN Voice
3 years ago
Stay in trial or find a new one?
Started a clinical trial with Lynparza and AZD6738 ATR inhibitor on 3/15/2021. (My profile shows detailed history from diagnosis in 2014.) On start date my PSA was 17.77. It reached a nadir of 6.92 by 5/24/2021. In two weeks, on 6/9/2021, it had gone to 11.32! This past Tuesday, two weeks later, it rise
Started a clinical trial with Lynparza and AZD6738 ATR inhibitor on 3/15/2021. (My profile shows detailed history from diagnosis in 2014.) On start date my PSA was 17.77. It reached a nadir of 6.92 by 5/24/2021. In two weeks, on 6/9/2021, it had gone to 11.32! This past Tuesday, two weeks later, it rise
hadleycash
in
Advanced Prostate Cancer
3 years ago
Anyone got experience of rosacea versus lupus?
Hi, since 2018, after taking a brief course of steroids, I have suffered with a facial rash. Initially I had it round my eyes (under brow, and under eye) down my cheeks, round my collarbone and on my nipple. I also had a small flare of it on my belly button. It was treated with hydrocortisone cream,
Hi, since 2018, after taking a brief course of steroids, I have suffered with a facial rash. Initially I had it round my eyes (under brow, and under eye) down my cheeks, round my collarbone and on my nipple. I also had a small flare of it on my belly button. It was treated with hydrocortisone cream,
Chancery
in
LUPUS UK
3 years ago
New blood test after speaking to a doctor about stomach problem.
Any help understand these blood works please. Would be helpful. I’d spoke to GP on Monday and she said she run blood test, and go for a scan as well to see what’s going on. Blood test came back the same day. (But used to this by now) but would be interested to know what is going on. Thanks for any
Any help understand these blood works please. Would be helpful. I’d spoke to GP on Monday and she said she run blood test, and go for a scan as well to see what’s going on. Blood test came back the same day. (But used to this by now) but would be interested to know what is going on. Thanks for any
Haze1975
in
Thyroid UK
3 years ago
Why can't I get Prostate SBRT when I'm metastatic?
I've been on ADT for about 5 years and through standard radiation to Cervical and Thoracic vertebrae (thoracic vertebrae now collapsed). I've been through Xofigo series and a month after that finished, had more Mets than I started with. Seems like the bone is left in a weakened state and CTCs repopulate
I've been on ADT for about 5 years and through standard radiation to Cervical and Thoracic vertebrae (thoracic vertebrae now collapsed). I've been through Xofigo series and a month after that finished, had more Mets than I started with. Seems like the bone is left in a weakened state and CTCs repopulate
mikell
in
Advanced Prostate Cancer
3 years ago
ACA & Anti CENP B
Hey all, Hope you are doing well - and a big thank you to those who took time to reply to my first post. Follow on from my neurologist nightmare (where he dismissed my ANA result as insignificant and spurious & said males don’t get lupus) , I had my bloods redone and they came back ANA positive for a
Hey all, Hope you are doing well - and a big thank you to those who took time to reply to my first post. Follow on from my neurologist nightmare (where he dismissed my ANA result as insignificant and spurious & said males don’t get lupus) , I had my bloods redone and they came back ANA positive for a
Northerner1
in
LUPUS UK
3 years ago
Platelet count 492 ESR & CRP elevated
.....Hello new here! Does anybody have elevated platelets along with elevated crp and esr? Usually my platelets are 420 ( for around the past 4 1/2 years) my esr and crp have been up and down. Also positive ANA. I see a rheumatologist, but we are still investigating for autoimmune disease etc. Saw
.....Hello new here! Does anybody have elevated platelets along with elevated crp and esr? Usually my platelets are 420 ( for around the past 4 1/2 years) my esr and crp have been up and down. Also positive ANA. I see a rheumatologist, but we are still investigating for autoimmune disease etc. Saw
Hidden
in
MPN Voice
3 years ago
I feel lost
Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off to turning 50 and pushed myself to maintain my normal routine. I started to lose the hair on my arms and legs (there are some very fine hairs
Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off to turning 50 and pushed myself to maintain my normal routine. I started to lose the hair on my arms and legs (there are some very fine hairs
jaspdt
in
LUPUS UK
3 years ago
Pms after period??
Heya 😊 this time my pms really kicked in hard and I suffered severely from low mood for a good 9 days. Usually my pms symptoms last 3-4 days, then I can see some light once my period arrives. This time my period arrived and my pms symptoms got worse, I’m starting to think something else is causing the
Heya 😊 this time my pms really kicked in hard and I suffered severely from low mood for a good 9 days. Usually my pms symptoms last 3-4 days, then I can see some light once my period arrives. This time my period arrived and my pms symptoms got worse, I’m starting to think something else is causing the
Mustard31
in
Women's Health
3 years ago
Why won’t my GP prescribe lupus drug treatment?
Hi, I have lots of lupus symptoms dismissed by a useless rheumatologist who didn’t understand the word I was saying, I have been having a very bad flare with lots of GI issues to,GP took bloods very anaemic positive ana 1/400 positive DS DNA over 40. She was originally thinking inflammatory bowel disease
Hi, I have lots of lupus symptoms dismissed by a useless rheumatologist who didn’t understand the word I was saying, I have been having a very bad flare with lots of GI issues to,GP took bloods very anaemic positive ana 1/400 positive DS DNA over 40. She was originally thinking inflammatory bowel disease
Buffer
in
LUPUS UK
3 years ago
Is this Raynaud's?
Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and pinky ones are not affected, visible swelling is only in my index fingers, thumbs and middle ones just give me a feeling but cannot be seen. I did
Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and pinky ones are not affected, visible swelling is only in my index fingers, thumbs and middle ones just give me a feeling but cannot be seen. I did
MNE4
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
After a long search I think I have found my answer...pbc
I found this list of symptoms and I check almost all the boxes. And I have checked almost all the boxes for about 20 years. See at the bottom. I was pretty bad off 3 years ago. My joints were so sore and my feet were so swollen I couldn't get up the stairs without a railing. I had a wicked pain between
I found this list of symptoms and I check almost all the boxes. And I have checked almost all the boxes for about 20 years. See at the bottom. I was pretty bad off 3 years ago. My joints were so sore and my feet were so swollen I couldn't get up the stairs without a railing. I had a wicked pain between
sleepingbeautycan
in
PBC Foundation
3 years ago
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