I received this notification today regarding vaccines and clinically vulnerable people. It suggests talking to your medical team about your personal situation 🤔Tried that, to not avail 🤷🏻♀️
This is the update:
10 July 2021
Updated to clarify that some people in clinical risk groups might not respond well to vaccines.
I think it is a given that prednisolone is the big problem for immunosuppressed. The OCTAVE study might shine more light.I've also read on a thread on the forum that JAK inhibitors are a problem too, but I have no evidence for this.
My understanding is that it’s prednisolone which appears to be the biggest risk even compared to DMARDs , including biologics. I am aware rituximab is also being looked at.
I’m on prednisolone and they seem to think it’s one of biggest risk drugs during Covid. The lack of information is concerning but I appreciate it’s a novel virus and therefore, early days.
Hi Crash, hope you are alright? Yes, it’s Rtx, JAKs and oral Pred the medics/scientists have focussed on more re efficacy with the covid vaccines ... Rtx and Pred of more concern than JAKs I read in several medical articles. Very important still though re JAK timings. The way they suppress the immune so much. I hope more guidance is given from the British Society of Rheumatology for meds timings and booster vaccines. The Octave findings should be giving us more on that soon. Patients needed to have been made more aware as not everyone will have researched or asked about their own medical circumstances. I was asking re Rtx and vaccines before they were approved, as this rang an alarming bell for me last February when h this all started to escalate.
Morning my lovely, how are you? Thanks for the update. Seeing the clinic nurse next Tuesday so will ask but as numbers are rising and kids and teachers are dropping like flies I am very concerned. Will still wear mask and avoid crowded situations but hey ho!!
I'm not to bad thanks, steroid injections in my posterior and cortisone injection in my shoulder have actually given some relief for now...thank goodness; I can actually see my feet today!😊I'm definitely wearing a mask at doc's and hospital, along with any crowded and enclosed spaces 😷Good luck with your visit - keep in touch 🙂
Interesting that they mention pausing Methotrexate for 2 weeks after the flu jab...I made a personal decision to miss it for 1 week after each Covid jab but maybe I'll try 2 weeks next time 🤔
My Rheumy nurse spoke to me about delaying the start of my methotrexate until after my first Covid jab, but I decided to start the methotrexate immediately knowing that it would take at least 3 months to build up and do my RA any good. Who knows whether I made the right decision, I did what I thought best at the time x
Madness indeed, Moomin. 😑 It’s a very hard hearted .. not even quarter hearted statement/article the Government have issued on their website and could be dangerous if some people believe the AZ has given them enough protection when they are on highly immuno-suppressive meds. I didn’t see any mention of specific conditions and meds and hope that is coming. Hope the Gov have to take notice of the Octave findings.
The Chief Exec of the National blood cancer organisation has asked the Gov to write to every CEV person again advising them more specifically. Ms Peters is asking this for all immuno suppressed and not just lymphoma/blood cancer patients as she recognises that people take Rituximab for rheumatoid/auto immune diseases and as a measure to avoid transplant rejections. It’s also very worrying that employers could look at this latest “advice” from Gov.uk re vulnerable/CEV employers and say ... you’ll be ok to return to work.
HI Moomin. Thanks for this. What a lovely photo, so many flowers on there and loads of buds still unopened, it's going to look spectacular. Thanks for sharing. xx
I read this yesterday on gov.uk from the Kidney Patients Association and they say it reads the other way it is effective and no vaccine is 100% anyway. So I think yes really we must ask our medical professionals as it is complex and still not completely clear although initial findings are good.
Yes it is indeed, and for the KPA its people on high levels of immune suppressants to stop organ rejection of course. My nephrologist even said the other month stopping immune suppressants for bugs and the jab was nonsense as the risk of a flare combined with the jab and an infection was dreadful and thats how I'd ended up in A&E after the jab. His advice to me was the efficiency of the jab being affected by the medications I'm on was so minimal that the advice I'd been given by RA was wrong. So it seems to me to be about how that particular medical professional interprets the medical information available at that time. I suppose it's such a new virus so much is still not know and it'll not be until looking back from a distance that its fully understood. x
Hi We have only been living in this area for 2/3years. We have a lovely Hedge that my Husband keeps trimming. This year I asked him not to until the beautiful flowers had chance to grow. We didn't know what the hedge was until I saw your pretty post. Thank you
Caught Covid in December while on high dose Prednisolone. Despite being double vaccinated and having antibodies will be very cautious with Delta running rampant and still on Pred. Lovely photo 😊
Unfortunately ended up with Long Covid being seen in a clinic. That's why I want people to be so careful & protect others. I caught it while in hospital for kidney problems & have Bronchiectasis. It was mild symptoms at the time but now left with ongoing fatigue, brain fog & loss of smell.
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