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I feel lost
Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off to turning 50 and pushed myself to maintain my normal routine. I started to lose the hair on my arms and legs (there are some very fine hairs
Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off to turning 50 and pushed myself to maintain my normal routine. I started to lose the hair on my arms and legs (there are some very fine hairs
jaspdt
in
LUPUS UK
3 years ago
Pms after period??
Heya š this time my pms really kicked in hard and I suffered severely from low mood for a good 9 days. Usually my pms symptoms last 3-4 days, then I can see some light once my period arrives. This time my period arrived and my pms symptoms got worse, Iām starting to think something else is causing the
Heya š this time my pms really kicked in hard and I suffered severely from low mood for a good 9 days. Usually my pms symptoms last 3-4 days, then I can see some light once my period arrives. This time my period arrived and my pms symptoms got worse, Iām starting to think something else is causing the
Mustard31
in
Women's Health
3 years ago
Why wonāt my GP prescribe lupus drug treatment?
Hi, I have lots of lupus symptoms dismissed by a useless rheumatologist who didnāt understand the word I was saying, I have been having a very bad flare with lots of GI issues to,GP took bloods very anaemic positive ana 1/400 positive DS DNA over 40. She was originally thinking inflammatory bowel disease
Hi, I have lots of lupus symptoms dismissed by a useless rheumatologist who didnāt understand the word I was saying, I have been having a very bad flare with lots of GI issues to,GP took bloods very anaemic positive ana 1/400 positive DS DNA over 40. She was originally thinking inflammatory bowel disease
Buffer
in
LUPUS UK
3 years ago
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Is this Raynaud's?
Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and pinky ones are not affected, visible swelling is only in my index fingers, thumbs and middle ones just give me a feeling but cannot be seen. I did
Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and pinky ones are not affected, visible swelling is only in my index fingers, thumbs and middle ones just give me a feeling but cannot be seen. I did
MNE4
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
After a long search I think I have found my answer...pbc
I found this list of symptoms and I check almost all the boxes. And I have checked almost all the boxes for about 20 years. See at the bottom. I was pretty bad off 3 years ago. My joints were so sore and my feet were so swollen I couldn't get up the stairs without a railing. I had a wicked pain between
I found this list of symptoms and I check almost all the boxes. And I have checked almost all the boxes for about 20 years. See at the bottom. I was pretty bad off 3 years ago. My joints were so sore and my feet were so swollen I couldn't get up the stairs without a railing. I had a wicked pain between
sleepingbeautycan
in
PBC Foundation
3 years ago
Thoughts on bloods please
BTYPE NATRIURETIC PEPTIDE B TYPE NATRIURETIC PEPTIDE 26 pg/mL [< 100.0] BNP COMMENT Normal levels - BNP <100 pg/mL Raised levels - BNP 100 - 400 pg/mL High levels - BNP >400 pg/mL BNP is not a suitable biomarker of heart failure in patients treated with sacubitril/valsartan (Entresto). Serum TSH level
BTYPE NATRIURETIC PEPTIDE B TYPE NATRIURETIC PEPTIDE 26 pg/mL [< 100.0] BNP COMMENT Normal levels - BNP <100 pg/mL Raised levels - BNP 100 - 400 pg/mL High levels - BNP >400 pg/mL BNP is not a suitable biomarker of heart failure in patients treated with sacubitril/valsartan (Entresto). Serum TSH level
mandy72
in
Thyroid UK
3 years ago
confused and anxious
After several phone calls to my GP and Rheumatology department, I had a phone call from one of the registrars from the Rheumatology department this morning. Thanks to you all , I knew about the importance of making some notes before my appointment so that I could report my symptoms and ask further
After several phone calls to my GP and Rheumatology department, I had a phone call from one of the registrars from the Rheumatology department this morning. Thanks to you all , I knew about the importance of making some notes before my appointment so that I could report my symptoms and ask further
April2018
in
LUPUS UK
3 years ago
advice please
so I was diagnosed with sero-negative APS by proff D'cruz with demyelinating syndrome in 2002. 4mths ago I had a stroke I have since been diagnosed with white matter disease However all the APS tests are negative but I have ANA result1:640 and have been referred to a local Rheumatologist here in Cornwall
so I was diagnosed with sero-negative APS by proff D'cruz with demyelinating syndrome in 2002. 4mths ago I had a stroke I have since been diagnosed with white matter disease However all the APS tests are negative but I have ANA result1:640 and have been referred to a local Rheumatologist here in Cornwall
mully
in
Hughes Syndrome APS Forum
3 years ago
ANA negative but tested positive for LA and smooth muscle antibodies
Hi all, After 5 years of going back and forth to rheumy with joint and muscle pain, loss of hair leading to patches of baldness and a discoid looking rash called jesners lymphocytic infiltrate and extreme fatigue and being told I am ana negative after three times was really disheartening. It took
Hi all, After 5 years of going back and forth to rheumy with joint and muscle pain, loss of hair leading to patches of baldness and a discoid looking rash called jesners lymphocytic infiltrate and extreme fatigue and being told I am ana negative after three times was really disheartening. It took
Anothermember11
in
LUPUS UK
3 years ago
ANA question
Hello, I hope you don't mind me butting in, but I'm trying to understand my ANA test result and this seemed like the best place to ask! I was just wondering if anyone could help me in decoding? I had an ANA test last week which has come back positive, with a titre of 1/1280. I'm aware of what the ANA
Hello, I hope you don't mind me butting in, but I'm trying to understand my ANA test result and this seemed like the best place to ask! I was just wondering if anyone could help me in decoding? I had an ANA test last week which has come back positive, with a titre of 1/1280. I'm aware of what the ANA
josee94
in
LUPUS UK
3 years ago
How are ones coping that are experiencing advanced fibrosis and cirrhosis?
Hi everyone, Stella here. I haven't posted a question for awhile. This particular question may be too personal for some to respond to. But, if you want to share please, please, do. I find myself now almost 5 years into my PBC diagnoses. How time flies. Doctor says I've had it unknowingly for many years
Hi everyone, Stella here. I haven't posted a question for awhile. This particular question may be too personal for some to respond to. But, if you want to share please, please, do. I find myself now almost 5 years into my PBC diagnoses. How time flies. Doctor says I've had it unknowingly for many years
Ktltel
in
PBC Foundation
3 years ago
Heās gone
After what seemed like rapidly declining medical status in the last month, I lost my beautiful husband this morning. Weād made the decision to move to inpatient hospice yesterday as he continued to decline. At last count his PSA was 2800 and Alk Phos was 916 both numbers up considerably from just a month
After what seemed like rapidly declining medical status in the last month, I lost my beautiful husband this morning. Weād made the decision to move to inpatient hospice yesterday as he continued to decline. At last count his PSA was 2800 and Alk Phos was 916 both numbers up considerably from just a month
WVtwinsmama
in
Advanced Prostate Cancer
3 years ago
Greater Understanding of PV, ET Drives Potential New Treatment Options
āContinued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,ā they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
āContinued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,ā they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
Manouche
in
MPN Voice
3 years ago
Alkaline phosphatase level up again
I had my annual liver function test and again have raised alk phos level. I had slightly raised level a couple of years back (150) and was prescribed Ad-cal. My latest blood test shows it raised further to 170 and will be tested again in 3 months. Has anyone else had this type of progression and should
I had my annual liver function test and again have raised alk phos level. I had slightly raised level a couple of years back (150) and was prescribed Ad-cal. My latest blood test shows it raised further to 170 and will be tested again in 3 months. Has anyone else had this type of progression and should
Finvola
in
AF Association
3 years ago
Inflammatory markers - auto immune?
Just wondering if anyone has had a positive ANA test as a result of PRD ie proctitis, colitis etc? My gp has recalled me to discuss this result and I'm a bit freaked out as I've been feeling awful. I finished chemorad for stage 1b3 cervical cancer in Dec 2019 and am in remission as far as I know.
Just wondering if anyone has had a positive ANA test as a result of PRD ie proctitis, colitis etc? My gp has recalled me to discuss this result and I'm a bit freaked out as I've been feeling awful. I finished chemorad for stage 1b3 cervical cancer in Dec 2019 and am in remission as far as I know.
Ladyparts
in
Pelvic Radiation Disease Association
3 years ago
rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hurting2012
in
NRAS
3 years ago
Parb Inhibitor
I finished 10 rounds of Taxtere in Feb. Unfortunately recent blood tests show my PSA has doubled from 5 to 11 and alk phos from 61 to 125 in last three months. The good news is that the CT scan and bone density scan showed no progression and some improvements. Including fact that "suspicious nodules
I finished 10 rounds of Taxtere in Feb. Unfortunately recent blood tests show my PSA has doubled from 5 to 11 and alk phos from 61 to 125 in last three months. The good news is that the CT scan and bone density scan showed no progression and some improvements. Including fact that "suspicious nodules
Newyork6264
in
Advanced Prostate Cancer
3 years ago
CIDP *look it up* could MASK LUPUS
I have 1) CIDP (link following) 2) anemia and 3) positive ANA However my neurologist say NO LUPUS (NOT enough symptoms) CIDP is also a complex neurological condition https://www.gbs-cidp.org/ Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder of the peripheral nerves
I have 1) CIDP (link following) 2) anemia and 3) positive ANA However my neurologist say NO LUPUS (NOT enough symptoms) CIDP is also a complex neurological condition https://www.gbs-cidp.org/ Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder of the peripheral nerves
dawiz
in
LUPUS UK
3 years ago
Advice needed from the āclubā weāre all in.
Diagnosed December 2017 after having been treated by GP incorrectly for BPH since 2014 with Finasteride! Diagnosis metastatic carcinoma prostate T3 a/b NO on MR metastatic disease on bone scan and CT. PSA 11.2 Gleason 9 on biopsy all cores. 2 metastasis L5 and right Iliac crest. Treated ADT prostap
Diagnosed December 2017 after having been treated by GP incorrectly for BPH since 2014 with Finasteride! Diagnosis metastatic carcinoma prostate T3 a/b NO on MR metastatic disease on bone scan and CT. PSA 11.2 Gleason 9 on biopsy all cores. 2 metastasis L5 and right Iliac crest. Treated ADT prostap
Dondodoc
in
Advanced Prostate Cancer
3 years ago
Undiagnosed and positive ANA
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. Iāve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. Iāve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
angelharley
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
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