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Experiences with
Androgen deprivation therapy (ADT)
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SIDE EFFECTS FROM HYPO MEDS
Anyone else out there who’s resistant to all the hypothyroid meds they’ve tried? Over the last year I’ve tried Synthroid, Synthroid with Cytomel, Erfa, Erfa with Synthroid, and compounded NDT - which is pretty much all we have available to us in Canada. They all increase my hypo symptoms and give
Anyone else out there who’s resistant to all the hypothyroid meds they’ve tried? Over the last year I’ve tried Synthroid, Synthroid with Cytomel, Erfa, Erfa with Synthroid, and compounded NDT - which is pretty much all we have available to us in Canada. They all increase my hypo symptoms and give
Fairydancer
in
Thyroid UK
6 months ago
Mum update (CBD)
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Araucana
in
PSP Association
4 months ago
Update on my thyroid medication 🤦♀️
Hi everyone ❤️ I posted some weeks ago about my appointment with an endocrinologist on Dec 27th, who just stopped my T3 prescription and put me back on T4 levothyroxin to which in her own report she stated... This lady is intolorent to both T4 and T3, therefore I recommend she goes back on T4 levothyroxin
Hi everyone ❤️ I posted some weeks ago about my appointment with an endocrinologist on Dec 27th, who just stopped my T3 prescription and put me back on T4 levothyroxin to which in her own report she stated... This lady is intolorent to both T4 and T3, therefore I recommend she goes back on T4 levothyroxin
birkie
in
Thyroid UK
6 months ago
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Prescribed NDT on NHS now doctor refusing to prescribe. Help!
I has to move GP Practise and before moving to current one I asked to speak to a GP. Receptionist said it wasnt necessary if a nhs consultant has recommended they will prescribe. So wouldn't get a doctor to phone me. I moved. All seem good but my repeats were not being set up. So became concerned.
I has to move GP Practise and before moving to current one I asked to speak to a GP. Receptionist said it wasnt necessary if a nhs consultant has recommended they will prescribe. So wouldn't get a doctor to phone me. I moved. All seem good but my repeats were not being set up. So became concerned.
waveylines
in
Thyroid UK
6 months ago
Change in inhalers
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
spookylou
in
Asthma Community Forum
4 months ago
Original blood results
Good morning, I finally have the blood results that caused the doc to refer me to endocrinology and prescribe Carbimazole and Propranolol. There is a lot on this form. Please can you tell me what is relevant to diagnose thyroid issues and possibly Graves disease? I am happy to share any results but
Good morning, I finally have the blood results that caused the doc to refer me to endocrinology and prescribe Carbimazole and Propranolol. There is a lot on this form. Please can you tell me what is relevant to diagnose thyroid issues and possibly Graves disease? I am happy to share any results but
Opposite
in
Thyroid UK
6 months ago
Looking back on my thyroid journey, a success story and motivation to keep on fighting :)
Two years ago an occupational health advisor wrote a review of my condition for my employer that broke my heart. I was 2 months into taking NDT and finally starting to see some improvements in my Hashimoto’s symptoms. I was gradually building up my stamina and able to go for a 15 minute walk, and I
Two years ago an occupational health advisor wrote a review of my condition for my employer that broke my heart. I was 2 months into taking NDT and finally starting to see some improvements in my Hashimoto’s symptoms. I was gradually building up my stamina and able to go for a 15 minute walk, and I
StellaTed
in
Thyroid UK
6 months ago
Converting dosages
I’m currently taking approximately 100mcg Levo does this equate to 1 grain of NDT? Thanks 🙏
I’m currently taking approximately 100mcg Levo does this equate to 1 grain of NDT? Thanks 🙏
ockerdoc
in
Thyroid UK
6 months ago
First time posting here with questions
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
shirlzoni
in
Thyroid UK
6 months ago
Decision time – looking for opinions/advice please
My Bio gives full details, but in a nutshell, I was diagnosed with APCa with extensive bone mets last year, have been on
ADT
for 7 months and Xtandi for 4 months.
My Bio gives full details, but in a nutshell, I was diagnosed with APCa with extensive bone mets last year, have been on
ADT
for 7 months and Xtandi for 4 months.
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Aspirin trials
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
Runner1957
in
Prostate Cancer Network
11 months ago
Cortisol saliva test and NDT dose
Hi, I'm doing a Regenerus cortisol saliva test tomorrow. All ready and prepared, I stopped biotin supplements a week ago, etc. However, when I did the last cortisol saliva test I was not taking NDT.
Do I take my NDT morning dose before the 8am saliva test or after? (I usually take it around
Hi, I'm doing a Regenerus cortisol saliva test tomorrow. All ready and prepared, I stopped biotin supplements a week ago, etc. However, when I did the last cortisol saliva test I was not taking NDT.
Do I take my NDT morning dose before the 8am saliva test or after? (I usually take it around
Insomania
in
Thyroid UK
6 months ago
endo symptoms on hormonal therapy
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
PBGV24
in
Endometriosis UK
11 months ago
Has anyone been diagnosed with 'Da Costa Syndrome' after a head injury.
Weird histories involving concussion. Da Costa syndrome first appeared in the American civil war. It was thought to be some kind of heart disease that caused fatigue. But many soldiers with this were executed for malingering and being cowards. Then it became a psychiatric condition in the 20th century
Weird histories involving concussion. Da Costa syndrome first appeared in the American civil war. It was thought to be some kind of heart disease that caused fatigue. But many soldiers with this were executed for malingering and being cowards. Then it became a psychiatric condition in the 20th century
pinkvision
in
Headway
4 months ago
Help with my brother results
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
Bean101
in
Thyroid UK
6 months ago
protocol for intermittent ADT
so his psa rose after 2.5years of an
ADT
holiday and he took casodex for 4 weeks then had a 3 month zoladex implant , after 2 months he is undetectable again , we asked his oncologist what the protocol is for length of time on it this time and he said if he stayed undetectable that he could possibly
so his psa rose after 2.5years of an
ADT
holiday and he took casodex for 4 weeks then had a 3 month zoladex implant , after 2 months he is undetectable again , we asked his oncologist what the protocol is for length of time on it this time and he said if he stayed undetectable that he could possibly
Merlin1960
in
Advanced Prostate Cancer
2 years ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Orgovyx denied by insurance, husband has heart failure
He will be having 39 sessions of radiation and
ADT
. He has early stages of heart failure and the doctor wants him on Orgovyx due to fewer cardiac effects. Our insurance has denied us. We have Blue Cross Blue Shield through the Exchange.
He will be having 39 sessions of radiation and
ADT
. He has early stages of heart failure and the doctor wants him on Orgovyx due to fewer cardiac effects. Our insurance has denied us. We have Blue Cross Blue Shield through the Exchange.
JLR65
in
Advanced Prostate Cancer
1 year ago
Zoladex implant problem ?
How serious is this re risk and undermining my treatment effectiveness given I am 6 months into 24 months
ADT
following RT fir localised G9 (pre treatment high OPSA 8.6) current PSA 0.01 and testosterone 0.6 two weeks ago.
How serious is this re risk and undermining my treatment effectiveness given I am 6 months into 24 months
ADT
following RT fir localised G9 (pre treatment high OPSA 8.6) current PSA 0.01 and testosterone 0.6 two weeks ago.
SimMartin
in
Advanced Prostate Cancer
1 year ago
Hypothyroidism & ADHD /meds
Hello, community! I’ve suffered from hypothyroidism (underactive thyroid) since childhood, and after many years of poor response to Levothyroxine, successfully moved onto treatment with Natural Desiccated Thyroid almost ten years ago now. Switching to NDT was life-changing, and has really improved
Hello, community! I’ve suffered from hypothyroidism (underactive thyroid) since childhood, and after many years of poor response to Levothyroxine, successfully moved onto treatment with Natural Desiccated Thyroid almost ten years ago now. Switching to NDT was life-changing, and has really improved
PastelOak
in
Thyroid UK
7 months ago
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