Help with my brother results : My brother has... - Thyroid UK

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Help with my brother results

Bean101 profile image
26 Replies

My brother has been in poor health for a good couple of years.. finally he has had some blood tests done

TSH. 20 (0.3-5.5)

T4. 8.3 (10-22)

Requested T3 and antibodies but were not done!

another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP

B12. 271. (197-771)

Folate 2.5 (2.1-26.8)

Alanine aminotransferase 38 (0-35)

A1C level 42 (25-41)

Cortisol 287 (133-537)

Haematocrit 0.46 ( 0.4-0.5)

Total white blood count 10.2 (4-10)

Vitamin D 25.1 > 50

Cholesterol 5.6

HDL 3.4

Non high density 4.3

Serum cholesterol/HDL 4.4

Serum triglycerides 2 ( 0.5-2.3)

Blood draw was taken at 11am none fasting

The Dr has put him on antibiotics for stomach pains.. he does have a stomach condition

I am going to start him on my thyroxine ( mercury pharma) after blood test on Wednesday as I don’t think he can wait until the 13th Feb when he is seeing his doctor

My brother is around 6ft so would the starting dose still be 50mcg? He is feeling very ill

many thanks for your help

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Bean101 profile image
Bean101
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26 Replies
Charlie-Farley profile image
Charlie-Farley

Hi Bean101

Obviously very hypo. What other conditions does he have as this really will have an impact on any lived experience advice we can give? It is extremely important to join the dots as often doctors don’t they are trained to treat symptoms.

One important thing how much does he weigh and how old is he? (That two things - hypo brain 😬)

Bean101 profile image
Bean101 in reply to Charlie-Farley

Thanks Charlie- I will get back to you when I find out his weight and gut problems

He is 53 years old

Charlie-Farley profile image
Charlie-Farley in reply to Bean101

Really pump him for info - you know what they can be like not wanting to make a fuss. It’s really important 😊👍

Bean101 profile image
Bean101 in reply to Charlie-Farley

I have been nagging him for two years to get these bloods taken

Charlie-Farley profile image
Charlie-Farley in reply to Bean101

Oh yes - know what that’s like - my hubby thinks if he doesn’t get a diagnosis he hasn’t got anything. My dad was the same. 😬

greygoose profile image
greygoose in reply to Charlie-Farley

It is extremely important to join the dots as often doctors don’t they are trained to treat symptoms.

I would just like to add, to be clear, that doctors are trained to treat symptoms as separate diseases, and have no idea that a bunch of symptoms can indicate that it's just one disease causing them all. They have no idea about symptoms of hypothyroidism - which, admittedly is difficult because they are all non-specific and could all be caused by 'other things'. And, every hypo has their own individual symptom list. But, which is more the more likely scenario: a patient has 36 different diseases with one symptom each? Or she has one disease with 36 symptoms? But of an exaggeration but still a possibility. :)

Charlie-Farley profile image
Charlie-Farley in reply to greygoose

Beautifully put! 😘👍

greygoose profile image
greygoose in reply to Charlie-Farley

Thank you. :)

Bean101 profile image
Bean101 in reply to Charlie-Farley

He has Diverticulitis

Weight 95kg

6ft

Charlie-Farley profile image
Charlie-Farley

TSH. 20 (0.3-5.5) very hypo

T4. 8.3 (10-22) very hypo FT4 below range

Requested T3 and antibodies but were not done! They rarely do (cost savings over clinical excellence)

B12. 271. (197-771) (very low)

Folate 2.5 (2.1-26.8) (very low)

Cortisol 287 (133-537) (seems ok) I’m not sure how useful this is unless it it way off range I believe saliva tests over a day give a better idea.

Vitamin D 25.1 > 50 very low 😱

Cholesterol 5.6 (see post link I will add on bottom )

The Dr has put him on antibiotics for stomach pains.. he does have a stomach condition.

Charlie-Farley profile image
Charlie-Farley

- link to post discussing statins - important to read around and get informed on this.

😉👍

healthunlocked.com/thyroidu...

Sparklingsunshine profile image
Sparklingsunshine

So a non fasting 11am blood draw, means his bloods would probably be even worse had they been taken under forum guidelines. Your brother must be feeling very unwell. As well as starting Levo,I hope his other tragic results like folate and B12 etc will be addressed. Wishing him well.

J972 profile image
J972

B12 very low, he needs testing for pernicious anemia BEFORE supplementing with B12.

Bean101 profile image
Bean101 in reply to J972

Will the Dr test for that.. they have already said B12 and folate good, within range..

J972 profile image
J972 in reply to Bean101

As you’re probably aware, within range is not the same as optimal. Suggest that you write a post on the pernicious anaemia page of this site to get their take.

healthunlocked.com/pasoc

Bean101 profile image
Bean101 in reply to J972

Thank you..

SlowDragon profile image
SlowDragonAdministrator

His vitamin levels are dire as DIRECT result of being hypothyroid

Only start one supplement at a time and wait 10-14 days before adding another

Vitamin D 25.1 > 50

His vitamin D Is deficient

GP should prescribe total of 300,000iu vitamin D over 6-8 weeks

That’s 5,000iu per day over 8 weeks

Or 7000iu per day over 6 weeks

Important to retest vitamin D again at end of this

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once he Improves level, he will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Bean101 profile image
Bean101 in reply to SlowDragon

They are starting him on a loading dose of vitamin D

SlowDragon profile image
SlowDragonAdministrator

B12. 271. (197-771)

Folate 2.5 (2.1-26.8)

Both obviously extremely low

Is he vegetarian or vegan

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement

A week later add a separate vitamin B Complex 

Then once his serum B12 is over 500 (or Active B12 level has reached 70), he may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Post discussing start B12 injections

healthunlocked.com/thyroidu...

Bean101 profile image
Bean101 in reply to SlowDragon

I don’t think he’s a vegetarian, but doesn’t eat red meat.. his diet has been poor.. he’s stopped drinking and starting to eat a better diet

Do you think he needs digestive enzymes ?

SlowDragon profile image
SlowDragonAdministrator in reply to Bean101

I would only add one thing at a time

And getting on levo soon will improve gut issues

SlowDragon profile image
SlowDragonAdministrator

He also needs ferritin levels tested

As you have Hashimoto’s it’s likely he does too

So a coeliac blood test too once Hashimoto’s is confirmed

Bean101 profile image
Bean101 in reply to SlowDragon

Thank you slow dragon, myself and both sisters have Hashis.. I want to start him on Thyroxine after his blood test at 9am Wednesday morning.. I thought evenings would be a good starting place to take it but I’m not sure how much to start him on..

he’s not seeing the Dr until the 13th February

SlowDragon profile image
SlowDragonAdministrator in reply to Bean101

I would start him on vitamin D FIRST……Now

Get some vitamin D mouth spray with K2

Add separate magnesium supplement early evening (at least 4 hours before bedtime if going to be taking levothyroxine at bedtime)

Don’t antagonise GP by giving him levothyroxine

Standard STARTER dose of levothyroxine is 50mcg

Bean101 profile image
Bean101 in reply to SlowDragon

ok so I won’t start him on Thyroxine and I will let GP to sort this out.. many thanks to you and everyone xx

Bean101 profile image
Bean101 in reply to SlowDragon

Ferritin was 150 30-400

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