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Experiences with
Androgen deprivation therapy (ADT)
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Small dose of levothyroxine - good or bad?
I had thyroiditis many years ago. Since then, my dose of levothyroxine (and for a while NDT) has varied. However, it has never been a high dose (I don't have any record of it going over 100mcg/day), it has been as low as 25mcg/day, but settled at just 37.5mcg/day (driven by me, based on combination of
I had thyroiditis many years ago. Since then, my dose of levothyroxine (and for a while NDT) has varied. However, it has never been a high dose (I don't have any record of it going over 100mcg/day), it has been as low as 25mcg/day, but settled at just 37.5mcg/day (driven by me, based on combination of
JumpJiving
in
Thyroid UK
4 months ago
Liothyronine (T3) or NDT without a prescription
Hi, I’m currently taking levothyroxine but I still have hypo symptoms (tiredness, feeling cold, dry skin, etc.). My most recent test results show that everything is in the correct range, but my T4 is at the high end of the normal range while my T3 is in the bottom third, so I’d like to trial a medication
Hi, I’m currently taking levothyroxine but I still have hypo symptoms (tiredness, feeling cold, dry skin, etc.). My most recent test results show that everything is in the correct range, but my T4 is at the high end of the normal range while my T3 is in the bottom third, so I’d like to trial a medication
Ellaea
in
Thyroid UK
4 months ago
iodine
Hi, Hashimotis sufferer here. I’m currently on 2.5 grains of NDT, slowly upped from 50mg of thyroxine since going to a private thyroid clinic. My symptoms of cold and tiredness have completely resolved but my digestive issues remain. I’m being treated at the moment for these digestive issues that I’
Hi, Hashimotis sufferer here. I’m currently on 2.5 grains of NDT, slowly upped from 50mg of thyroxine since going to a private thyroid clinic. My symptoms of cold and tiredness have completely resolved but my digestive issues remain. I’m being treated at the moment for these digestive issues that I’
Bigfraz76
in
Thyroid UK
4 months ago
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Gut Microbiome, ADT & Doxycycline
This study aims to investigate whether the fecal microbiota in prostate cancer patients who had undergone prostatectomy or
ADT
are different ..." "The alpha-diversity was significantly lower in the
ADT
group.
This study aims to investigate whether the fecal microbiota in prostate cancer patients who had undergone prostatectomy or
ADT
are different ..." "The alpha-diversity was significantly lower in the
ADT
group.
pca2004
in
Fight Prostate Cancer
2 years ago
ADT+Abi dry mouth ideas?
I've been on Lupron+Abi since August 2022. I've had moderate dry mouth and throat, and it helps to drink hot nothing-added tea all day. My MO did not have any really new-to-me ideas. eg drink water (in case tea makes it worse), suck on lemon drops, ... My primary concern is dental health as I am
I've been on Lupron+Abi since August 2022. I've had moderate dry mouth and throat, and it helps to drink hot nothing-added tea all day. My MO did not have any really new-to-me ideas. eg drink water (in case tea makes it worse), suck on lemon drops, ... My primary concern is dental health as I am
Derf4223
in
Advanced Prostate Cancer
1 year ago
NDT and NHS blood tests
Hello everyone, I'm just curious about NDT (I'm using Armour) and its status within NHS. I understand it is not a licensed medicine here. I asked my GP practice if they would be happy to provide me with blood tests to monitor my bloods, however I got a phone call from admin stating they would not
Hello everyone, I'm just curious about NDT (I'm using Armour) and its status within NHS. I understand it is not a licensed medicine here. I asked my GP practice if they would be happy to provide me with blood tests to monitor my bloods, however I got a phone call from admin stating they would not
Piglet1956
in
Thyroid UK
4 months ago
What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
HelenWi
in
SHARE Metastatic Breast Cancer
10 months ago
28 day versus 3 monthly Zoladex side effect -
I know it’s a bit unusual to have the monthly ones for long but it just happened with me as they weren’t sure if I could cope with the standard 18-24 months
ADT
due to my other conditions but seems I am probably able to - so going for it, given my G9 high risk and radiotherapy course.
I know it’s a bit unusual to have the monthly ones for long but it just happened with me as they weren’t sure if I could cope with the standard 18-24 months
ADT
due to my other conditions but seems I am probably able to - so going for it, given my G9 high risk and radiotherapy course.
SimMartin
in
Advanced Prostate Cancer
1 year ago
NDT uk
Please can someone message me with how to get ndt without prescription in the uk. I’ve been suffering on levo for 12 years and have forgotten what the real me actually feels like it’s been so long. My bloods are in the normal range so my doctor has no concerns but I’m desperate for help. Thank you in
Please can someone message me with how to get ndt without prescription in the uk. I’ve been suffering on levo for 12 years and have forgotten what the real me actually feels like it’s been so long. My bloods are in the normal range so my doctor has no concerns but I’m desperate for help. Thank you in
ckdb
in
Thyroid UK
4 months ago
N.D.T
Hi , it’s been a while since I posted ! After moving to the uk from the USA where I was prescribed I have been on a roller coaster journey of self medicating with NDT ! I was able to buy the same NDT from the USA until it was recalled and with many other brands . I have been taking the NDT Real Thyroid
Hi , it’s been a while since I posted ! After moving to the uk from the USA where I was prescribed I have been on a roller coaster journey of self medicating with NDT ! I was able to buy the same NDT from the USA until it was recalled and with many other brands . I have been taking the NDT Real Thyroid
Oliva1955
in
Thyroid UK
4 months ago
Calcium, confused
After Dexa scan revealed osteoporosis ( 4 years of
ADT
) I started Prolia, supplements of calcium, vitamin d3 and k 2. Blood results from 2022, December, and April 2023 showed a score of 2.47mmol/L in a range from 2.24 to 2.58, so l have an adequate calcium level.
After Dexa scan revealed osteoporosis ( 4 years of
ADT
) I started Prolia, supplements of calcium, vitamin d3 and k 2. Blood results from 2022, December, and April 2023 showed a score of 2.47mmol/L in a range from 2.24 to 2.58, so l have an adequate calcium level.
edgeh
in
Advanced Prostate Cancer
1 year ago
NDT to T3 & T4 - brands, and how to transition?
I'm wondering how to make the transition from NDT to T3 & T4, specifically how slowly is it best to go and which brands of T3 & T4 are most widely accepted/least likely to cause reactions? I'm assuming I would translate my current dose of 1.75 grain NDT into the equivalent T3 & T4 and start on that?
I'm wondering how to make the transition from NDT to T3 & T4, specifically how slowly is it best to go and which brands of T3 & T4 are most widely accepted/least likely to cause reactions? I'm assuming I would translate my current dose of 1.75 grain NDT into the equivalent T3 & T4 and start on that?
FoggyThinker
in
Thyroid UK
4 months ago
advice, thoughts please, feeling rather desperate?!
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
Starseed56
in
Thyroid UK
4 months ago
Thyroid s
Hi all. I need to buy NDT. I was on erfa a while ago. When I take Levo, I get calf pain so can’t really take it. Thanks.
Hi all. I need to buy NDT. I was on erfa a while ago. When I take Levo, I get calf pain so can’t really take it. Thanks.
Lei9g
in
Thyroid UK
4 months ago
ART Systematic Review of the Decipher® Genomic Classifier in Prostate Cancer
The Decipher results helped me decide on sRT (salvage radiation) immediately and 2 years of
ADT
follow up. If nothing else its a good biomarker for your PCa and will help you further refine the visual GS gleason grade you received.
The Decipher results helped me decide on sRT (salvage radiation) immediately and 2 years of
ADT
follow up. If nothing else its a good biomarker for your PCa and will help you further refine the visual GS gleason grade you received.
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
endocrinologist
hello Does anyone know of a good endocrinologist in the UK who’s open to prescribing NDT please? Reasonably priced with a holistic understanding of health. I’ve always had the thought that I might feel better on something else than levothyroxine only. Took NDT years ago and felt much better, also
hello Does anyone know of a good endocrinologist in the UK who’s open to prescribing NDT please? Reasonably priced with a holistic understanding of health. I’ve always had the thought that I might feel better on something else than levothyroxine only. Took NDT years ago and felt much better, also
Sonicfairydust
in
Thyroid UK
4 months ago
How Off Would Blood Levels Be If Tested Without Fasting Beforehand?
Hiya. I would appreciate thoughts on this. This morning I had to go for an Inflammatory Marker Blood test for something which isn't related to thyroid issues. Unknown to me, my GP had requested a thyroid blood test anyway so I wasn't prepared by fasting from my meds the day before, and I took a multivitamin
Hiya. I would appreciate thoughts on this. This morning I had to go for an Inflammatory Marker Blood test for something which isn't related to thyroid issues. Unknown to me, my GP had requested a thyroid blood test anyway so I wasn't prepared by fasting from my meds the day before, and I took a multivitamin
MindfulMoments
in
Thyroid UK
4 months ago
Hi, why would my diastolic Blood Pressure be of recent dropping and fast pulse ,4 hrs after NDT meds please?
Hello Everyone, I have been on 1 3/8 grain NDT and less to 1 1/4 grain NDT (pressure of Consultant) for over a year. Feeling jittery and shaky over the last month, barely able to stand, achy muscles after eating. I have over the last week spread the dose from twice a day to three times a day, but
Hello Everyone, I have been on 1 3/8 grain NDT and less to 1 1/4 grain NDT (pressure of Consultant) for over a year. Feeling jittery and shaky over the last month, barely able to stand, achy muscles after eating. I have over the last week spread the dose from twice a day to three times a day, but
Gillybean1
in
Thyroid UK
4 months ago
Going from NDT to T3 - advice please
Hi from a chilly England. I have been paying privately for NDT (2.5 grains daily) for some time now. For the briefest moment I was prescribed Armour NDT but the regulators prevented my GP from continuing this so as all they would offer me was T4, I paid privately for NDT for a decade. My finances have
Hi from a chilly England. I have been paying privately for NDT (2.5 grains daily) for some time now. For the briefest moment I was prescribed Armour NDT but the regulators prevented my GP from continuing this so as all they would offer me was T4, I paid privately for NDT for a decade. My finances have
JadisFox
in
Thyroid UK
4 months ago
approachable private endo preferably south essex
hi there I am looking for recommendations for private endocrinologist who is understanding and open to trying t3/ combination therapy. I live in south Essex and am disabled so preferably local but willing to consider online or to travel a bit. Bonus if they are also an nhs endo. I have the list from
hi there I am looking for recommendations for private endocrinologist who is understanding and open to trying t3/ combination therapy. I live in south Essex and am disabled so preferably local but willing to consider online or to travel a bit. Bonus if they are also an nhs endo. I have the list from
TheaW
in
Thyroid UK
4 months ago
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