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Experiences with
Androgen deprivation therapy (ADT)
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How to get help when my results are in range?
Hello all I have posted before and nothing has changed much. I had some recent tests via my GP and the surgery is on my case as my cholesterol is quite high (7) and there are mutterings about statins which I have refused, I have had very bad hair loss in the past 2 years with no obvious cause. I have
Hello all I have posted before and nothing has changed much. I had some recent tests via my GP and the surgery is on my case as my cholesterol is quite high (7) and there are mutterings about statins which I have refused, I have had very bad hair loss in the past 2 years with no obvious cause. I have
karlek
in
Thyroid UK
4 months ago
Amiodarone effects on thyroid replacement post heart surgery
Hello EveryoneI thought I'd write a little update following the disaster of Amiodarone given to me post keyhole heart surgery. I had my surgery on 11th September. I was put on Amiodarone to regulate my heart rhythmn and rate post surgery. The surgery went well but the effects of Amiodarone on my thyroid
Hello EveryoneI thought I'd write a little update following the disaster of Amiodarone given to me post keyhole heart surgery. I had my surgery on 11th September. I was put on Amiodarone to regulate my heart rhythmn and rate post surgery. The surgery went well but the effects of Amiodarone on my thyroid
waveylines
in
Thyroid UK
4 months ago
BIOCHEMICAL RECURRENCE -NOW WHAT?
Started
ADT
in Jun 19 and continued for 30 months. Had RT (IMAT) in Oct to Dec 2019. PSA came down to 0.04 by Jun 2020. Then from Sep 2021 PSA started increasing slowly. I had one PSMA Pet CT in Aug 2022 at PSA of 0.7. Then PSA kept going up so in Dec 2022 had another PSMA Pet CT at PSA of 1.3.
Started
ADT
in Jun 19 and continued for 30 months. Had RT (IMAT) in Oct to Dec 2019. PSA came down to 0.04 by Jun 2020. Then from Sep 2021 PSA started increasing slowly. I had one PSMA Pet CT in Aug 2022 at PSA of 0.7. Then PSA kept going up so in Dec 2022 had another PSMA Pet CT at PSA of 1.3.
binati
in
Advanced Prostate Cancer
1 year ago
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Seeing diabetes specialist (endo) for thyroid medication 🙄
I posted a few days ago about my anxiety on this endo appointment on Dec 27th, firstly she's a diabetes specialist says at the top of the letter.... Specialist in diabetes and endocrine system 🙄.As I posted I saw a parathyroid surgeon in Liverpool who as now diagnosed me with primary hyperparathyroidism
I posted a few days ago about my anxiety on this endo appointment on Dec 27th, firstly she's a diabetes specialist says at the top of the letter.... Specialist in diabetes and endocrine system 🙄.As I posted I saw a parathyroid surgeon in Liverpool who as now diagnosed me with primary hyperparathyroidism
birkie
in
Thyroid UK
4 months ago
Long-Term ADT With Radiation
QUOTE: [i]"It seems clear that some patients will benefit from short
ADT
versus no
ADT
, and some from long
ADT
versus short
ADT
," said Gillessen. "So the real question is, how do we better personalize therapy?"
QUOTE: [i]"It seems clear that some patients will benefit from short
ADT
versus no
ADT
, and some from long
ADT
versus short
ADT
," said Gillessen. "So the real question is, how do we better personalize therapy?"
Don_1213
in
Prostate Cancer Network
2 years ago
NDT dosing where insomnia is an issue
Interested to hear how others do their NDT dosing where insomnia is a big issue. I’m about to have a NDT increase (currently 4 months into treatment, at 3/4 grain) Insomnia is chronic. Horrible. Even on 20mg amitripyline, it’s still an issue. I recently tried one dose NDT at 6am because I thought
Interested to hear how others do their NDT dosing where insomnia is a big issue. I’m about to have a NDT increase (currently 4 months into treatment, at 3/4 grain) Insomnia is chronic. Horrible. Even on 20mg amitripyline, it’s still an issue. I recently tried one dose NDT at 6am because I thought
Insomania
in
Thyroid UK
4 months ago
update on husbands radiation to pelvic mets
A month ago I messaged asking about others experience with getting reoccurring lymph node mets after radiation and 2 years
adt
. He is not
adt
resistant yet.
A month ago I messaged asking about others experience with getting reoccurring lymph node mets after radiation and 2 years
adt
. He is not
adt
resistant yet.
User14952
in
Advanced Prostate Cancer
2 years ago
NDT help
Can anyone please PM me with details of where they get their ndt please? I have previously been using Thyroid-S but I see there have been some problems with some of the batches lately, so open to suggestions of other ndt brands as well. Thankyou
Can anyone please PM me with details of where they get their ndt please? I have previously been using Thyroid-S but I see there have been some problems with some of the batches lately, so open to suggestions of other ndt brands as well. Thankyou
sal77
in
Thyroid UK
4 months ago
What Now Pt 2
Is it time for a vacation from
ADT
, or time for a new Oncologist, or both?
Is it time for a vacation from
ADT
, or time for a new Oncologist, or both?
Hidden
in
Advanced Prostate Cancer
1 year ago
Thyroid Madness continued
Well, I won't be multi-dosing again unless it synthetic T3 and T4. I'm at the YMCA and I'm very unhappy with the shape of my body. I gained weight around my middle. I don't think my legs look this bad. Maybe I'm in denial. However,, I would like to add T3 to my NDT if I could. I don't believe I'm going
Well, I won't be multi-dosing again unless it synthetic T3 and T4. I'm at the YMCA and I'm very unhappy with the shape of my body. I gained weight around my middle. I don't think my legs look this bad. Maybe I'm in denial. However,, I would like to add T3 to my NDT if I could. I don't believe I'm going
Easylover
in
Thyroid UK
4 months ago
PSA is relatively low, but I am having bone pain in my pelvis and spine
In September 2022 took a vacation from
ADT
and Nubeqa to give me a break and hopefully bring back muscle mass. I also had been having cardiac issues that my cardiologist suspects were made worse by
ADT
. My last labs after 4 weeks showed my PSA going to 1.7.
In September 2022 took a vacation from
ADT
and Nubeqa to give me a break and hopefully bring back muscle mass. I also had been having cardiac issues that my cardiologist suspects were made worse by
ADT
. My last labs after 4 weeks showed my PSA going to 1.7.
Pianodude
in
Advanced Prostate Cancer
2 years ago
Leg Cramps
Is this a side effect of
ADT
? or am I just starting to feel the effects of a 75 year old body breaking down?
Is this a side effect of
ADT
? or am I just starting to feel the effects of a 75 year old body breaking down?
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Low TSH, T4 but optimal T3 on NDT (22 weeks pregnant)
I'm 22 weeks pregnant and get my labs run every month. Getting treatment has been a bit messy. I was referred to an endo and went out of curiosity when I was first pregnant. But I also did my own research and read Stop the Thyroid Madness, joined some groups, etc., and learned about NDT. I felt
I'm 22 weeks pregnant and get my labs run every month. Getting treatment has been a bit messy. I was referred to an endo and went out of curiosity when I was first pregnant. But I also did my own research and read Stop the Thyroid Madness, joined some groups, etc., and learned about NDT. I felt
amansterdam
in
Thyroid UK
5 months ago
Erfa Thyroid NDT Ingredients please
Just a quick question is there a list of ingredients for Erfa please. I am asking for myself plus a friend. Thank you.
Just a quick question is there a list of ingredients for Erfa please. I am asking for myself plus a friend. Thank you.
Brightness14
in
Thyroid UK
5 months ago
Ndt prescription?Prevent metabolic syndrome? Izabella wentz? diet?
I read that metabolic syndrome is associated with autoimmune diseases (so also hashimoto), so I decided to prevent it (I found a book on the spot, let's hope it's good). [u]Has anyone else successfully followed izabella wentz's advice? [/u]I really liked her advice and put it into practice right away
I read that metabolic syndrome is associated with autoimmune diseases (so also hashimoto), so I decided to prevent it (I found a book on the spot, let's hope it's good). [u]Has anyone else successfully followed izabella wentz's advice? [/u]I really liked her advice and put it into practice right away
darkacademia
in
Thyroid UK
5 months ago
Latest reults
hi I’ve just had my latest thyroid panel results, numbers seem slightly better for antibodies but still higher than they should. Ft4 & Ft3 slightly higher than last time but still not optimal? B12 and vit D is a work in progress. Ferritin is edging out of optimal towards high end, not sure what this
hi I’ve just had my latest thyroid panel results, numbers seem slightly better for antibodies but still higher than they should. Ft4 & Ft3 slightly higher than last time but still not optimal? B12 and vit D is a work in progress. Ferritin is edging out of optimal towards high end, not sure what this
Chell1
in
Thyroid UK
5 months ago
Increased Incontinence 2.5 years into stage 4
Diagnosed with stage 4 June 2020 with only treatment being
ADT
. Currently on Xtandi and Lupron. I have a couple questions for this amazing group. On my last 6 month Lupron injection the nurse injected the medicine very fast and spent a considerable time mopping up what was leaking out.
Diagnosed with stage 4 June 2020 with only treatment being
ADT
. Currently on Xtandi and Lupron. I have a couple questions for this amazing group. On my last 6 month Lupron injection the nurse injected the medicine very fast and spent a considerable time mopping up what was leaking out.
Hidden
in
Advanced Prostate Cancer
1 year ago
Prostate Removal
I went straight to
ADT
+ Zytiga and Prednisone
I went straight to
ADT
+ Zytiga and Prednisone
Hidden
in
Advanced Prostate Cancer
2 years ago
Sildenafil for ADT side effect?
My Medical Oncologist is a DO and thinks I may be on
ADT
for a total of 18 months. I may start 28 sessions of EBRT soon. I'm worried about penile atrophy. Would it be a good idea to ask my urologist for sildenafil to prevent penile atrophy?
My Medical Oncologist is a DO and thinks I may be on
ADT
for a total of 18 months. I may start 28 sessions of EBRT soon. I'm worried about penile atrophy. Would it be a good idea to ask my urologist for sildenafil to prevent penile atrophy?
Danskor
in
Advanced Prostate Cancer
1 year ago
Dubious ADT treatment
Overall I'm somewhat worried this whole ordeal with starting
ADT
so early and not even following it correctly did more harm than good. Is it an expected result after stopping this treatment?
Overall I'm somewhat worried this whole ordeal with starting
ADT
so early and not even following it correctly did more harm than good. Is it an expected result after stopping this treatment?
Mustbecursed
in
Advanced Prostate Cancer
1 year ago
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