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Dipyridamole update ** Dr. Sergi Ferré responded
I have been using Dipyridamole alone for my RLS for about 4 months. Initially the response was amazing, I was able to lay still for the first time in years. I quickly stopped the pregabalin I had been taking for years. This was working, I quickly went up to 300mg Dipyridamole. I started getting
I have been using Dipyridamole alone for my RLS for about 4 months. Initially the response was amazing, I was able to lay still for the first time in years. I quickly stopped the pregabalin I had been taking for years. This was working, I quickly went up to 300mg Dipyridamole. I started getting
WideBody
in
Restless Legs Syndrome
2 years ago
my daughter is 4 this month and still pooping in her knickers. what do I do?
So I have read a lot of info and still feel confused, my daughter can poop a few times a day but still has small accidents in her knickers, sometimes she will sit on the potty after an accident and push a poo out but she doesn't seem to be at all motivated to stay clean. I can't tell if its a physical
So I have read a lot of info and still feel confused, my daughter can poop a few times a day but still has small accidents in her knickers, sometimes she will sit on the potty after an accident and push a poo out but she doesn't seem to be at all motivated to stay clean. I can't tell if its a physical
TTmummy
in
ERIC
2 years ago
Heavy bleeding and agonising joint pain on desogestrel???
I recently posted on here asking about experiences with desogestrel. Just days after starting it I began bleeding heavily with cramps worse than usual keeping me up all night and I've been waking up with agonising pain in my right knee/hip joint that spreads throughout my leg. Has anyone else had this
I recently posted on here asking about experiences with desogestrel. Just days after starting it I began bleeding heavily with cramps worse than usual keeping me up all night and I've been waking up with agonising pain in my right knee/hip joint that spreads throughout my leg. Has anyone else had this
Surfingblue
in
Endometriosis UK
2 years ago
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Pain post-hysterectomy
Hello, I'm 13 weeks post-hysterectomy and endo excision, which I opted for as all else failed. I had endo and adenomyosis- long story! I seemed to be doing really well, and now today I was awake very early due to pain and crazy bloating. I can barely sit up or walk, it's horrible. I did try some stretches
Hello, I'm 13 weeks post-hysterectomy and endo excision, which I opted for as all else failed. I had endo and adenomyosis- long story! I seemed to be doing really well, and now today I was awake very early due to pain and crazy bloating. I can barely sit up or walk, it's horrible. I did try some stretches
Smiles-are-free
in
Endometriosis UK
2 years ago
EXCELLENT website on PhotoBioModulation (red light therapy)
This website seems dedicated to TBI (traumatic brain injury caused by injuries to the head/brain by football, etc. But their aim is the same thing we strive for: HEALING our brain. Many, many great links on this website that I just discovered tonight! STAY STRONG! A MIRACLE CURE FOR EVERYONE IS JUST
This website seems dedicated to TBI (traumatic brain injury caused by injuries to the head/brain by football, etc. But their aim is the same thing we strive for: HEALING our brain. Many, many great links on this website that I just discovered tonight! STAY STRONG! A MIRACLE CURE FOR EVERYONE IS JUST
PDWarrior1900
in
Cure Parkinson's
2 years ago
Nature-throid
Hi. Just had a telephone consultation and the pharmacist said that my liver levels were a bit off. She is going to do more blood tests as I am having awful abdominal pain/bloating etc . She also said that my nature-throid can cause this. Has anyone else been told this?
Hi. Just had a telephone consultation and the pharmacist said that my liver levels were a bit off. She is going to do more blood tests as I am having awful abdominal pain/bloating etc . She also said that my nature-throid can cause this. Has anyone else been told this?
Catlover3
in
Thyroid UK
2 years ago
Electroconvulsive Therapy Intervention for Parkinson’s Disease
Have not heard of this option before: Electroconvulsive Therapy Intervention for Parkinson’s Disease https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC4655896/ CONCLUSION Our review of the literature supports the use of ECT as an effective treatment for alleviating refractory motor symptoms in people
Have not heard of this option before: Electroconvulsive Therapy Intervention for Parkinson’s Disease https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC4655896/ CONCLUSION Our review of the literature supports the use of ECT as an effective treatment for alleviating refractory motor symptoms in people
Bolt_Upright
in
Cure Parkinson's
2 years ago
Right Sided Pacemaker
I had a pacemaker inserted last year for sick sinus syndrome. Unfortunately it got infected and had to be removed. I found the whole thing very traumatic. Unfortunately had a four hour episode of low heart rate the other evening so might have to reconsider having another fitted which of course would
I had a pacemaker inserted last year for sick sinus syndrome. Unfortunately it got infected and had to be removed. I found the whole thing very traumatic. Unfortunately had a four hour episode of low heart rate the other evening so might have to reconsider having another fitted which of course would
Flutterbird
in
AF Association
2 years ago
Home Hemodialysis Dialysis Experience
NKF is looking for people currently on home hemodialysis (patients and caregivers!) to share their experience with one of our partners in a 1 hour zoom interview. Compensation for your time will be provided! If interested, please sign up here: https://www.surveymonkey.com/r/J8F2G7H
NKF is looking for people currently on home hemodialysis (patients and caregivers!) to share their experience with one of our partners in a 1 hour zoom interview. Compensation for your time will be provided! If interested, please sign up here: https://www.surveymonkey.com/r/J8F2G7H
KelliC_NKF
in
Kidney Dialysis
2 years ago
Memory book
Has anyone made a memory book to help with a loved one's brain injury? If so do you think it helped? What did it consist of? I've collected a load of photographs but wondered if anything else would be helpful. Hubby still in hospital after a traumatic injury 6 months ago. He is very interactive but
Has anyone made a memory book to help with a loved one's brain injury? If so do you think it helped? What did it consist of? I've collected a load of photographs but wondered if anything else would be helpful. Hubby still in hospital after a traumatic injury 6 months ago. He is very interactive but
Eltonsilver
in
Headway
2 years ago
School Residential Trip
My son is 9 and has always suffered from an overactive bladder. He has to really rush to the toilet when he needs to go. At school he's allowed to leave class without asking whenever he needs to and he wears padded under pants which help if he doesn't quite make it in time, but they won't contain a
My son is 9 and has always suffered from an overactive bladder. He has to really rush to the toilet when he needs to go. At school he's allowed to leave class without asking whenever he needs to and he wears padded under pants which help if he doesn't quite make it in time, but they won't contain a
Quink
in
ERIC
2 years ago
The PSP-CBD Ice Cream Challenge Day 29
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
daddyt
in
PSP Association
2 years ago
Besremi and Phlebotomy
Hello, I had my first PB last week since starting Besremi (January 2022). Besremi is doing great job on my WBC and PLT, but the HCT has climbed above my goal of 42. I waited two extra weeks hoping a higher dose at 110 might knock it down a bit, but no luck. At Hunter's suggestion, HEM approved 250
Hello, I had my first PB last week since starting Besremi (January 2022). Besremi is doing great job on my WBC and PLT, but the HCT has climbed above my goal of 42. I waited two extra weeks hoping a higher dose at 110 might knock it down a bit, but no luck. At Hunter's suggestion, HEM approved 250
Elizka
in
MPN Voice
2 years ago
Back once again with the renegade runner....
Here I am again learning to run for probably the 6th or 7th time. I was out due to injury - a broken hand which meant they advised me not to run for 12 weeks, followed by covid hitting the week I should have been back. Back to the drawing board for me! I've enough residual fitness to start again from
Here I am again learning to run for probably the 6th or 7th time. I was out due to injury - a broken hand which meant they advised me not to run for 12 weeks, followed by covid hitting the week I should have been back. Back to the drawing board for me! I've enough residual fitness to start again from
Eletheelephant
Graduate
in
Couch to 5K
2 years ago
Desmopressin stopped working
Hi there, this is my first time posting, and I'm hoping others in similar situations can share advice. My 11 year old son still wets the bed. He's been using desmopressin and an alarm since October. Initially things got better (waking up sooner when the alarm sounded, and fewer wet nights) to the point
Hi there, this is my first time posting, and I'm hoping others in similar situations can share advice. My 11 year old son still wets the bed. He's been using desmopressin and an alarm since October. Initially things got better (waking up sooner when the alarm sounded, and fewer wet nights) to the point
CherryRose13
in
ERIC
2 years ago
Anyone Taking Linaclotide?
I have been following this forum for awhile but this is my first post. I started Linaclotide a few months ago (first at 145, then a week ago was upped to 290 as I have a very stubborn case of IBS-C). It does seem to be giving me some relief in terms of the gas, pain, and severe bloating I have, but it's
I have been following this forum for awhile but this is my first post. I started Linaclotide a few months ago (first at 145, then a week ago was upped to 290 as I have a very stubborn case of IBS-C). It does seem to be giving me some relief in terms of the gas, pain, and severe bloating I have, but it's
Hidden
in
IBS Network
2 years ago
Have I got IBS?
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Allot
in
IBS Network
2 years ago
Update on “20 years old and Scared”
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Lc06091
in
MPN Voice
2 years ago
Tips on reducing regular bouts of diarrhea.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
wb54
in
IBS Network
2 years ago
Injury years after fibromyalgia diagnosis
So I am already diagnosed with fibro, I hadn’t had a flare for a long time so managed to go back to part time work as a learning assistant Unfortunately yesterday I took a blow to the head with a close contact and hard leather football causing mild concussion and whiplash My body is now in major flare
So I am already diagnosed with fibro, I hadn’t had a flare for a long time so managed to go back to part time work as a learning assistant Unfortunately yesterday I took a blow to the head with a close contact and hard leather football causing mild concussion and whiplash My body is now in major flare
Yara1
in
Fibromyalgia Action UK
2 years ago
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