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Experiences with
Abdominal hysterectomy
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Could I have endometriosis, US says A-OK
Hi guys Ok, at a loss, can anyone help. I had my son 10 years ago. Spent 17 days after with so called retained product yet no outward signs. Blood test and US confirmed it and had a d&c. For about 6 years had no period but chronic period pains. That changed to a kind of light spotting/end of period clotting
Hi guys Ok, at a loss, can anyone help. I had my son 10 years ago. Spent 17 days after with so called retained product yet no outward signs. Blood test and US confirmed it and had a d&c. For about 6 years had no period but chronic period pains. That changed to a kind of light spotting/end of period clotting
Goth8133
in
Endometriosis UK
4 years ago
Ongoing pain
Hi everyone Hope your all coping ok at the moment. Have just had another terrible period after not having one for 7 months again. I’m 50 and have had all the tests to point me in the direction of menopause and yet the useless gyne Drs can’t help. So I have decided to stop seeing them. Have endometriosis
Hi everyone Hope your all coping ok at the moment. Have just had another terrible period after not having one for 7 months again. I’m 50 and have had all the tests to point me in the direction of menopause and yet the useless gyne Drs can’t help. So I have decided to stop seeing them. Have endometriosis
Greenlady48
in
Endometriosis UK
4 years ago
Endometriosis
Hi After 25yrs being fobbed off by doctors and specialist with bad period pains and stabbing pains up the rectum (hot poker) I eventually insisted seeing someone again as I had pain in my bladder stomach etc .The gynaecologist I saw was the first man that actually took me serious and said he needed
Hi After 25yrs being fobbed off by doctors and specialist with bad period pains and stabbing pains up the rectum (hot poker) I eventually insisted seeing someone again as I had pain in my bladder stomach etc .The gynaecologist I saw was the first man that actually took me serious and said he needed
Nia7
in
Endometriosis UK
4 years ago
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Adenomyosis
I have recently found out I have adenomyosis. This was found during an operation to remove both ovaries and fallopian tubes. My consultant says a hysterectomy is the only cure (which I have no objection too)! In the meantime, she's told me I should not go on HRT as that will make the adenomyosis
I have recently found out I have adenomyosis. This was found during an operation to remove both ovaries and fallopian tubes. My consultant says a hysterectomy is the only cure (which I have no objection too)! In the meantime, she's told me I should not go on HRT as that will make the adenomyosis
MARMMAR
in
Pelvic Pain Support Network
4 years ago
Deceptyl side effects
Hi all, I’ve been having the deceptyl injection for 7 months plus Tibolone for the side effects. I have been having bad lower pelvis pain and pain at intercourse. Doctor says it could possible be atrophy , has had any one had this? She has recommended a hormonal cream, I have been using replenish but
Hi all, I’ve been having the deceptyl injection for 7 months plus Tibolone for the side effects. I have been having bad lower pelvis pain and pain at intercourse. Doctor says it could possible be atrophy , has had any one had this? She has recommended a hormonal cream, I have been using replenish but
Chicken2012
in
Endometriosis UK
4 years ago
How do you feel about HRT and endometriosis after ovary removal?
Hi all, I am 41 and have had severe endometriosis since I was a teenager. 4 years ago I had a hysterectomy and endometriosis excision but kept one ovary. Everything was great for ages, still is really, I'm in 90% less pain but now I have a large endometrioma cyst on my remaining ovary which I'm having
Hi all, I am 41 and have had severe endometriosis since I was a teenager. 4 years ago I had a hysterectomy and endometriosis excision but kept one ovary. Everything was great for ages, still is really, I'm in 90% less pain but now I have a large endometrioma cyst on my remaining ovary which I'm having
Bettyheslop
in
Endometriosis UK
4 years ago
Bevacizumab
Hi I've got stage 4 high grade serous ovarian cancer. I have had 4 cycles of carbonation and permission I had a hysterectomy 3weeks ago with my last 2 cycles of chemo I will be started in Bevacizumab, what are people's experience of this drug.
Hi I've got stage 4 high grade serous ovarian cancer. I have had 4 cycles of carbonation and permission I had a hysterectomy 3weeks ago with my last 2 cycles of chemo I will be started in Bevacizumab, what are people's experience of this drug.
Ova-whelmed
in
My Ovacome
4 years ago
After surgery
I had a hysterectomy end of July because I had andometriosis and endometriosis I have had four infections or that's what they think it is I get this horrible pain in my pelvis and groin I've been left with horrible backache Pain in my groin and pelvis on and off and my legs hurt and everything is
I had a hysterectomy end of July because I had andometriosis and endometriosis I have had four infections or that's what they think it is I get this horrible pain in my pelvis and groin I've been left with horrible backache Pain in my groin and pelvis on and off and my legs hurt and everything is
Bailey1981
in
Endometriosis UK
4 years ago
25 year Endometriosis sufferer
Evening all, I have had endometriosis for quite a number of years, have had numerous laparoscopies and been on a few contraceptive pills. my endo completely blocked both fallopian tubes making it impossible to have children without IVF intervention. 4 cycles later I had twin boys delivered by C-section
Evening all, I have had endometriosis for quite a number of years, have had numerous laparoscopies and been on a few contraceptive pills. my endo completely blocked both fallopian tubes making it impossible to have children without IVF intervention. 4 cycles later I had twin boys delivered by C-section
SarahC78
in
The Endometriosis Foundation
4 years ago
Hysterectomy during covid 😰😭
So I’m having a hysterectomy next week. He’s removing everything except an ovary. Excising more of my Endometriosis. Removing my cervix as I also have Adenomyosis and hopefully unwebbing everything which is stuck together. I’ve been waiting for over a year. This will be my 3rd surgery for stage 4
So I’m having a hysterectomy next week. He’s removing everything except an ovary. Excising more of my Endometriosis. Removing my cervix as I also have Adenomyosis and hopefully unwebbing everything which is stuck together. I’ve been waiting for over a year. This will be my 3rd surgery for stage 4
Kat_86
in
Endometriosis UK
4 years ago
Bloated post op
Hi I am now 4 and a half weeks post op I had a laparoscopic removal of endometriosis around the bowel and also a hysterectomy They advised me I could be bloated for a while afterwards but I’m 4 and a half weeks after op now and I’m so bloated still I am that bloated it’s really uncomfortable to breathe
Hi I am now 4 and a half weeks post op I had a laparoscopic removal of endometriosis around the bowel and also a hysterectomy They advised me I could be bloated for a while afterwards but I’m 4 and a half weeks after op now and I’m so bloated still I am that bloated it’s really uncomfortable to breathe
cathhomer
in
Endometriosis UK
4 years ago
It's just life
I don't mean to seem negative even though I know I will come across as such. Because I want to talk about the things we all fear, the things we hide behind a smile. The truth. Life can be good and bad. I read about people encouraging other's not to lose hope in love & they will find their other half
I don't mean to seem negative even though I know I will come across as such. Because I want to talk about the things we all fear, the things we hide behind a smile. The truth. Life can be good and bad. I read about people encouraging other's not to lose hope in love & they will find their other half
Hidden
in
Mental Health Support
4 years ago
Rectal prolapse repair
I am scheduled to have rectal prolapse repair having previously had a hysterectomy and radiotherapy. The surgery was not keyhole. I am concerned about outcomes. Has anyone else had similar?
I am scheduled to have rectal prolapse repair having previously had a hysterectomy and radiotherapy. The surgery was not keyhole. I am concerned about outcomes. Has anyone else had similar?
nBnw
in
Pelvic Radiation Disease Association
4 years ago
Bowel endo
Hi does anyone have endo of the bowel. I’ve had a total hysterectomy and only have one ovary left but I’m still in agony daily. The gynae rang last Saturday and said there’s nothing else he can do for me and discharged me back to my doctors to get them to refer me to someone to now look at my bowels
Hi does anyone have endo of the bowel. I’ve had a total hysterectomy and only have one ovary left but I’m still in agony daily. The gynae rang last Saturday and said there’s nothing else he can do for me and discharged me back to my doctors to get them to refer me to someone to now look at my bowels
Tallulahbelle39
in
Endometriosis UK
4 years ago
Blood clots after hysterectomy
Hi has anyone had a large blood clot after hysterectomy? Is this normal? My hysterectomy was almost 3 weeks ago but bleeding is getting worse anyone else had this? X
Hi has anyone had a large blood clot after hysterectomy? Is this normal? My hysterectomy was almost 3 weeks ago but bleeding is getting worse anyone else had this? X
Cazywazy
in
Endometriosis UK
4 years ago
Fibroids
Hello, I was diagnosed with fibroids a year ago, I when I think about my symptoms, I think I must had, had longer than that. I am 46 and it seems I am going through the menapuase too. I have a lot of pain with them, mainly on one side, my periods tend to be very heavy, and can last for 2 weeks at a
Hello, I was diagnosed with fibroids a year ago, I when I think about my symptoms, I think I must had, had longer than that. I am 46 and it seems I am going through the menapuase too. I have a lot of pain with them, mainly on one side, my periods tend to be very heavy, and can last for 2 weeks at a
Chez46
in
Pelvic Pain Support Network
4 years ago
Worried
I had a hysterectomy the end of July I had my uturus tubes and cervix removed I had andometriosis and endometriosis it was aslo all in my pelvis and rectum My consultant said it won't come back now and only a chance of it coming back is 10% I've recoverd OK had two infections after surgery and been
I had a hysterectomy the end of July I had my uturus tubes and cervix removed I had andometriosis and endometriosis it was aslo all in my pelvis and rectum My consultant said it won't come back now and only a chance of it coming back is 10% I've recoverd OK had two infections after surgery and been
Bailey1981
in
Endometriosis UK
4 years ago
Any advice 😔
Hi all, so I've been on decapeptyl forabout 6 months and HRT for about 3 months, I'm not sure how long I'm going to be on this as I'm waiting for a hysterectomy, I've been mostly pain free for about 5 months but for the last month or so I've been getting pains on my left and right side, and the other
Hi all, so I've been on decapeptyl forabout 6 months and HRT for about 3 months, I'm not sure how long I'm going to be on this as I'm waiting for a hysterectomy, I've been mostly pain free for about 5 months but for the last month or so I've been getting pains on my left and right side, and the other
Pureunicorn
in
Endometriosis UK
4 years ago
Anyone had a successful implantation with a fibroid?
Hello everyone, I have my last frozen embryo transfer in a month and I have a super annoying fibroid which is pushing my uterus to the left. It isn’t indenting the cavity hence why they are doing the transfer. However they’ve given me a 5% chance of implantation which is grim chances. Getting it removed
Hello everyone, I have my last frozen embryo transfer in a month and I have a super annoying fibroid which is pushing my uterus to the left. It isn’t indenting the cavity hence why they are doing the transfer. However they’ve given me a 5% chance of implantation which is grim chances. Getting it removed
Hels1975
in
Fertility Network UK
4 years ago
How do you live with chronic endometriosis pain?
I'm 45 years alone & I picture my life so different. I lost my virginity at 36 by being date raped. Only had one boyfriend & he abused in every way, mentally, emotionally, verbally but never physically. I haven't had a job in 6 years and atm I care for my mum. I look normal. You can't see the pain. I
I'm 45 years alone & I picture my life so different. I lost my virginity at 36 by being date raped. Only had one boyfriend & he abused in every way, mentally, emotionally, verbally but never physically. I haven't had a job in 6 years and atm I care for my mum. I look normal. You can't see the pain. I
Hidden
in
Mental Health Support
4 years ago
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