hi, i have another long winded post!
the questions are also repeated in the post!
questions (so you don’t have to read this whole thing if you don’t want ;)):
-if my RLS is secondary, would i benefit from using a dopamine agonist? and if i were to take an SSRI or something like buspar, would i be negatively impacted? i’ve been taking 2.5mg of buspar in the morning to help with my anxiety. i think it’s helping the general anxiety disorder, but i have panic disorder too and one of my symptoms of a panic attack is restlessness. i’m still dealing with restlessness, so my anxiety is still there
-what iron supplement should be taken to help RLS, and do i need to consult my doctor beforehand?
-anyone also have bad experiences with progesterone only birth control?
so i’m thinking my RLS is secondary, not primary. i’ve been on this birth control called Nexplanon for 3 months, going on 4 months. a month after i got it, i had this huge panic attack that wouldn’t respond to my lavender pills and CBD oil. the panic attack turned into a tic attack (never had one, never had tics like that, and they went away after 3-4 days), i had to go to the ER because by then i’d been awake for 30+ hours and my resting heart rate wasn’t dropping below 100 bpm (normal for me is 75-80 bpm). they didn’t do anything to help me with the tics, but they did do an EKG and a CT scan which both came back normal. i got back home, had another night-long panic attack. i called my doctor and made an appointment to have some blood taken for anything that could have been causing all of that. the lab work was for ACTH, B12, CBC, cortisol, FSH, PTH, LH, sed rate, TSH, vitamin D, ANA, magnesium, ferritin, TIBC, immunoglobulin, protein electrophoresis, estrogen, and prolactin. some things were slightly low or high, some things came back very low or high (my vitamin D was 16.1, my B12 was 1822, and my ferritin was 232).
full iron panel/TIBC:
RBC: 5.2 m/UL Ref: 3.7-5.5
HGB: 15.9 g/dl Ref: 11.8-16.8
Hematocrit: 48% Ref: 36-49
Serum Ferritin: 232 ng/ml Ref: 15-150
TIBC: 286 ug/dL Ref: 250-450
Iron Saturation: 15% Ref: 15-55
Serum Iron: 43 ug/dL Ref: 27-159
UIBC: 243 ug/dL Ref: 131-425
since my ferritin was high, i figured there was nothing more concerning iron that would help. i’m now realizing these blood tests were only after a month of having the birth control in. i’ve been bleeding non-stop since i got it. it’s either heavy or some spotting, but it’s there. i’m assuming this could’ve depleted the iron stores even more, and when these tests were done, a lot of it was only on the lower end of normal. so one of my questions is what iron supplement should be taken to help RLS, and do i need to consult my doctor beforehand? i would also like to mention that my symptoms seem to get worse when i’m on my period.
also, even if it’s not the iron depletion, it could be the Nexplanon itself. the list of side effects for this thing is HUGE. i wrote down every side effect/symptom i’ve been dealing with and it covered the entire front page and overflowed on to the back. one of the side effects is musculoskeletal aching and pain, which might explain the deep muscle aches and shooting pains i have. i did look to see if RLS was a side effect listed, but it wasn’t. however, i read the reviews and i think there were some people that experienced increased or new restlessness after having the birth control put in. also, in the clinical studies there were 2-3 people that had RLS while having this birth control.
my other question was if my RLS is secondary, would i benefit from using a dopamine agonist? and if i were to take an SSRI, would i be negatively impacted?
also, why are there SOOOO many possible causes of secondary RLS?? it’s insane! obviously no one can really answer, but i’m sure you guys get the frustration that comes with not knowing about what’s going on in your body. like, i also have a neurological condition called pseudotumor cerebri, or idiopathic intracranial hypertension depending on who you’re talking to. it’s also been linked to RLS before! great, i know. 😂