25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for 5+ years, he prescribed different RLS medications, and would switch to another one when either augmentation world occur. I explained I didn't have the creepy tingling-anxious to move my feet during the night feeling, but he and two more neurologists ignored my call-outs that I felt I had PLMD. A caring PA from Mayo assigned me to see a sleep specialist at Mayo recently, and after listening to me, studying the two sleep studies, lab workout, and her experience, she determined I didn't have RLS, and had PLMD. Thank you! Finally I consulted with a specialist who really listened to me, and is treating me correctly. I am set for a nerve test (dreaded: I had one is 2016) very soon, yet she took me away from the methadone and prescribed Tizanidine to combat the nighttime movement. I am very early into this stage, but I finally am able to have what I know is the disorder I knew that has rocked me for many years. I will relay to the forum with future results on testing and another sleep study (the last sleep study in 2023 was so inconclusive, they mentioned they didn't detect anything abnormal?)
I have been with the forum for close to year, and I had reported my experiences with RLS. I do have a question for the Viewers please: the sleep specialist at Mayo placed me on 1 mg tablet, buprenorphine/nalox, under the tongue for absorption. I am not sure if she prescribed this to substitute for the 5 mg methadone I am taking, and to gradually wean off the opiate. I have a 14 day supply, and will have a phone appointment/consultation with her on 7/5. I will also direct the question through the patient portal however, I am asking the viewers their knowledge for the prescription. I began the new medications two days ago, and at this time, it is too early to speculate how the treatment is.