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NRAS

36,726 members • 45,363 posts

All posts for December 2023

Macrophage Activation syndrome anyone ?

I was diagnosed with Adult Onset Stills Disease (rheumatoid) aged 17 in 1979. Medication free by my mid 20s expect pain relief. I’m 61 now and have been...

I was diagnosed with Adult Onset Stills Disease (rheumatoid) aged 17 in 1979. M...

Stills

•6 months ago

19 Replies

Off Topic-12 Days of Christmas Day 9

Congratulations! Yesterday our tune was Step into Christmas by Sir Elton John ! 1974. I would also accept Good King Wenceslas whose bones reside in St Vitus...

Congratulations! Yesterday our tune was Step into Christmas by Sir Elton John ! ...

Green230461

•6 months ago

17 Replies

compression gloves

has anyone tried compression gloves? Thoughts?

AW600

•6 months ago

26 Replies

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CBD drops for RA pain

I take 100mcg levothyroxine at approx. 6am daily . At 4pm today I took half a pipette of over the counter CBD Oil which had the immediate effect of raising...

I take 100mcg levothyroxine at approx. 6am daily . At 4pm today I took half a p...

tangolil

•6 months ago

15 Replies

Back in hospital PT 2

So I came in today to get bloods checked. Felt crap this morning and would have gone back to bed but for the appointment.Got onto the acute care ward. Started...

So I came in today to get bloods checked. Felt crap this morning and would have ...

wilbertjellyfish

•6 months ago

24 Replies

Off Topic-12Days of Christmas Day 8

Congratulations to all those who recognised chestnuts roasting on an open fire… Christmas Song by various artists over the years! My favourite is Nat King Cole...

Congratulations to all those who recognised chestnuts roasting on an open fire… ...

Green230461

•6 months ago

7 Replies

RA, OA and now fibromyalgia into the mix

Firstly, for those that read my previous post, Sciensus finally delivered my emergency delivery of benepali to the local pharmacy so it was 6 days before I...

Firstly, for those that read my previous post, Sciensus finally delivered my eme...

Hollyhock123

•6 months ago

13 Replies

A warning re prepay certificate

I have just received a fine for getting a free prescription when my prepay certificate had expired. My pharmacy don't check and so I never actually use the...

I have just received a fine for getting a free prescription when my prepay certi...

Gottarelax

•6 months ago

34 Replies

Anyone opted for private Cataract surgery?

Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it...

Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test ...

Chann

•6 months ago

23 Replies

Off Topic: 12 Days of Christmas Day 7

So it was Dean Martin yesterday in 1945 -written in a heatwave with the intention of cheering up the general populace because of WW11 Well done to Pip and...

So it was Dean Martin yesterday in 1945 -written in a heatwave with the intentio...

Green230461

•6 months ago

20 Replies

Endoscopy was a bust.............

I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that...

I got to the hospital fairly early for my apt. at 1.30pm and i was the second p...

sylvi

•6 months ago

32 Replies

prednisolone use

i hv been using prednisolone 5mg for my RA. This is increasing my diabetes sugar levels which are not getting cotrolled. My doubts are Can I use...

i hv been using prednisolone 5mg for my RA. This is increasing my diabetes su...

Sureshj

•6 months ago

7 Replies

Sjogrens - eye pain/migraine

I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the...

I'm getting severe headaches that are around my eyes. I wake up with my head & ...

Texgirl

•6 months ago

14 Replies

Rant meds

Emailed the Rheumatology dept for repeat prescription as Gp won't do it reply was what meds do you want! No hope if I want any advice my hospital no on...

Emailed the Rheumatology dept for repeat prescription as Gp won't do it reply wa...

welsh12

•6 months ago

24 Replies

Off topic-12Days of Christmas Day 6

Half way through our quiz already! Yesterday our offering was Blue Christmas by dear old Elvis ,1964 🎅🏻🤶🏻Congratulations to Madbunny! So here we go….....

Half way through our quiz already! Yesterday our offering was Blue Christmas by ...

Green230461

•6 months ago

12 Replies

fibromyalgia

hiya Diagnosed with RA couple years ago and now on leflonimide and been doing ok ish. Had Covid 3 months ago (not sure relevant) but also am horrifically...

hiya Diagnosed with RA couple years ago and now on leflonimide and been doing o...

K2013

•6 months ago

26 Replies

Methotrexate

I've been on MTX for12 years, first pills and now injections but it's making me really nauseous and I just feel that I can't take it anymore. My consultant...

I've been on MTX for12 years, first pills and now injections but it's making me ...

Dece

•6 months ago

25 Replies

side effects Alendronic acid

I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray...

I have had really bad neck pain for about 3 months, it is a lot worse in the nig...

Olliechops

•6 months ago

17 Replies

Brain fog

Hi there.I have experienced what I think is brain fog for a few years. But recently I feel like it's getting worse. I also feel like my memory is declining or...

Hi there.I have experienced what I think is brain fog for a few years. But rece...

Sebastian247

•6 months ago

13 Replies

Please consider signing this important petition to improve funding of thyroid conditions in UK 🙏

Good evening all, Occasional poster here, you’ll normally find me lurking on the Thyroid UK forum. I hope you don’t mind me popping over to ask whether...

Good evening all, Occasional poster here, you’ll normally find me lurking on ...

J972

•6 months ago

4 Replies

Haven't had a chance to complete our first ever NRAS Census?

Then now's the time! We are reaching out to you, our community in as many ways as possible to ask a series of anonymous questions. It will help us to better...

Then now's the time! We are reaching out to you, our community in as many ways a...

Aribah-NRAS

Partner•6 months ago

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Pillows!

Has anybody with neck related problems tried a DERILA Pillow. Don’t know why I think it might be better than the many I have already tried…. But ever...

Has anybody with neck related problems tried a DERILA Pillow. Don’t know why I ...

AgedCrone

•6 months ago

4 Replies

Off topic-12 Days of Christmas Day 5

Yesterday’s offering was Its Beginning To Look A Lot Like Christmas by Perry Como and others 1951. Apparently it was released by several artists and a huge...

Yesterday’s offering was Its Beginning To Look A Lot Like Christmas by Perry Com...

Green230461

•6 months ago

19 Replies

filgotinib dosage

hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was...

hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of res...

Doodlereggie

•6 months ago

8 Replies

Escaped Hospital

So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good....

So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Sta...

wilbertjellyfish

•6 months ago

22 Replies

If you have fibro with RA are you given meds for fibro as well ?

Hello, I've had RA for at least a decade . Earlier this year I was taken off all my medication because I could never go more than 6 weeks without antibiotics...

Hello, I've had RA for at least a decade . Earlier this year I was taken off all...

Sensitivegal77

•6 months ago

9 Replies

Earth angels off topic

Hi earth angels,It's that time of year again for me to send love and all good wishes to everyone of you. Thank you, as always, for your wit, wisdom and...

Hi earth angels,It's that time of year again for me to send love and all good wi...

Dayli1

•6 months ago

7 Replies

Matrex discontent

I have always had matrix methotrexate but have been told it is discontinued Any other brands that don’t make you feel sick when it’s taken?

I have always had matrix methotrexate but have been told it is discontinued An...

Cal48

•6 months ago

2 Replies

Travel in the USA and Canada with Prescription Meds

Hi. I’ll be travelling into the USA and Canada with medication that will last me for the duration of my trip. Does anyone know if I need to fill out any...

Hi. I’ll be travelling into the USA and Canada with medication that will last me...

Puttingtheraintravel

•6 months ago

11 Replies

Off Topic- 12 Days of Christmas Day4

Lots of happy memories from your answers. Yesterday’s offering was I wish it could be Christmas every day by Wizzard 1973- one of the first records that I...

Lots of happy memories from your answers. Yesterday’s offering was I wish it cou...

Green230461

•6 months ago

13 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for December 2023

Macrophage Activation syndrome anyone ?

Off Topic-12 Days of Christmas Day 9

compression gloves

CBD drops for RA pain

Back in hospital PT 2

Off Topic-12Days of Christmas Day 8

RA, OA and now fibromyalgia into the mix

A warning re prepay certificate

Anyone opted for private Cataract surgery?

Off Topic: 12 Days of Christmas Day 7

Endoscopy was a bust.............

prednisolone use

Sjogrens - eye pain/migraine

Rant meds

Off topic-12Days of Christmas Day 6

fibromyalgia

Methotrexate

side effects Alendronic acid

Brain fog

Please consider signing this important petition to improve funding of thyroid conditions in UK 🙏

Haven't had a chance to complete our first ever NRAS Census?

Pillows!

Off topic-12 Days of Christmas Day 5

filgotinib dosage

Escaped Hospital

If you have fibro with RA are you given meds for fibro as well ?

Earth angels off topic

Matrex discontent

Travel in the USA and Canada with Prescription Meds

Off Topic- 12 Days of Christmas Day4

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