Hi, I've just recently been diagnosed on the 2 January this year so I'm still getting my head round it all. It all really kicked off a few years ago when I hurt my knee jumping off a bus in New York. I recovered well from that just thought I'd hurt my knee thought nothing of it. It went again last year and again I recovered but slowly fatigue seemed to effect me. Then in Sept my knee went twice in a week, this time it was different. I had previously been diagnosed with chronic fatigue syndrome but I've always managed to control it. Now I'm struggling the pain and fatigue comes and goes ranges in different levels. Is very unpredictable. Having gone private to get this diagnosis as I couldn't wait 6 months on the nhs. I'm now waiting for treatment the rheumatologist has recommended via the nhs. So I'm trying to manage myself with ordinary painkillers cos I won't resort to stronger stuff without a fight. He told me light exercise so I'm walking my dog a little going on my exercise bike and I'm loosing weight as I'm carrying a bit of timber.
My main issue is the dizziness when walking, I've been referred to a balance and dizzy clinic which I will hopefully go next month.
I'm trying to go back to work. But gotta say I'm struggling. I work with under 5 year olds in a preschool playgroup only part-time but never the less it is very physically demanding. Work have been great reducing my hours days on my return but Friday I got into work and I could barely walk. I couldn't look after myself let alone the kids. Work have suggested every other day just half day so I have a rest inbetween. I so want to try it and I'm determined to but I can't help but feel that I will no longer be able to do my job. I just don't know what to do.
Has anyone else come to this issue with working life? How did you deal/handle it?
Any advise for a newby with this condition?