I'm newly diagnosed trying to get my head around all this and I'm still convinced I have fibro which has similar symptoms. But family and friends talk to me and they think it will get better and go away. But when I tell them I've been suffering for as long as I can remember but my symptoms have got worse slowly over the years. They look me and I sware they think I'm making it up.
I'm finding some days when it's really bad I've contemplated using a stick and I have one in my bag and I'm scared to use it. What will people think or say.
I'm off sick and I walk with children and I know that I can't ever go back to my job and people just say well you need to find another job but question is what I'm so up and down. I am so scared about the future and don't know what to do. Don't fit the disability box but I don't fit the normal box I really hate this and I'm struggling with myself