I have JHS/hEDS and I applied for pip last October. I finally have a f2f assessment for next week. I'm really worried I won't get anything at all. Is there any tips you could give for the f2f to ensure I get the right amount of pip?
I'm in pain all the time and I'm always tired, I can't walk far and often not at all. Sometimes I can't shower as I'm in so much pain and I can't stand for more than 10 minutes without my legs getting stiff and very painful. As a result I struggle to cook meals and do basic tasks to look after myself. My knees dislocate almost every day.