Hi everyone! I've just joined the group today. I'm a 20 year old ALD carrier. My family found out I was a carrier after my dad was diagnosed with cALD in 2001. I'm extremely worried about developing symptoms some day, even though most journals describe carrier symptoms as "mild." Of course, most carriers do not get as devastating symptoms as men with AMN/ALD, but regardless I would not consider falling, having to use a cane/walker/wheelchair, extreme numbness in legs, etc. as just "mild" symptoms. When I think of a mild symptom, I think of something like a headache or nausea.
Is the language that carriers may develop "mild" symptoms misleading? Would love to know your thoughts.
PS: I'm from the US and run a Facebook support group for ALD carriers under the age of 30. Just search "YAC (Young ALD Carriers)" on Facebook if you are a carrier under 30 and would like to join.