Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,056 members • 26,262 posts

All posts for January 2024

advice re 0.02 reading

Hi everyone my first ever psa age 53 no symptoms 3.1 jan 2022 mri pri 3 hard prostate Gleason 3+3 no other scans mri did not detect the size of tumour l was...

Hi everyone my first ever psa age 53 no symptoms 3.1 jan 2022 mri pri 3 hard pro...

Ffghytrrg

•3 months ago

4 Replies

Agonists vs. antagonists (the latter not to be confused with a character in a novel!)

I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer...

I know many of you on this site are beyond ADT, but for those who are still hold...

bluesnjazz

•3 months ago

2 Replies

FDA Clearance of FK-PC101, a Novel Personalized Prostate Cancer Immunotherapy

not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in...

not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized...

Maxone73

•3 months ago

5 Replies

Want to take advantage of all our features? Just log in!

QoLando Caliente El Sol 🌞

https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday...

https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not fo...

dockam

•3 months ago

23 Replies

Update on dads visit with his MO today

Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all....

Took dad to his MO today, the appointment I was dreading, I was thinking they wo...

Radtech40

•3 months ago

8 Replies

Post treatment post ADT time to PSMA test

Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending...

Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) s...

Yokohama2023

•3 months ago

23 Replies

A little Great News!

Hello Friends, A couple years ago our journey began. I was scared, panicked, and at a complete loss as my husband was diagnosed with stage 4 prostate...

Hello Friends, A couple years ago our journey began. I was scared, panicked, ...

Lshanks07

•3 months ago

12 Replies

PSA rising 10 weeks after Orgovyx Holiday

PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir...

PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence o...

ac61418

•3 months ago

Be the first to reply

For all the men wishing things were bigger...

https://www.medpagetoday.com/special-reports/exclusives/108475 It appears there is FDA turmoil in the penis vacuum pump industry. The agency claimed that...

https://www.medpagetoday.com/special-reports/exclusives/108475 It appears there...

Don_1213

•3 months ago

Be the first to reply

Chemotherapy: Fraudulent and Deadly?

Moving into Chemotherapy for my next step and I told my MO that I would prefer Lu 177 over Chemotherapy. That was the wrong thing he wanted to hear. He said...

Moving into Chemotherapy for my next step and I told my MO that I would prefer L...

anonymoose2

•3 months ago

39 Replies

Am i catastrophizing over my results

Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise...

Hi. I’m a little confused over my situation.After Cyberknife treatment and two y...

Walliam

•3 months ago

22 Replies

Add Nubeqa to Orgovyx?

Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate,...

Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PS...

vintage42

•3 months ago

4 Replies

Paying less for some drugs

I went to Walgreens the other day to pick up lidocaine 5% ointment, which I use for the peripheral neuropathy in my feet. I had switched my Part D plan in...

I went to Walgreens the other day to pick up lidocaine 5% ointment, which I use ...

Cantabrigian51

•3 months ago

6 Replies

This is for J-O-H-N

Im surprised you haven't said this yet. Castrate resistance. When you fight kicking and screaming, as they wheel you in the operating room to remove your...

Im surprised you haven't said this yet. Castrate resistance. When you fight k...

Still_in_shock

•3 months ago

14 Replies

ADT or Orchiectomy & side effects

I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether?...

I have been on ADT for 18 months the Side effects are a little better but still ...

lookout4

•3 months ago

16 Replies

Prostate-as-"PCa Factory" - Reasons for Removal?

While reading the bio of forum member, I noted the following advantage to radical prostatectomy (paraphrased):"No more PCa factory" As I have written in...

While reading the bio of forum member, I noted the following advantage to radica...

JohnInTheMiddle

•3 months ago

10 Replies

Anticancer Activities of Nigella Sativa (Black Cumin)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3252704/

FMOH_N

•3 months ago

5 Replies

Unsure of best option in early prostate cancer diagnosis.

I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate...

I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 ...

cobrasc429

•3 months ago

15 Replies

Provenge (only) - impact on overall survival

I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different...

I just got insurance approval for Provenge...out of pocket is really high so now...

Gl448

•3 months ago

4 Replies

To Chemo or Not to Chemo--that is the ?

Should I follow my MO's advice and do docetaxel? Since I'm now 78, and have read terrible accounts of chemo, I have held onto the belief that I would do...

Should I follow my MO's advice and do docetaxel? Since I'm now 78, and have rea...

LifeQuality

•3 months ago

58 Replies

Johns Hopkins second opinion?

My husband was recently diagnosed and we would like to get some second and third opinions to help decide on treatment. I have seen contact info for Johns...

My husband was recently diagnosed and we would like to get some second and third...

SandersWalker

•3 months ago

11 Replies

sudden onset wheezing

Hi, over the past few weeks the degree of wheezing and crackling breathing has become so noticeable, my wife hears it. Currently waiting the result of a CT...

Hi, over the past few weeks the degree of wheezing and crackling breathing has ...

FortyWinks

•3 months ago

6 Replies

Duke CHAMP Trial - Dr. Armstrong

Hi everyone. I was curious if anyone else in here was a current participant in the Duke CHAMP trial for NEPC with Dr. Armstrong? Would love to connect. I know...

Hi everyone. I was curious if anyone else in here was a current participant in t...

antisocialsocialwrkr

•3 months ago

2 Replies

CT urogram

Hi all, when my husband first had symptoms synonymous with Pca he was sent for a CT urogram, we never knew his PSA result, this came back OK. 9 months later...

Hi all, when my husband first had symptoms synonymous with Pca he was sent for a...

NLondon43

•3 months ago

2 Replies

CT Scan

Has anyone heard about a scan in the Netherlands that is more accurate than a PSMA?

Has anyone heard about a scan in the Netherlands that is more accurate than a PS...

Oeje14

•3 months ago

19 Replies

I am still struggling with treatment decisions - Help please.

I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or...

I am struggling to decide on my treatment. The main point of conflict is HT or ...

Nordman

•3 months ago

37 Replies

Testosterone and adrenal glands

Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to...

Hello all, so I finished 10 rounds of chemo docetaxel last year in September. M...

Eugmn

•3 months ago

14 Replies

Barry

Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) ,...

Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, abo...

littlemount

•3 months ago

3 Replies

PCA Cure and when?

7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I...

7 months into my fight against castration sensitive prostate cancer. PSA is 0 o...

Nowhereman9

•3 months ago

30 Replies

Skull Metastasis

I just received an order for a brain M RI from Dr. Aggarwal. I was wondering why. My recent PSMA PET scan an d probably confirmed by SPECT scans after Pluvicto...

I just received an order for a brain M RI from Dr. Aggarwal. I was wondering why...

spencoid2

•3 months ago

5 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2024

advice re 0.02 reading

Agonists vs. antagonists (the latter not to be confused with a character in a novel!)

FDA Clearance of FK-PC101, a Novel Personalized Prostate Cancer Immunotherapy

QoLando Caliente El Sol 🌞

Update on dads visit with his MO today

Post treatment post ADT time to PSMA test

A little Great News!

PSA rising 10 weeks after Orgovyx Holiday

For all the men wishing things were bigger...

Chemotherapy: Fraudulent and Deadly?

Am i catastrophizing over my results

Add Nubeqa to Orgovyx?

Paying less for some drugs

This is for J-O-H-N

ADT or Orchiectomy & side effects

Prostate-as-"PCa Factory" - Reasons for Removal?

Anticancer Activities of Nigella Sativa (Black Cumin)

Unsure of best option in early prostate cancer diagnosis.

Provenge (only) - impact on overall survival

To Chemo or Not to Chemo--that is the ?

Johns Hopkins second opinion?

sudden onset wheezing

Duke CHAMP Trial - Dr. Armstrong

CT urogram

CT Scan

I am still struggling with treatment decisions - Help please.

Testosterone and adrenal glands

Barry

PCA Cure and when?

Skull Metastasis

Search posts

Pinned Posts

Latest poll

Aware of our online community's impact, resources & support—please consider helping sustain & expand our group. https://malecare.org/donate

Topics

Archive