A little Great News! : Hello Friends... - Advanced Prostate...

Advanced Prostate Cancer

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A little Great News!

Lshanks07 profile image
12 Replies

Hello Friends,

A couple years ago our journey began. I was scared, panicked, and at a complete loss as my husband was diagnosed with stage 4 prostate cancer at age 49. He had 17 bone Mets.

After some amazing input from this community and special advice from Tall Allen, I was able to set my sights on the fight ahead.

We pushed our oncologist for the new Triplet Therapy. We were the first case they tried the therapy on and hopefully they are happy with the results!

2 years later he is still taking Daralutamide (Nubeqa) and Lupron injections.

We had a PSMA pet scan yesterday and he no longer has any visible Mets anywhere!!

We are so very excited and wanted to share a bit of good news and feedback on the triplet thereapy!!

Thank you so very much for all of you that helped us so far!!

I will forever be grateful and will update again once I have more information!!

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Lshanks07 profile image
Lshanks07
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12 Replies
tn12 profile image
tn12

That's amazing. Thanks for sharing. Wishing him continued success with treatment.

CancerConcierge profile image
CancerConcierge

That's amazing news! Thanks for sharing!

Tall_Allen profile image
Tall_Allen

Great news! Triplet is the bomb when it works.

Lshanks07 profile image
Lshanks07 in reply to Tall_Allen

Hi Tall Allen! Thank you for all you have done to help us! Do you think they will change his treatment? Thanks again?

Tall_Allen profile image
Tall_Allen in reply to Lshanks07

It's working great the way it is. I can't think why they would change it.

Kaliber profile image
Kaliber

herze hoping that his Triplett therapy works great for him and extends his life for a good long time. Thanks for letting us know how things are going.

❤️❤️❤️

pakb profile image
pakb

Great news! My husband was 49 at diagnosis with the same as yours. We are almost 7 years into it and my husband has done well- hopefully giving you even more hope. So happy to hear your good news! Allows for some normal breathing💙

pakb profile image
pakb in reply to pakb

Also- not sure if I've said this before but if you haven't I'd investigate some therapy for the kids. I didn't realize how much the diagnosis, and my worry that I thought I hid well, effected them. They're now 20, 22 and 24. All three started with a therapist since. But not until more recently for 1 of them and I wish I'd just gotten them someone to talk to earlier. We are a super close family but I think they didn't want to worry me with stuff. Our kids are great- but having someone to talk to outside family and friends has been great.

Lshanks07 profile image
Lshanks07 in reply to pakb

Thank you for the advice, I will definitely look into it. I do know our youngest has been affected. He thinks every time someone catches a cold, it is life threatening.

Thank you!

pakb profile image
pakb in reply to Lshanks07

Poor thing. I wish I'd started mine in therapy sooner- but I didn't realize how internally panicked I was myself. Here's hoping there are many more years of good news!

Pinkyboy profile image
Pinkyboy

Lshanks07 … I can’t begin to tell you how encouraging your post is to me. Thank you!

Apart from age (I am 84!), my story and your husband’s story are so similar: Gleason score 9, widespread bone mets, *and* triplet therapy. I had four rounds of docetaxal (ended late last September), and still on 6-month Lupron and Nubeqa. My next blood labs, nuclear body scan, and oncologist visit is late March/early April. After reading about your husbands wonderful success, I am very optimistic. Thanks again for a good start to the day!

Lshanks07 profile image
Lshanks07 in reply to Pinkyboy

I will be wishing you guys the best!!

My husband also has the BRCA2 gene, I am not sure if that is a contributing factor in these fabulous results.

I know this disease is tricky and things can change for us, but we will celebrate the victory for now!

Please update me once the scans are complete. I will be thinking of you.

Also, I should add that the scans right after his chemo rounds showed lighter uptake, but still visible.

This scan, a year later showed 0 Mets…

I am so happy our story can be encouraging, I know I scoured countless stories here for hope. Everyone on this forum has been very encouraging and lovely to me. I am forever grateful.

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